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answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 6/26/2011 11:40 AM (GMT -6)   
I am still in the hospital. My doctor gave me the a-ok to drink some clear fluids and wow, I wanted to guzzle the ginger ale, but I showed self control and only drank a couple of ounces. I slept okay, but still felt waves of severe cramping and nausea.

This morning, I drank an ounce of ginger ale and dozed off and on. I then drank a couple of sips of apple juice and continued to feel nauseas. I got up and walked, but hurried back to my room because I felt so nauseas. I threw up the apple juice.

The nurse also removed the epidural and placed me on a pain pump since I can't swallow pills yet.

I am waiting on my doctor to come in and see what he has to say about this. Does this mean some of my intestines are awake and some of them are alseep? I have no appetite and can't imagine even sipping some chicken broth. EWWWW

The nurses said I walk more than anybody in here and I am definitely doing my part trying to heal as quickly as possible.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/26/2011 1:34 PM (GMT -6)   
your ileus is not over yet, Tracy. when exactly was your surgery again? i know you're having a very hard time time and i feel for you, but it'll all be over soon, i promise. i had an ileus for 8 days post colectomy. remember, your body have been thru a major trauma and it'll take a while for it to recover it. keep walkin. thinking of you and sending a big hug!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/27/2011 9:01 PM (GMT -6)   
How are you doing today? An Ileus is very common, but you will continue to vomit if you drink/eat anything, until it passes. Walking is great to get the blood flowing and it does help but it's not the 'majic pill' either:(

Take it easy and don't stress over it...try to find an activity that can take your mind off of it...even if only for a little bit. Do you have an Ipod or MP3 player with you? try some of your favorite music and whatever you do...DON'T watch the Food Network!!!

(((HUGS)))
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/29/2011 4:46 AM (GMT -6)   
Also thinking of you Tracy - yes it will pass though it is hell right now - the cramps and nausea are the bowels actually waking up so even though painful it is a sign they are working and you wont have an appetite at all until this passes (your body's way of saying 'no not ready yet') so sipping is a good thing for now.
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection -MRI showed twist - (made colonic inertia worse but cleared obstruction)
March 2009: Total colectomy/loop ileostomy - quality of life 100%
23 Sept 2010: Ileostomy reversal - not going well - motility/rectal issues being investigated

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/29/2011 12:49 PM (GMT -6)   
OH, Tracy, praying for you. Did your doc do the xray and see if it is the de nuvo adhesions or just the ileus lasting and lasting. Feel for you girl, And praying like crazy. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/30/2011 3:37 PM (GMT -6)   
     Tracy...I haven't been following this forum for awhile.  Too busy catching up on lost time living life...lol.   I didn't know you were going back into the hospital!  What happened?  My prayers are with you my friend.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/30/2011 9:43 PM (GMT -6)   
Hi Christine,
Just a quick update on Tracy. Her loop ileostomy developed a big peristomal hernia. The removal of her sigmoid colon did not improve her rectal function so the ileostomy turned out to be a permanent need. But with the peristomal hernia being so big she had to have the stoma moved to another location still on her right side and had it made into an end ileo due to it being permanent (fewer issues with end ileos than with loop ileo's), then her surgeon removed her whole colon, and they also did a tummy tuck to get rid of excess skin and neaten up scarring. BUT she had this done June 21 and is still in the hospital with either a very long ileus or possible early small bowel obstruction from newly formed adhesions. They did a CT scan this morning and I guess she is still awaiting results. She had an NG tube and epidural pain pump for quite a few days. NG tube is out but she is miserable. Lots of ups and downs. Poor thing. Lets all pray really hard. IF it turns out to be new adhesions from this surgery, the doc will have to go in laporoscopically and take these adhesions down. I talked with her the night before her surgery and she was pretty matter of fact and just wanted it over. Loved not having to do a bowel prep as she was already only using her small intestine. Just had to be on clear liquids. Never did she dream it would go the way it went. Too bad the loop ileo developed the peristomal hernia or she would have just kept on with that as it did serve her well. So let's keep our prayers going for Tracy. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/1/2011 9:06 AM (GMT -6)   
     OMG...I had no idea!!!  We used to phone each other occasionally after our operations last year but haven't done so in awhile.  I sure will pray for her!  She's such a nice person!
     What caused the hernia?  Too much lifting?

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/1/2011 5:47 PM (GMT -6)   
Hi Christine,

As far as I know the peristomal hernia appeared a few months after her loop ileo was made. Tracy said she was doing her normal activities but had given up lifting excessive weight such as those multiple water bottle packs, you know the kind where you get 24 16-oz bottles in this big plastic package. She knew not to do that. So she was doing just normal stuff. She did drive a school bus where you had to set some kind of hand brake but I guess that was OK. I guess the peristomal hernia just developed. Her doc told her peristomal hernias are very common in loop ileostomies. Glad I talked my surgeon into doing an end ileo right off the bat. I already had enough internal scar tissue I did not need to chance needing a revision. We will all continue to pray for her. Thanks for asking and expressing your concern. She needs all the support she can get. This must seem endless to her. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/2/2011 12:17 PM (GMT -6)   
     WOW!  I feel really bad that I haven't been in touch with her.  I'll have to fix that when she gets home from the hospital.  In the meantime I will continue to pray that she improves every day.
     I didn't have to talk my surgeon into an end ileo.....he said I was not a candidate for a j-pouch..end of story..lol.  He knows his stuff, that is for sure.  I sort of got the feeling that he wasn't a big fan of j-pouch anyway.  He trained at the Cleveland Clinic and I suppose he saw the rates of failures compared to successes.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/2/2011 12:33 PM (GMT -6)   
Hi Chirs,

I just got a letter from Soc Security, they may be cutting my benefits. Can't go back to teaching due to my injuries so now I will be without insurance. Rosemary
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