OK I'm confused
I have an end ileo
I've read you should leave an 1/8 inch gap around the stoma and I've read you should make it as snug as possible. Which is it? When I leave a gap, it seems a little stool gets in there under the wafer and irritates my skin. When I make it snug, it seems I leak more! As if when the wafer turtlenecks and expands, it may be pushing up and removing the seal. I have 1/8 inch of dead skin below my stoma and the last time it was cut snug, when I pulled off the bag it pulled the dead skin off too and was bleeding a lot! I'm really afraid of an open hole below the stoma! I have more dead skin still on the right / underside and I'm afraid of ripping that off too. I guess it needs to come off eventually??
I know the stoma can swell which is the reason to leave a gap but it seems that's just asking for irritation?! Can I do this without seals / paste or do I need to purchase that extra stuff to protect my skin?
thanks for any advice, I'm new to this!
DX 2/10 UP. DX 10/10 UC. Now testing for Crohns. I tried: Asacol, codeine, tramadol, Xanax, Imodium, Canasa, Bentyl, Imuran, Prednisone, Flagyl, Cipro, Morphine, Vicodin, Prozac, Remicade ~ nothing worked. 1st surgery 6/8/11! 2 more to go!