Tomorrow is my day,surgery day!

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 6/28/2011 8:06 AM (GMT -6)   
Well tomorrow is my Colectomy. I feel ready but still do not believe it is real. I don't feel super excited or scared for the surgery as I thought I would. I don't feel a whole lot other than sadness for having to leave my baby girls. I know each person's results are different but I am also scared of being "normal" it has been so long since I have been normal. I know that doesn't make sense. Just please keep me in your thoughts,especially for the prep:)
ETA: This is day 3 of a liquid diet and with the laxatives my tummy looks like it hasn't looked in forever!
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

Post Edited (TickledPinkTwice) : 6/28/2011 7:12:31 AM (GMT-6)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/28/2011 8:31 AM (GMT -6)   
GOOD LUCK Mary!!!!! will be thinking of you! very excited for you! sending positive thoughts and praying for a successful surgery, speedy recovery and no comlications!! will be looking for your updates on FB! best wishes hon!!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 6/28/2011 9:55 AM (GMT -6)   
Mary, good luck! Hope the surgery goes smoothly. I'll be thinking of you.

I don't think it's weird at all to fear being "normal." I am having a very weird reentry .... people just can't relate that well unless they've been close to serious illness. It's hard when being sick has been such a focus, and then you just move on w/your life....

But believe me, it is the BEST problem in the world to have! Definitely fear that's worth moving though....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 6/28/2011 10:59 AM (GMT -6)   
Wishing you all the best of luck Mary!!!! :-)

Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 6/28/2011 11:47 AM (GMT -6)   
Mary - keep us posted on how your prep is going! I know what you mean about your tummy, I remember waking up the day of my colonoscopy and saying out loud to myself, "WOAH I don't look pregnant today!"

I know you are sad to leave your girls...but just think, when you are feeling better you'll be able to really BE with them and enjoy doing everything with them instead of feeling crummy all the time!

I'll be thinking of you today!

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 6/28/2011 3:17 PM (GMT -6)   
Thanks guys! I just started the prep(yuck) with some additonal laxatives of course. I took some laxatives last night and have been on only liquid for 3 days so this should clean me out!
Alisha-that is exactly what I mean!
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/28/2011 10:17 PM (GMT -6)   
Mary, Sure hope this works for you and you have a smooth recovery. You have little girls to get back to. Rosemary

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/29/2011 4:41 AM (GMT -6)   
Good luck for your speedy recovery - and a flat tummy forever!!!
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection -MRI showed twist - (made colonic inertia worse but cleared obstruction)
March 2009: Total colectomy/loop ileostomy - quality of life 100%
23 Sept 2010: Ileostomy reversal - not going well - motility/rectal issues being investigated

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 6/29/2011 6:39 AM (GMT -6)   
Thank you so much! I woke up and am pretty scared(which is weird because I have had quite a few surgeries and have always been pretty relaxed). I am worried I am not cleaned out enough. As I mentioned, I took my laxatives Saturday, then Sunday-Tuesday I was only on liquid, I took laxatives on Tuesday and then laxatives with my prep last night. Still not a clear bowel movement,but it is light. I don't know what else I could have done? Will this cause a problem?
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/29/2011 6:42 AM (GMT -6)   
don't worry about it, they can still do the surgery even if the bowels are not completely cleaned. GOOD LUCK!!! am thinking of you and can't wait for you to be over it!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 6/29/2011 6:44 AM (GMT -6)   
Thank you Hodaya, I will update on FB as I get a chance!
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/29/2011 7:39 AM (GMT -6)   
Best of luck Mary. Here's to recovery and feeling better and spending time with your girls.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 6/29/2011 7:44 AM (GMT -6)   
Mary don't forget that people sometimes have emergency surgery with no preps at all.... it's not ideal, but certainly can be done with much worse prep.... good luck today!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/29/2011 10:47 PM (GMT -6)   
I hope that today went as smoothly as possible
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/30/2011 6:03 AM (GMT -6)   
A new healthy mom for your girls! Hope all goes well and walk, walk, and walk
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/1/2011 3:45 PM (GMT -6)   
Hey guys. I am doing fine. Surgery ended up taking 4.5 instead of 3.5 hours. Everything went very well. My Colon ended up being over 7 foot long. He also stated it took a little longer because my Transverse Colon was pretty much plastered to my Duodenum, no fat at all(which I have a hard time believeing,lol) I also ended up with an NG tube which was horrible. Yesterday both the NG and the catherter came out, I started to pass gas. Then today I have already had 4 bowel movements, which is pretty good considering I have barely eaten anything. It was nothing but liquid. I feel ok, just a little sore. Didn't use my pain pump at all but have taken the pills a few times. I talked to him a few minutes ago and stated that if i wanted to go home TONIGHT, I could, but my husband doesn't feel comfortable with me leaving after 2 days so I guess I am going home tomorrow. So everything is going remarkabley well which is scary to me because that is unusual. I am doing plenty of walking. I will update when I get a chance again. Thanks for the well wishes!
ETA
 
Also I have been having intense headaches so since I am staying I might have a blood patch tomorrow because it could be from the spinal. BTW my anesthesiologists was awesome. He was younger, He had tattoos up his arm and we were joking about my new one. Definitely made me feel at ease!

Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

Post Edited (TickledPinkTwice) : 7/1/2011 3:05:25 PM (GMT-6)


windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 7/1/2011 4:03 PM (GMT -6)   
So thrilled for you!!!  I didn't do well, had ileus for 5 days, first 2 days lived on morphine unable to move (laparotomy).  Anastamosis disconnected and was downhill after that.  I an ileostomy now and hesitant to get it reversed...been 11months.  I'm amazed at some peoples progress, including yours...3 days WOW!  Sending you nothing but well wishes and more impressive recovery!!  And it's not that unusual, I recall my surgeon stating could be as early as 4 days...everyone's different!!

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/1/2011 10:04 PM (GMT -6)   
Thank you, I hope everything continues to progress well once I leave the hospital too!
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 7/2/2011 4:39 AM (GMT -6)   
Good morning Mary - I'm glad everything is going so smoothly. Quick response due to running out the door for day 2 back at work.

nanci

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/3/2011 8:30 AM (GMT -6)   
Glad everything went well! Wow, that's amazing if you can go home already. Nice to hear good news!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/3/2011 12:58 PM (GMT -6)   
that is just so good to hear Mary. keep doing well :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/3/2011 7:55 PM (GMT -6)   
Thanks guys. Still doing good. I go about 10 times per day and I don't mind at all. It is still liquid but it is turning brown. I am just afraid I will wake up one day and be constipated. I am still not eating much but I feel great! BTW, I posted pics on my blog,including my Colon.lol
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/3/2011 7:56 PM (GMT -6)   
Oh and I know I am still swollen but I swear my waist is tinier. He kept saying I don't know how such a big Colon fit inside just a small abdomen!!!! What, I sure didn't feel small at all.
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 7/3/2011 8:53 PM (GMT -6)   
Mary,
SO happy to hear you're doing so well. It amazes me how you feel well so soon. At 3 days I was still very drugged and it wasn't until day 6 that I felt like a human. Of course, I'm much older and I'm sure that didn't help!! My colon was 8 feet long and my doctor said it was the longest one he'd seen. No wonder it was so hard to poop...look how far it had to go!! Sounds like you had the same issue.

Hope you continue to do so well.....it's always wonderful to go home:)

Janie

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/3/2011 9:36 PM (GMT -6)   
Good for you Mary. Hope your success keeps up. Rosemary
New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, September 26, 2018 7:23 AM (GMT -6)
There are a total of 3,006,727 posts in 329,385 threads.
View Active Threads


Who's Online
This forum has 161849 registered members. Please welcome our newest member, Michael007.
182 Guest(s), 10 Registered Member(s) are currently online.  Details
Michelejc, JayMot, 81GyGuy, Michael007, RJD76, ks1905, ddyss, UCer23, Aerose91, iPoop