Posted 6/30/2011 7:40 PM (GMT -7)
Well, I was at a gathering tonight w/some coworkers and I realized that my shirt had a spot on it, right over the stoma.... didn't see to smell much, and I didn't know what it was. Grabbed my bag and went to the upstairs bathroom, thinking I was going to have to do a pouch change .... but I found that the EZ vent had opened and I had poop on the pouch and my shirt ...
It wasn't tons, but not trivial either. The pouch was fine -- no leakage from the wafer. So I stood there for a few minutes deciding what to do (after I cleaned up the easiest to get stuff w/kleenex). I had a lot of supplies w/me, including a scissors, so I cut off about half the pouch cover on the front. Washed the bottom of my t shirt in the sink w/soap and water. I thought about asking the host for a clean shirt (I carry pants w/me, but not a shirt), but decided to just tie my sweatshirt around my waist in a way that concealed the wet spot.
Amazing thing for me was that I stayed calm throughout, went back to the party, and continued to have a good time. I even talked about what had just happened w/one person I know well.
So, I'm thinking I'm not going to use EZ vents anymore.... don't have that much gas, and this is about the third time one has opened on me (the other two I caught earlier and didn't cause leaks). I think my stoma is just too low, so that in order to have the vent above my stoma, it's just in a place where it's easy to brush against.... can't think of what else could be going wrong. I am very, very careful to make sure it's tight when I'm done with it and it doesn't seem defective at all.
But it feels kind of cool to have something like that be not a very big deal.... was a bad ten minutes as part of a very nice 3 hours.... really significant thing for me is that I was at a gathering in the middle of the week..... have not had the energy for that sort of thing in years....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery