Rosemary, I am at my wits end! I am getting tired of feeling sick and nauseous all the time. As you have read in my earlier posts, I have been through a lot the past month. Well, this past week I have been trying to keep track of my progress, and I keep on getting sick most nights. It is like the more food I put in me as the day goes by, I get to feeling sicker and sicker. Either one I get sick and nauseous; gas does not move downwards; instead, it comes upwards. I get excessive burping and almost feel like I am going to puke. It is like I am going to, but I don't. I am glad I don't! Also, I get heartburn. I start to feel a little bit better after I hit some kind of rough spot in my bowels, and finally I start letting out gas. It is like 50/50. But also at the same time, I can't poop either. I get urges here and there, but it is either hard to do or seldom. Like today, I got an urge this morning, got a little out. Then, later, around lunchtime, it was like a bird dropping. I just sucked it up and did an enema. However, here I am again tonight, excessive burping, nauseous, bloated, and feel like I am going to puke until I get over this rough spot, so things can hopefully start moving downwards again. It is like things just always want to stay bottled up inside me. I can't take this anymore!!!!!! I just really thought my symptoms I had before with CI would improve after my surgery, but I just keep on getting sick and sick! I called the doctor's office again today, and got my appt. bumped up to Wed.; instead of Thurs., but I am just starting to think that I want things done pronto. It is just sooo frustrating! On my 3rd hospital stay, like I mentioned, they did not do that much; just an enema and mag citrate bottom; KUB, which the doctor said looked fine. In the meantime, the nurse told me I need to a suppistory every morning to retrain my bowels, but this nauseous and excessive burping is what gets me, too. I feel like something is stuck in there for awhile before things move downwards.
I did have a defecogram before original surgery on June 2nd, which was fine, so that is why the doctor doesn't get all my symptoms. However, before my 2nd hospital stay, my rectum did narrow and they ended up dilating it, and as you know, I thought I was going to end up with an ileo because they thought I had a leakage anastomsis due to all the blood, but I didn't, just some blood vessel bursted! So, they just dilated my rectum, thinking I would be fine due to fine defecogram. Still haven't had the anal manometry, which isn't until July 18th, but I just can't take this nauseous and constipation anymore. I really have no life!!! I feel like a couple my friends I just let down because I can't do anything b/c I just feel sick about every night. I feel like I can't go out to eat (I feel like when I am nauseous,too that can't even take big sips of water), hang out with my friends, just getting weaker and weaker. Do you think they need to another scope on me? Gastrograffin? CT with contrast like they did on my second hospital stay? (which was torture to get all the liquid down with as much nauseous as I already had at the time) I just don't get all my symptoms. I just feel like crying all the time; I am depressed, and I just want to be better. In my mind, I just feel like I wish they did the ileo on me in the second surgery, so I would heal a little more, and get stronger. However, right now I am not sure I want to go through another surgery! I am not sure what I want! To be better! I have put up with too much for too long! What should I tell my doctor when I see him? Demand what? Any advice is appreciated!!!!!! I need help!!!