Kirsten -- great to hear that he's doing so well! Glad you'll be going home soon.
It'd be good if you could watch in on the pouch change, if he's OK with that, maybe take notes.... it's a lot to remember and he's drugged and recovering from major surgery. It took me a while to get all the details down (of course, you or he can always ask questions here).
I had some trouble figuring out when to talk to my gi doc and when my surgeon afterwards. I had a problem w/the pain killers, and my gi docs office was going to give me some anti nausea medication but then my surgeon said absolutely no, because she didn't want that to mask any symptoms that she needed to know about
.... have hardly been in touch w/my gi doc since the surgery..... but I do hope his stops by.
Great that he's doing so well!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
Post Edited (blueglass) : 7/4/2011 9:33:31 AM (GMT-6)