Husband is one day post-colectomy!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

PairODachs
Regular Member


Date Joined Jul 2011
Total Posts : 35
   Posted 7/2/2011 8:15 AM (GMT -6)   
Hello everyone!

My husband, Matthew, had his total abdominal colectomy and semi-permanent ileostomy yesterday (July 1, 2011).

He is doing really well today. He is sitting up in a chair, drinking water and is in good spirits. He still has his epidural for pain and is not experiencing any discomfort.

The ostomy nurse and his assistant are in here this morning explaining everything to us about his bag etc. This nurse is AWESOME- he has taken his time, patiently answered all of our questions, been extremely encouraging and helpful! He is the perfect example of the kind of nurse someone should meet after surgery. He said Matthew's stoma looks "perfect" and that the surgeon did an excellent job.

All in all, we are all doing well. His mother, brother and sister have been at the hospital with us, which has been a great encouragement.

- Kirsten
Husband was diagnosed with UC/Crohn's Colitis in 2000 at 14 years old. Met him in 2002, married since 2007. Proud owners of two miniature dachshunds.

Meds tried: The list includes but is not limited to Methotrexate, 6MP, Humira, Tacrolimus, Remicade, and large doses of Prednisone. No periods of remission since 2008.

Total abdominal colectomy with semi-permanent ileostomy on July 1, 2011

Daffodil
Regular Member


Date Joined Nov 2010
Total Posts : 90
   Posted 7/2/2011 8:37 AM (GMT -6)   
Good morning Kirsten and Matthew!

So glad all is going well. I had my life changing surgery on March 25th, so while still being somewhat of a "newbie" I can tell you it is the BEST thing I have ever done, and wish it had been done years ago!

It is tough the first couple of months, just getting used to an ileosotomy, leaks, finding the right type bag for me, etc., BUT even at my worst moments, I wouldn't have traded back for my colon AT ALL! I now have a wonderful life...just enjoying going and doing everything I haven't done in years!

This is the best forum and everyone is so wonderful to answer your questions. Never hesitate to ask, and know you are amongst good people!

Happy Fourth of July!

Mollie

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 7/2/2011 9:01 AM (GMT -6)   
That is so awesome!! What is even better is how you being so supportive and caring enough about this situation that you sought out information online and found this forum that could help you both! You being there every step of the way is going to make a huge difference in strides for him! All will be good for the both of you!!! Keep posting and updating and asking questions, this place has been so awesome for me I found it months before my surgery that made a huge difference for me as knowing what was coming but nothing compares to the support you get from everyone on here it has been a Blessing!!!!!

Take care
Dee
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/2/2011 5:55 PM (GMT -6)   
In the beginning when it is a little overwhelming we tend to make it a bit more complicated than it needs to be when changing but the best thing is to keep a sense of humor. There are gonna be some blips and the fact of being a bit nervous makes it a bit of a challenge sometimes.

In my husband's case we find the day of changing we do it early in the morning when it seems to be less active.

Your support and his family makes this a much easier situation for him to cope with too.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

PairODachs
Regular Member


Date Joined Jul 2011
Total Posts : 35
   Posted 7/2/2011 6:03 PM (GMT -6)   
Matthew did well today. He didn't get to walking, but it did sit in a chair for a while before getting back into bed.

He had "lunch" today- broth, jello, juice. He's been drinking his water and had a few popsicles. There has been output and plenty of noises from his bag, too.

However, around 4pm today, there was some drainage from the surgical site, which he thought was a leak in the ostomy bag at first (thank goodness it wasn't that). The nurse assured him that it was from the healing process. They cleaned him up but 10 minutes later, it had leaked a lot again. His mother and I had to leave around 4:30pm to make the hour drive back to my house, but apparently, after we left, they checked his temperature and it was 102.7. Now, Matthew is prone to fevers, he got them frequently pre-surgery and got a fever every time he had a blood transfusion, so hopefully this is no big deal. Prayers and advice are certainly welcome, though! :)
Husband was dx with UC/Crohn's Colitis in 2000 at 14 years old. We met in 2002, married since 2007. Proud owners of 2 miniature dachshunds.

Meds tried: Methotrexate, 6MP, Humira, Tacrolimus, Remicade, Imuran, Cyclosporin, Flagyl, Asacol, Sulfasalazine, Pentasa, Rawasa, Pravastatin trial and Prednisone. No remission since 2008.

Total abdominal colectomy with semi-permanent ileostomy on 7/1/2011

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/2/2011 6:25 PM (GMT -6)   
He is where he needs to be in the hospital to be tended to. Hopefully it is something that will taken care of easily. They can't keep you longer than necessary but make sure he is ok to be released too.

The hospital was thinking of releasing my husband on Wed and he knew it was way too soon due to his pain level and he spoke with the Dr's and insisted he could not be released in my care at that time...once they got the pain managed with oral meds he was released 2 days later thankfully which was one week after his surgery. He was walking with the walker and eating and appeared to be ready for discharge but the pain aspect had to be monitored properly before they could release him.

So whatever is going on with the incision make sure it is ok before being released. My guess is there will be a home nurse assigned for some short term care to make sure the wound is progressing properly too.

There will be lots of noise for a week or so as I recall. Plus the odor will be strong initially when emptying the pouch after the surgery.

From time to time when my husband empties the pouch there may be a stronger smell but that tends to be when he eats fish but for the most part it isn't bad at all...nothing like the first few weeks. Or at least for him that's how it seems to be now. My husband is a plainer eater so no doubt that helps in that regard too.

Get a good night's sleep tonight!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/3/2011 7:26 AM (GMT -6)   
So glad to hear that things went well! I hope the fever is just a blip, and as UC wife said, he is where he needs to be for now.

If it's possible for the nurse to put some tegaderm over the gauze from the incision, then that will keep the drainage from getting all over everything (not sure that will work in his case). My surgery was laproscopic, but when they took the jp pouch out, I kept soaking my johnny. Finally a nurse put the tegaderm on, and I was much more comfortable. It slowed down enough in a day so I didn't need it anymore.

Hope all is well today
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2011 12:04 AM (GMT -6)   
How is your husband doing? I am in the hospital and have been following ya'lls story. Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

PairODachs
Regular Member


Date Joined Jul 2011
Total Posts : 35
   Posted 7/4/2011 5:14 AM (GMT -6)   
Good morning!

Yesterday (7/3), they actually gave him "regular" food- he had a biscuit for breakfast and some chicken and rice for lunch. They unhooked his fluids in the morning and he began hydrating himself by drinking lots of water. They disconnected the epidural but left it in his back in case they needed to reattach it. His fever was totally gone, no more profuse discharge from the incision site.

As the day progressed, he started feeling some muscle soreness at the incision site. Not pain/stabbing etc, it was like he had been punched extremely hard in the gut or done 1000 sit ups. They gave him percocet but it didn't really make a difference, so around 3pm he got some Oxycodone which made him drowsy but took the edge off the pain. He did get up walking last night since he wasn't making output from his stoma.

Today, he said he's produced a lot of gas, which means he does not have a blockage, but hasn't produced much substantial output still. He's not in pain and they are going to be completely removing the epidural this morning, then the catheter so he will have to use the restroom himself.

The doctors and nurses have said he's "way ahead of the curve" and will probably be going home tomorrow, if all goes well. He won't need a home health nurse for anything and will be responsible for bag changes himself, so the ostomy nurse has encouraged Matthew to do it himself today. Hopefully, today, his actual GI doctor stops by- he hasn't seen him since his pre-op meeting in the beginning of June.

-Kirsten
Husband was dx with UC/Crohn's Colitis in 2000 at 14 years old. We met in 2002, married since 2007. Proud owners of 2 miniature dachshunds.

Meds tried: Methotrexate, 6MP, Humira, Tacrolimus, Remicade, Imuran, Cyclosporin, Flagyl, Asacol, Sulfasalazine, Pentasa, Rawasa, Pravastatin trial and Prednisone. No remission since 2008.

Total abdominal colectomy with semi-permanent ileostomy on 7/1/2011

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2011 6:49 AM (GMT -6)   
Kirsten, that is amazing news. I had a total colectomy, tummy tuck, hernia repair, and end ileostomy on June 20 and I am still in the hospital. Your husband must be a young dude. I am 41, so I think a little old as far as recovering from surgery, etc.

Congratulations to you and your husband. Please post with any questions that you may have once you get home. This forum is wonderful and you can usually get a fast answer.

Good luck, Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia.
June 20, 2011-I will have a total colectomy, hernia repair, tummy tuck, and end ileostomy. I will keep my rectum since it is healthy.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/4/2011 9:02 AM (GMT -6)   
Kirsten -- great to hear that he's doing so well! Glad you'll be going home soon.

It'd be good if you could watch in on the pouch change, if he's OK with that, maybe take notes.... it's a lot to remember and he's drugged and recovering from major surgery. It took me a while to get all the details down (of course, you or he can always ask questions here).

I had some trouble figuring out when to talk to my gi doc and when my surgeon afterwards. I had a problem w/the pain killers, and my gi docs office was going to give me some anti nausea medication but then my surgeon said absolutely no, because she didn't want that to mask any symptoms that she needed to know about.... have hardly been in touch w/my gi doc since the surgery..... but I do hope his stops by.

Great that he's doing so well!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Post Edited (blueglass) : 7/4/2011 9:33:31 AM (GMT-6)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/4/2011 9:18 AM (GMT -6)   
Great news...I just hope he isn't being discharged too soon. I definitely observed and took notes to assist with the changing. However we found having a home health nurse coming in to assist was very helpful in our case. Maybe we were just too nervous even though I think we were well prepared. It helped us reinforce what to do and most importantly the wound checking was reassuring too.

As stated - any questions - most can be answered right here if you have any.

Not knowing how long a drive it is from the hospital to your home...have a few pillows to help get him comfortable, cushion the seatbelt etc. A blow up waffle cushion (see if the hospital has one they can give you and charge to your hospital bill) and not a donut type will help his tush while healing.

Protein, vitamin C really helps speed up the healing. Of course water which you already know about and walk walk walk as well as chew chew chew.

In the beginning first few months hubby went slow with experimenting with different foods and played it safe for the most part.

Each day he will notice the incisional type pain and areas the drains were in getting better and better every day. Other than that he and you are going to be so happy to see him out of the pain and discomfort he had prior to the surgery.

Time to start living your lives again and enjoying life with family and friends is right around the corner. YAY!!!!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 2:17 PM (GMT -6)
There are a total of 2,974,186 posts in 326,158 threads.
View Active Threads


Who's Online
This forum has 161234 registered members. Please welcome our newest member, hennaheather.
423 Guest(s), 17 Registered Member(s) are currently online.  Details
super20dan, hennaheather, mattamx, Katerina-b, LucyDog, opugirl, Gismo94, The Dude Abides, ntzguy, Pratoman, UC_from_39, Pauly198, mtm1704, danikacs, U.C.Me?, elvin, iPoop