Post-ostomy reversal sex

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New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/2/2011 3:18 PM (GMT -6)   
So I'm having a weird problem that my doctors think is just an anomaly, and I wanted to see if anyone else has had it--
I had a total colectomy about a year ago, had my ileostomy reveresed about 2 months after that. My healing was very difficult, since I have severe endometriosis and lots of scar tissue that gave me a blockage etc. I'm all better now, except for one weird thing : my vagina has gotten uncomfortably tight and I seem to have a much harder time getting physically aroused. Has anyone else experienced this? My surgeon removed some of my endometriosis adhesions during my surgery for convenience (it was hard to see my organs because it it--he accidentally cut one of my uterers because of it)...could that be the cause? It feels like a tight ring of scar tissue or something--insertion is very painful, but after that it's fine. Anybody? Thanks for considering my super TMI question

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 7/2/2011 11:37 PM (GMT -6)   
Could be scarring in the levator ani muscle which encircles the openings to the rectum, vagina, and urethra. Scar tissue is hard to stretch or may not be able to be. I would go easy. A pelvic floor Physical Therapist should be able to make a diagnosis for you or your GYN. Good luck. Rosemary

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 7/3/2011 7:32 AM (GMT -6)   
Did you have any nerve damage?
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/3/2011 9:13 AM (GMT -6)   
No nerve damage that I'm aware of. But good suggestion with the gyno. Did this happen to any of you? My other docs seem to never have heard of it, but they don't usually see paitents of succesful surgeries much afterward.

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 7/4/2011 7:57 AM (GMT -6)   
I have pretty much the same thing and I believe mine is from scar tissue from my three surgeries. KY Jelly seems to help a bit. I had a Mirena inserted in between surgery #2 and #3 and it was a lot more painful than it was when I had one put in about four years ago, before my surgeries. My OB/GYN thought there was some scar tissue in there as well. Thought about going back to my GYN to talk about it and see what can be done. Let me know if you find out anything.

Regular Member

Date Joined Oct 2010
Total Posts : 286
   Posted 7/4/2011 8:17 AM (GMT -6)   
I also have endometriosis and have a similar feeling, you could talk to your doctor or gynecologist and see if they could recommend a pelvic floor therapist. If it tightened up in there as a result of healing after surgery, they can give you a set of dilators to gradually and gently help stretch everything back out to make it more comfortable.
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