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Shanbee
New Member


Date Joined Dec 2010
Total Posts : 17
   Posted 7/3/2011 12:04 PM (GMT -6)   
I just had my final surgery the take down. After my surgery I was only in the hospital for 2 days which I was very suprised. The first time i pooped there was blood which is normal but after that i did not see it anymore. The inscision where the stoma was is not painful, it a pain score of a 2 at the most. Now if they mention there is a drain that they have to take out dont be alarmed. I worried myself that it was painful but i did not even feel them take it out and it small.
 
For the first two weeks my doctor wants to keep the stool liquid just so my intestines can heal before make try to make the stool form. You may feel crampy and have to go often at first but there is not urgency or pain which i am so grateful for that. I just so excited to be pooping again!
 
Right now i where a pad just when i have minor drainage if doesnt go to my clothes. Also just where it is diarhhea and it bothers my skin, i just put desitine on it. And as far as pain medicine i am not really using it and i do tend to feel for my bag and then i realize i no longer have it!! :) Best choice i have ever made and it is totally worth the surgeries. Good luck to all that are about to experience this surgery, you will do great!! :) <3
Female who battled UC for 5 years
2006- diagnosed with crohns/2008- diagnosed with UC/2010- servere flare-up no medication helped.

Dec 14, 2010- ileostomy (removal of entire colon, age 20)
May 12, 2011- j-pouch formed (age 21)
June 29, 2011- planning the take down (age 21)

momof14ever
New Member


Date Joined May 2011
Total Posts : 18
   Posted 7/3/2011 12:09 PM (GMT -6)   
yay for you!! i am 3 weeks post-op the first j-pouch surgery!! i am counting down to #2.... glad to hear all is well!!

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 7/3/2011 1:35 PM (GMT -6)   
I am 3.5 weeks out from #1 of 3 hehe. love good news! best of luck to you
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 7/3/2011 2:09 PM (GMT -6)   
Shanbee
Glad to hear you are doing good. My daughter who just turned 16 is 3 months ourt from her take down surgery.
She is doing good. Just a couple little mishaps on the way. Doctor says it is normal. It will only get better from here. Good luck to you.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/3/2011 3:53 PM (GMT -6)   
Great to hear that you're doing so well!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/3/2011 4:38 PM (GMT -6)   
YAY...congrats!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 7/4/2011 10:01 AM (GMT -6)   
Congrats!! I'm so glad to hear you are doing well :)
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11
-Takedown 6/13/11

Lu2011
Regular Member


Date Joined Apr 2011
Total Posts : 291
   Posted 7/5/2011 5:55 AM (GMT -6)   
Congrats.  It's a nice change from the bag.  How is the adjustment going?  I am many years with a jpouch and am doing well.  Although I use the washroom more often than others, it's nice going regularly.  Only issue I have is pouchitis, but that's only once every few years and is cured with antibiotics.  Personally I prefer the pouch to the bag.  Hope all is well.
Ulcerative Colitis 1988, had colon removed and now jpouch
Now sufer from sacroiliitis and inflammation of piriformis muscle causing sciatica like pain during flare ups. Joints very bad...take celebrex when needed.

Shanbee
New Member


Date Joined Dec 2010
Total Posts : 17
   Posted 7/6/2011 5:45 PM (GMT -6)   
Thanks Lu2011, it is different but a good different. I catch myself feeling for the bag. I am going often but there is no pain and no urgencies, i feel so blessed to get it all behind me. My doctor has told me about pouchitis but glad it is cured by antibiotics. Glad all good :)
Female who battled UC for 5 years
2006- diagnosed with crohns/2008- diagnosed with UC/2010- servere flare-up no medication helped.

Dec 14, 2010- ileostomy (removal of entire colon, age 20)
May 12, 2011- j-pouch formed (age 21)
June 29, 2011- planning the take down (age 21)

Lu2011
Regular Member


Date Joined Apr 2011
Total Posts : 291
   Posted 7/6/2011 6:09 PM (GMT -6)   
Shanbee,
Am glad to hear the adjustement is going well.  The bag is a blessing compared with living with colitis, but personally I think it's wonderful getting rid of the bag.  Yes, pouchitis can occur, but I think I've had it about 4 or 5 times total in the 23 years I've had the jpouch so not bad relatively(hope I didn't just jinx myself for another time).  I'd say the worst part is the extra bathroom runs and having to go after eating (esp if at someone else's house), but still, would pick it over worrying about having to empty the bag. 
Good luck...keep us posted on how you're doing.
Ulcerative Colitis 1988, had colon removed and now jpouch
Now sufer from sacroiliitis and inflammation of piriformis muscle causing sciatica like pain during flare ups. Joints very bad...take celebrex when needed.

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4544
   Posted 7/6/2011 7:03 PM (GMT -6)   
Congrats! I'm 9 months post takedown and doing really well. Enjoy life UC free...it's great!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!
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