Thank you for your replies esor and 2b colonfree. Can you explain why my surgeon would say that he will not operate on me because my IBS - if thats what it is - might affect my small bowel after removing my large and I would be left with the same problem? When I asked him why he wouldnt test the motility of my small bowel he said he didnt do that procedure and to ask my gastro, he even inferred this test would not be conclusive. Why also was he willing to operate on me 3 years ago before the psychiatrist evaluated me - was it because I mentioned drink? Why also did my gastro say that in his opinion I would do better without my colon and didnt raise concerns about constipation affecting my small bowel? Things just dont add up, I am definately been fobbed off and I seriously need help. My surgeon even suggested I go talk to his coleague when I refused to go back to a surgeon I saw once 3 years ago and who referred me to this particular surgeon.
Yes, it is definately time to change doctors. My gastro, who believes I have major problems and who seems to understand that the psychiatrist is the one responsible for my current surgeons reluctance to operate. He told me to go back to him if I was again refused surgery. He works in a different hospital - although is obviously a colleague of my surgeons - and I have already met a surgeon he referred me to when my own surgeon was absent and I needed advice. She was extremely supportive and told me not to hesitate if I needed her help again.
I think you are right esor about the drink but I am not a raving alcoholic, I have just got into the habit of drinking more than the recommended amount but at times it is 'hazardous' as the psychiatrist puts it, but what does hazardous mean, I dont get drunk every night, I have just got into the habit of drinking every night as a relief, something to look forward to after being stuck in all day dealing with an hour of illness after taking 90 mils of duphalac and then enduing horrible cramps before it starts working, then there is the stress of still feeling constipated at the end of all this and then having to use a coffee enema along with water enemas and millions of glycerol suppositories, this is every day. Im lucky I havent yet gone insane. When I was working, I stopped 3years go my drinking was normal, I had a can of beer a night. It is only since I have become more and more confined that I have started drinking more and worry about it. My primary problem is my bowel, the drinking is secondary to this. I have been suffering from this for the last 23 years, as I said, I am lucky to still be sane but my 2 children keep me sane and my need to be a good mother to them, they are the only real thing that keeps me going as we lost their dad 6 years ago.
One last thing, can anybody distinguish between IBS dominated constipation and chronic constipation - cant really go without 90 mils of duphalac, but then that makes me very tired and sick and crampy, to say the least. I refuse to try anything else, I have tried them all, this is the best I can achieve. Sorry for such a long post.