ibs or chronic constipation

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stuckin
New Member


Date Joined Nov 2010
Total Posts : 12
   Posted 7/4/2011 2:29 PM (GMT -6)   
I need some advice,
My story is a long one. I have been seeing a surgeon for the last 3 years after begging to be referred to one. I was due to undergo an ileostomy 3 years ago, he was willing to do this as the first of 3 operations, the final one supposed to be ileal-anal pouch recontruction. He sent me to a psychiatrist for a routine evaluation before surgery and she raised some concerns, which are completely unfounded. I think it may have something to do with me mentioning how much I hated being so confined to the house and that I was drinking more than the normal limit. Having said that, the reason for this is that I am going mad being confined. Dont get me wrong, I not a raving alcoholic but I do use it as a crutch. He said that he would not go ahead with surgery unless the psychiatrist was happy with me, and she apparently is not.

As I said it is a long story, I will tell you another time. What I need to know is do I have IBS or simply chronic constipation. I did the sitz marker test and many of the markers were left in decending colon. I also had problems with my rectum but doing the therpy with the physio it has hugely improved, no more straining and no problem evacuating from it. The problem is I take 90 mils of duphalac in order to have bowel movements and I do have them but I am so sick after taking the duphalac and then I have to put up with a very bloated stomach until it starts to work, it is seriously hampering my life, I havent been on holiday with my kids for years. Apparently my surgeon wont operate on me because he says the people with IBS dominated constipation could have more problems after surgery because the constipation may also be in the small bowel and that I may end up having to continue to take the duphalac or end up with a stoma bag and still have constipation. I asked him why can he not do a colonoscopy, to prove that my bowel has become lazy, redundent and large or why he cannot do a small bowel transit test. He refused to do either, there is definately something amiss. As I said, I think he is of the opinion that I have psychiatric problems or perhaps because I said I drink in a daily basis he just doesnt want to go near me.

My gastroenteroligist thinks that I would do better without my colon. What I dont understand is why he doesnt seem concerned about me getting surgery when the surgeon seems to completely against it. I argued the point that I didnt think I had IBS, just a very lazy and problematic bowel. He maintains that it is IBS but I am not sure. Can anyone help me in distinguishing between IBS and constipation.

If it is IBS would a total colectomy help or make it worse.

concertina

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/4/2011 2:49 PM (GMT -6)   
Google the article Physiological Testing of the COlon, Rectum, and Anus by Bruce Orkin MD at George Washington Univ. Medical center for a complete set of tests that need to be done to determine medical/surgical strategy. You are drinking to mask the physical issues you have thus making things worse for yourself as the minute docs get one little thing against you they run with it. SO get to AA NOW, stop drinking, and put your energy into real science and getting the right help. It sounds like you are now locked in an inhouse addiction center. CHeck out now and follow my advice. Easier said than done, but do this. Rosemary

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/4/2011 3:32 PM (GMT -6)   
hi concertina, i think it's time to look for a new dr and surgeon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

stuckin
New Member


Date Joined Nov 2010
Total Posts : 12
   Posted 7/5/2011 2:03 PM (GMT -6)   
Thank you for your replies esor and 2b colonfree. Can you explain why my surgeon would say that he will not operate on me because my IBS - if thats what it is - might affect my small bowel after removing my large and I would be left with the same problem? When I asked him why he wouldnt test the motility of my small bowel he said he didnt do that procedure and to ask my gastro, he even inferred this test would not be conclusive. Why also was he willing to operate on me 3 years ago before the psychiatrist evaluated me - was it because I mentioned drink? Why also did my gastro say that in his opinion I would do better without my colon and didnt raise concerns about constipation affecting my small bowel? Things just dont add up, I am definately been fobbed off and I seriously need help. My surgeon even suggested I go talk to his coleague when I refused to go back to a surgeon I saw once 3 years ago and who referred me to this particular surgeon.
Yes, it is definately time to change doctors. My gastro, who believes I have major problems and who seems to understand that the psychiatrist is the one responsible for my current surgeons reluctance to operate. He told me to go back to him if I was again refused surgery. He works in a different hospital - although is obviously a colleague of my surgeons - and I have already met a surgeon he referred me to when my own surgeon was absent and I needed advice. She was extremely supportive and told me not to hesitate if I needed her help again.
I think you are right esor about the drink but I am not a raving alcoholic, I have just got into the habit of drinking more than the recommended amount but at times it is 'hazardous' as the psychiatrist puts it, but what does hazardous mean, I dont get drunk every night, I have just got into the habit of drinking every night as a relief, something to look forward to after being stuck in all day dealing with an hour of illness after taking 90 mils of duphalac and then enduing horrible cramps before it starts working, then there is the stress of still feeling constipated at the end of all this and then having to use a coffee enema along with water enemas and millions of glycerol suppositories, this is every day. Im lucky I havent yet gone insane. When I was working, I stopped 3years go my drinking was normal, I had a can of beer a night. It is only since I have become more and more confined that I have started drinking more and worry about it. My primary problem is my bowel, the drinking is secondary to this. I have been suffering from this for the last 23 years, as I said, I am lucky to still be sane but my 2 children keep me sane and my need to be a good mother to them, they are the only real thing that keeps me going as we lost their dad 6 years ago.
One last thing, can anybody distinguish between IBS dominated constipation and chronic constipation - cant really go without 90 mils of duphalac, but then that makes me very tired and sick and crampy, to say the least. I refuse to try anything else, I have tried them all, this is the best I can achieve. Sorry for such a long post.
Stuckin

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/5/2011 4:11 PM (GMT -6)   
please do go back to your gastro, he sounds supportive and go see that woman surgeon who was supportive as well. sounds like you have nothing to talk about with that surgeon you're with right now, he's not cooporating at all and doesn't listen to you. i hope that other surgeon can help you.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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