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tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 7/5/2011 5:04 AM (GMT -6)   
I just ditched about 18 bottles of pills.  It felt soooo goooood!  Just wanted to share my joy of getting rid of all my UC and pain meds. 
So far, I'm loving what surgery has done!  I even kinda like my stoma... guess it's because it's a sign of better health for me.
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/5/2011 6:03 AM (GMT -6)   
We share that same feeling. When hubby lines up his pills for 2 weeks now he is done in a couple of minutes..lol.

Eliminating 16 pills each day for the UC and 7 pain pills plus the patch was a great feeling and a cost savings too since our insurance covers the ostomy supplies. Plus he only needs to remember to take pills when he gets up and before bed instead of 4 times a day.

The meds he does take absorb just fine. No problems with the faster transit with his meds.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Mum to Five
New Member


Date Joined Jul 2011
Total Posts : 19
   Posted 7/5/2011 6:39 AM (GMT -6)   
That's great!   I should clean out my medicine cabinet!   There is so much junk in there that I don't need anymore, and won't need again.   Pain pills, colitis meds, anti-nausea meds from chemo, lomotil, the list goes on!   Boy, I'd have a lot more room if I ditched it all.   tongue

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 7/5/2011 10:22 AM (GMT -6)   
Yay!!! To feeling good!!! ;-)
Dee stay at home mom of my 2 beautiful children
dx with uc July '10
June 02 '11 the creation of Stella the stoma LOL! ;-)

Prov3:5,6

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/5/2011 2:27 PM (GMT -6)   
Congrats! I am looking forward to the day when vitamins are the only pills I take.... almost there!

I like my stoma too, same reason..... was a surprise....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/5/2011 2:53 PM (GMT -6)   
YAY! that's such great news :) so glad to hear this! i feel the same way, the minute i realized how great i feel, i simply fell in love with my stoma :):)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/5/2011 8:19 PM (GMT -6)   
woo hoo!!! you will be amazed that you will find some kind of small something to be happy about everyday, 4 years later i still think at least once a day, i'm so glad i had surgery. sometimes its because im at the beach, sometimes its because i can mow the yard without running to the bathroom.
I hope you have a lifetime of small joys!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 7/5/2011 8:27 PM (GMT -6)   
I wish that for all of us summerstorm! Thanks all!
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 7/5/2011 8:27 PM (GMT -6)   
So happy for you! I remember when I ditched my leftover Asocol pills and Rowasa enemas. It felt so good! Summerstorm is exactly right about finding some small joy everyday due to surgery. Yesterday I was cutting up some strawberries and realized how joyful I was to be able to eat them again. I seriously thank my surgeon in my head numerous times a day. I am very fond of my stoma as well:)
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 7/6/2011 12:46 AM (GMT -6)   
What a great post! I'm looking forward to my last dose of prucalorpride on Sunday.. then can throw them along with the picolax away forever. Blueheron - STRAWBERRIES!! oh there is a lovely thought..
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/6/2011 7:14 AM (GMT -6)   
Initially after his surgery, I bought the largest strawberries I could find and took off the seeds and sliced them and made strawberry shortcake for him. Soooooooooo good. He eats them now in moderation with no problem.

2 weeks ago and last night....fresh corn....2 ears...small kernels that popped right off the cob...he enjoyed that so much and ate slowly and chewed thoroughly. Because it wasn't "mealy" and chewy no problem.

Aside from the obvious to avoid - celery, coconut etc. he is eating and trying a lot of different things but always chewing thoroughly and lots of water. How wonderful being able to do so and not suffering on the toilet afterwards.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 7/6/2011 6:34 PM (GMT -6)   
I threw away all of my UC meds and soon replaced them with Parkinsons meds.

BUT I CAN STILL PASS THE REST STOPS ON THE FREEWAY ALL THE WAY FROM MICHIGAN TO FLORIDA AND BACK!

Dan

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 7/6/2011 8:38 PM (GMT -6)   
sorry Dan... but yay to no rest stops!
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!
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