Horrible Pain after Colectomy

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TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/5/2011 5:52 PM (GMT -6)   
I had my Colectomy 6 days ago. I have had bad gas pains but have dealt. I do not take pain pills except before bed. Earlier I got up to walk and it felt like a knot of pain above belly button and radiated to my back. Worst pain of my life! I was ok sitting and bending over but when I laid down or stand up I couldn't take it,I was in tears. I took pain medicine and 45 minutes later starting to feel better, not a 10 anymore more like a 7 if I don't move. Oncall doctor said to wait it out or go to ER really trying to not go back to the hospital. Why is the pain in my middle back mostly? No nausea or fever. Just tingling hands. Anyone experience this,what could it be if pain meds take it away?This is not normal pain!
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/5/2011 5:57 PM (GMT -6)   
Still have tingling in my legs and lower stomach too.
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/5/2011 6:10 PM (GMT -6)   
Fever is low grade now at 100 was at 97.9
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/5/2011 6:25 PM (GMT -6)   
Sorry I have no advice for you...so sorry you are in this kind of pain and discomfort -- I hope it passes quickly...you may need to go to the hospital...could it be a blockage of some kind?
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/5/2011 6:28 PM (GMT -6)   
Thanks, I don't think so no nausea or vomiting.
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/5/2011 7:52 PM (GMT -6)   
Did the on call dr say what it might be? Sounds scary, hope you don't need to go to the hospital, but really, don't hesitate to do so. Hope it's better soon. So sorry.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/5/2011 8:26 PM (GMT -6)   
I would get to the hospital and get it checked. Good Luck. Rosemary

TickledPinkTwice
Regular Member


Date Joined Mar 2011
Total Posts : 242
   Posted 7/6/2011 9:44 AM (GMT -6)   
Thanks guys. I waited it out and after about 4 hours it went away. My fever went down. I was nauseous but that is all gone now and I finally was able have a bowel movement it had been 2 days since I had gone much.
Mary 26,Chronic Constipation
Colonoscopy: Polyps,Melanosis and long redundant colon, Sitz Marker: Colonic Inertia. Defecography:Rectocele and Enterocele, Anorectal Manometry:Normal, Pudendal Nerve Study:Normal, Gastric Emptying-20% at 4 hours, Small Bowel Followthrough:Reached the Cecum at 30 MINUTES!!
COLECTOMY 6/29 AT 1P.M.-Removing all of the Colon except rectum and 1 inch of Sigmoid Colon.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/6/2011 3:08 PM (GMT -6)   
WOW glad for you Mary. Rosemary

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/6/2011 3:23 PM (GMT -6)   
Glad you're doing better. A relief...
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 7/6/2011 5:37 PM (GMT -6)   
glad you're alright.. dont' back off those pain meds too soon though. Keep on top of the pain with regular meds rather than letting it build up too much and then getting desperate. Keep a close eye on things and if unsure get yourself to the hospital though. You've been through major surgery only a few days ago, so dont' underestimate the strange things it does to your body and in places you don't expect. Go easy, rest up and don't rush. Take care and good luck Sarah
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 7/8/2011 1:09 PM (GMT -6)   
Hey Mary.. just been wondering how you are getting on? hope the pain has subsided. Sarah x
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 7/9/2011 12:49 AM (GMT -6)   
That sounds like it was a partial blockage. I'm assuming you have an ileostomy (I know you told us what you getting, my memory is terrible) as such, if you don't pass stool within 4 hours always go to the ER. that was my surgeons general rule of thumb for ileostomies. They should be constantly active and if they aren't or are barely producing anything for extended periods of time, it's ER time baby. the other things that makes me think it was a blockage was the low grade fever and the pain radiating in your back. All are signs of a blockage. surgeon also said if temp gets to 100, go to the ER because that's never normal, especially after surgery. (sometimes low grade fevers can also be a sign of infection)

and 6 days out, don't be afraid to take your pain meds. Its perfectly alright. I took mine for 4 weeks after my first surgery and 3 for the second and 2 for the last one. I used my pain pumps up until they let me out too. I'm glad it passed though and you (hopefully) are doing better. take it easy and hopefully the next time we hear from you it will be "I'm doing awesome!" :)
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11
-Takedown 6/13/11
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