Need input from those who still have their colon in them but have an ileostomy (long term or permanent.)
Due to irreparable rectal and colon injury in 2006, I had to have a permanent ileostomy in 2007. So far I had been fine with the periodic fleet-sized warm water enemas (no salt as that is irritating) to get out mucous from my rectum/colon. But when I did this the other day, (need to do this about once a month or once every 2 months) some sort of major irritation has started. I got the mucous out, but then had horrid cramps last night and today, tons of blood tinged mucous came out. When I have to have this suctioned out, sometimes my colon lining looks almost normal but other times it looks friable as in disuse colitis. I never had an issue with cramps before passing the mucous. Have had major issues now for 24 hours. I let the doc's office know and they said if it doesn't stop they would get me in.
I did some research and I did find an article that says cramping is possible with this benign common condition. It occurs due to lack of short chain fatty acids that usually nourish the inner lining of the colon. The remedy according to one article is short chain fatty acid enema's only 60 cc twice daily. Has anyone had experience with this?
So far so good with the ileostomy stoma itself and given the history of my original gut injury I'm lucky to still be here. BUT, I do need to address this. If anyone posts back, let me know if you had the cramping just before the expelling of bloody mucous or did your mucous come out without cramping? I'm the most concerned about that. I've always been a bit prone to slight bloaty feeling from some foods (yet don't actually look bloated), but I've never been prone to digestive cramps. (My concern is that before my ileo and lysis of adhesion surgery, I had multiple small bowel obstructions from adhesions, but these cramps aren't the same kind and so far ileostomy is working just fine and I feel fine otherwise.)