post ileo surgery diet...

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Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 7/6/2011 7:08 AM (GMT -6)   
Am having perm ileo surgery on Monday. What should I aim to eat after surgery and how do I progress to 'normal' foods? Be grateful for advice and suggestions. Many thanks
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 7/6/2011 7:40 AM (GMT -6)   
Well at the beginning, you won't eat anything solid at all. But then you can move on to low residue food -- no fiber, seeds, raw fruit/veggie (except bananas), skins.... things like bread, white pasta, fish, chicken, yogurt, potatoes w/out skins.

You'll want to eat lots and lots of protein -- that helps with wound healing. You might want to get some kind of protein shakes to supplement, as it's hard to get enough. My surgeon said that at the beginning, 2/3 of my calories were going toward wound healing.

From reading the list, people seem to be very different in terms of appetite -- I was hungry a lot, others had trouble with having enough appetite to eat enough.

For me the progression toward normal foods has been gradual -- and now I'm not quite remembering the time frame, but after a few weeks I started eating things like cooked carrots and then moved on to other cooked veggies. Maybe two months out I tried whole grain things. I am still very careful about nuts, popcorn, and stringy veggies (celery, bamboo shoots, bean sprouts) and most raw veggies.... so I haven't tried a lot yet.

But I'm eating way more than I could when I was sick .....

I'm sure others will be along to fill in more details.

Good luck w/the surgery!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 7/6/2011 7:54 AM (GMT -6)   
Hubby's appetite was not that great so he had small meals and snacks in between.

Since protein is so important to speed up the healing process I made him one or two Slimfast protein shakes each day which has 15 grams of protein in each one. We prefer the powder that you mix in whatever type of milk you prefer. Vitamin C -- chewable orange flavored each day too.

Only because we were both so concerned about blockages he ate foods that he could chew chew chew that broke down really well. We stayed away from fresh vegs. and fruits initially. Applesauce, soups, ground beef prepared various ways, mashed potatoes and pastas. There is a balance with foods that tend to thicken output but drinking lots of water seemed to keep that in check for him and had his output more loose than thick.

Only one problem - a blowout once at home - got a chinese take out dinner of shrimp chow mein (no celery) and had them cook it softer and not crunchy stir fried. He ate that plus the rice...it was good and he ate too much of it I think. about 4-5 hrs later very thick, constant output that undermined the wafer and was oozing out. That was not a fun night and a tough change as it kept coming out. Didn't do that again!

He drinks a lot of water so it makes his output more on the looser side even though he does eat things that would make output thicker. Honestly he prefers the output to be looser and empties each time he pees as he would like to avoid that pancaking situation with that one experience with a blowout. When he puts on a new pouch he sprays Pam in it and that does help the output to slide down also.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 7/6/2011 12:25 PM (GMT -6)   
thanks all.. when I had my ileo last time the surgeon just said 'eat what you fancy' which obviously isn't very helpful. The nurses weren't much better either and didn't really help.... at the time I wasn't really clued up, so on day 2 went for white fish and broccoli (stoma went a bit wild after that!). But what I was thinking this time was maybe those protein/meal replacement shakes to start with, then a little white toast or something and go from there? sticking to low residue foods and gradually building up the fruit and veg. Is that a good plan??

After 9 months on low residue foods I'm absolutely gagging for some fruit and vegetables! but will be patient ;-) I only had my temp ileo for 3 months last time and by the end was eating everything and anything - even salad and drinking wine! am hoping it will work as well this time.

Does anyone know if there is a difference in output or dietary needs between a loop and end stoma??

Many thanks
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/6/2011 1:31 PM (GMT -6)   
the main differnce would be that with a temp one you might not make it to the stage where your body has adjusted enough to eat certain things. you should wait 6 weeks before trying anything hard to digest, fresh fruits (except bananas) and fresh vegetables. Also no stringy meats, (BBQ, roast beef etc) anything that is hard to break up.
After about six weeks start adding things slowly, like carrots one day (fairwarning they come out just like they went in, lol) see how it affects you, if it doesn't go well, then wait and try them again later. Broccoli and fish cause lots of gas and stink to high heaven! I don't usually eat either if i have to go anywhere that day, just because it smells so bad, lol.
Another thing you could do, is find what makes your ouptut go through really fast and try the veggies with that, alot of people suggest eating some bread with a veggie, to give it something to help move it through, if that makes sense.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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