I can only talk about my daughters experiance with her ACE. She had her ACE done for motility issues, she was 6 years old, when we had that done. We fought a good fight for 5 years trying to make it work...all kinds of flushes, from go-lytly,saline mixed with various things, along with her taking oral meds,and being on special diets etc...It never worked the way it was meant to. Our whole life centered around the flushes , and getting them to work !! It was a nightmare !!
So we decided to do a partial colectomy(left side) to see if that would help make the ACE better...still a nightmare. So after another year we went back in and took out the rest of her colon and rectum(which is another long nightmare...)tried to reconnect everything didn't work, after several addmissoins and being very sick Drs finally agrred to an Illeo...BEST thing that ever happend to her as far as "poop" issues...but as like many other people on this forum we are finding out that her motility issues are progressive and she now has problems with her bladder system, small intestine, and her GYN system.
She does have friends with the ACE with motility issues and it works great. They do their flush, it works and they go about their day. I know of some of them also that don,t have to do it daily either. I think its a good option for some people. Its just with motility issues they just don't know, they are learning as they go...
Hope that helped. Feel free to ask me any more questions. My daughter is 14 now.