looking for guidence... Chrons & Eilostomy at it WORST (not to be read by the faint of heart)

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New Member

Date Joined Jul 2011
Total Posts : 1
   Posted 7/7/2011 11:03 PM (GMT -6)   
Hey ya'll I have a bit of a long winded story, I will give the shortest version as possible... My mom is 64 yrs old and has Chrons & Divticoulis, and long with a few other disorders & diseases (ie: dibeates, inemic, blood clot: just for starters) She has had Chrons for all of the better half of 30 +yrs. and MANY MANY surgies. Though this story begings on April 11th 2011. She was admitted to the hospital for what was suppose to be abesce in the rectum. She was there for a wk on IV antiboics. After a wk they ran the normal blood work and tests and stated she was stable enough to go home, and continue with the pills for the at that time small infection. Less then a week later she was right back in the hospital  cry , this time the new CT scan showed two abeces... which where explian as well we think they are, we can't reach them to drain them with out surgical proccedure, and with her condition, all the above mention, they weren't wanting to go expoloring. All they could tell us at that time is that it is "two pools of fluid" deep within the rectum. So they put her on a stronger IV of antibioc & added PTN. After a month of that they seemed to have shrunk some, but she seemed to have gotten worst. So her GI tried a less abbresive colonoscopy to find that the surgical site from last yrs reconstruction was leaking  shocked   At that point it was emergcy surgry time, if not she would have gone specic & gotten peretintous skull . They were forced to do a eilostomy on her, all seemed better 1 wk post-op :-) , so they transfered her to a LTAC facility to help her with the recovery, couping, & care of her new found friend. She remain there for about a mon when she wasn't really getting any better but "due to ins" as they claim she no longer qualified for LTAC services,  but not well enough to go home either. They claimed she was stable enough for trasport to a nursing facility. I may add durn that month they never showed her how to do the bags, and care for her stoma. So they transfer her to a Nursing Facility, which upon her admittance, she had found blood in her bag  shocked   When this was told a few hrs later they finally came to change the bag and check the stoma {after a few more complains about pain and blood}. To their & my suprise upon the removing the bag there was a hole shakehead YES a hole just under her stoma {about 2in by 1/4in long}. And at this point the bag is leaking, and cause a burning feeling both at the stoma and hole  smhair   . For a week they had no Ostomy Specialist or Wound Care Specialist, and contiunally allowed the the waste to seep into her, with effectless knowlege on how to care for this. So they decided she needed to go to her doctor in his office, yes in the state that she was and have them tell them what they should do..... upon her arrive there, her doctor was so  nono   DISGUISED  nono   and alarmed  shocked that he had her admitt right back into the hospital.... to be told that she has another infection, and that she is going to have to go for yet again another surgy for this most likely 2 more surgies. They are talking about possible reversing the Eilostomy. Now here is my concern confused ... I have read posts and med-notes on this... and most say if your in GOOD health and the body has its rest the reversal usally works, but if the body hasn't had its time to heal & rest (usally 3 - 4 mons post-op and with doctors descretion) can be reversed. Here she is only 2 mons post-op, and there has been little to no healing do to the above mention complicatons. Is there anyone out there that may have any suggestions for alternate things that they can do and what are your thoughts. Thank you in advance, and agian I am sorry that it is long winded.

New Member

Date Joined Jul 2011
Total Posts : 9
   Posted 7/8/2011 12:06 AM (GMT -6)   
Dear BlueSkies,

I'm sorry your mother received such poor medical care at both the LATC and Nursing Facilities. Having a hole, under her stoma which lead directly into her abdomen, is a serious potentially fatal medical complication. I'm shocked that your mother had to wait one week before being evaluated by a doctor!

Your mom's body needs to completely heal from the surgical complications she's had and, in my opinion, be infection-free and feeling stronger for at least three-four months (probably longer, due to her serious co-existing health conditions) before one can even think about an additional surgery for your mom.

Good luck and best wishes always,


Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 7/9/2011 8:52 AM (GMT -6)   
Hi BlueSkies and welcome to the site.
I am very sorry to hear what your poor mother has been through and I am stunned at how poorly treated she has been. She sure has enough to deal with without all this happening as well, but she is lucky to have you by her side. I really don't know what to tell you as I always had the best surgeon and best care possible so no complaints here and for that I am forever grateful to my doctors. If I were you I would be asking them lots of questions and demand they do something now!! Sorry I am of no help but wanted to weclome you and hope you keep us posted on her progress. Take care and all the best to your Mum
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