I thought I'd write because you're the only other person I know or have read with UC and also that narrowing. Where I am, its called a stenosis, or stricture. It is very unusual with UC and they think it usually indicates cancer. In my case, it wasn't cancer. I had a flare-up in 2009 and then in January 2011, and the endoscope could not pass through the stricture. My GI agreed to dilate, but said very severely that it was only a temporary measure and that I should schedule the surgery in the next three weeks. He also thought my chances of getting cancer were too high, and told me I would be feeling very, very frustrated if I get cancer when I could have had the surgery earlier and not get cancer.
So here I am now, two months after surgery. I have to havethe entire j-pouch procedure over three operations, because of the amount of prednisolone in my system at the time of the first surgery. That would mean the 2nd one could be in October, but since I have to the through a six-month job probation, I will have to wait until December.
To be honest with you, I am feeling very positive about how well my stoma is working out (I am not talking about my actual feelings of having been turned insde out and having to have the bag, etc, we all know these feelings), but my stoma has been working perfectly and I've manged to keep the skin in good shape despite some leakages. I think my stoma is going to be a great jpouch. This is after feeling incredibly fatal and tragic about it all and living with terrific fear that the jpouch would make me incontinent for the rest of my life.
So Ijust want to tell you to give youself the chance to think around it with the positive thoughts, and not the fears. I also think that not having the stoma and bag anymore will help my body image so much, and I think it's these kinds of positive thoughts and feelings that make the greatest difference in how well the jpouch will work out for you and your life.
This website has helped me a lot, because a lot of people with pouches have written about very postive and successful experiences. Try reading them (I'm sure you're reaidng a lot) and get a sense of how the jpouch can really b a positive change,
All the best,