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Subzeromambo
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Date Joined Sep 2009
Total Posts : 1143
   Posted 7/10/2011 7:20 PM (GMT -6)   
I keep having pain in the lower left and right abdominal quadrants. Dr. said it is just phantom organ pain and will disappear. Has anyone else had this? Today I even had a stabbing pain in the lower right quadrant. Mystifying....
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/10/2011 7:51 PM (GMT -6)   
i never had that, i sometimes have phantom feelings like i need to go to the bathroom, but that has lessend over time.
If they have checked for infections and obstrutions then i would say its probably ok. I do remember that there were times at first that i would be sure i would get a horrible pain if i ate things that tripped off a bad UC time.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/11/2011 10:18 AM (GMT -6)   
Summerstorm,
No signs of obstruction or infection. I am wondering if it could be a reaction to stress? My husband is having an angiogram today. The two drs we consulted thinks he needs open chest surgery to clear arterial blockages. Hopefully, the angiogram will be all he needs.
Szm
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/12/2011 10:28 PM (GMT -6)   
That sounds terrible! Are you in the er due to pain? I just can't walk standing straight when the pain is there. The only relief I have are heated pillows packed around my lower back and gut and a light dose of oxycodone. My hair is also falling out in handfulls. I may just shave it off and let it re-grow from scratch.
The coclectomy may have damaged my metabolic balance. Lots of test to be done. Will keep you posted.
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 7/13/2011 11:36 AM (GMT -6)   
I had some strange pains in my abdominal cavity after surgery. about a month after the operation they got very bad. I had a ct scan and it showed a big pocket of fluid in my abdomen, so the docs thought maybe that was the cause. I had a drain put in which removed the fluid, but the fluid was clear with no signs of infection and the pain did not resolve afterwards. The doctors never did figure it out, but the pain went away eventually on its own. I sometimes wonder if some of the pain wasn't due to the bad reaction I had to the dissolvable sutures that they used in my abdominal wall. This was something that wasn't discovered until later, when my incision just wouldn't heal after two months. The incision problems cause me a lot of pain that seemed to refer to different locations. I started to walk really hunched over because standing up straight hurt too much. This poor posture caused bizarre muscle spasms that were incredibly painful too... it was a vicious cycle. I also had a lot of stabbing gas pain in the two months after surgery. Sometime it brought me to tears it was so bad. That resolved in time too. Pain can be caused by so many things it is really hard to figure out. Eventually, all my pain (except for one minor pain issue when I flip over in bed that I posted about a few days ago) resolved. It is hard not to worry about it all though and wonder what is normal and what isn't. Hopefully your pain will resolve soon.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 7/13/2011 12:42 PM (GMT -6)   
How often do you get the pains and do they alternate? The reason I ask is that months after one of my surgeries I got horrendous pain in right lower quadrant in middle of night, sharp pain if I moved and was so bad my husband rushed me to hospital. After some investigation turns out it is because I have scar tissue that is connected to my ovaries and when I ovulate I pulls and this causes like a cyst and as I move it gets trapped between the scar tissue and results in a sharp pain.

It settled down but for quite a few months I could tell you when I ovulated and on which side, pain lasted for up to 8 hours each month and then went.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/13/2011 6:56 PM (GMT -6)   
Blueheron,
I am hoping you are right and the pain will resolve on its own. I have been writing down diet, time of eating, activity level, and time, level and location of pain. There is a pattern of stabbing pains happening two hours after meals containing animal fats such as red meat. Cramping across the lower abdominal wall happens after five hours of activity on my feet regardless of diet.
I suspect the abdominal cramping will stop when my abdominal muscles are stronger. Time for gentle lower abdominal crunches!
Szm

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/13/2011 7:13 PM (GMT -6)   
Stripey,
That sounds so painful! I stopped ovulating four years ago but I originally wondered if the pain could be related to reproductive organs. The lower abdominal cramping is daily. The sharp stabbing pain is a couple of days a week but it only lasts about three hours. I suspect the stabbing pain could be a digestion issue and the cramping could be a lower abdominal muscle issue. I hope diet control and gentle muscle strengthening will work. I'll let you know if my approach works.
All the best,
Szm

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/13/2011 7:35 PM (GMT -6)   
NASCARon,
Seven months of extreme pain is horrible. I hope someone figures out what is causing your pain soon. My life was like that before the total colectomy. I still can't believe no one figured out that my colon was ulcerated enough to break into pieces. Drs. kept telling me that my colon looked great and I shouldn't be in any pain. It took the very visual loss of four pints of blood on the hospital floor and my heart stopping before my condition was resolved.
I am not usually a very religious person, but I am praying for a quick and happy resolution for you.
Szm

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/14/2011 5:00 PM (GMT -6)   
NASCAR,
I am continuing to pray for you. Thank you very much for your kind words. I am very glad to still be alive! Changing my diet did not stop the stabbing pain. Back to oxycodone...
Szm

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/17/2011 10:04 AM (GMT -6)   
SZM~I might be confused but did you have the pain before your TC? Do you run a fever with the pain?

If it began after your surgery it sounds similar to my discomfort that eventually subsided. I describe it as everything 'finding' it's new home. Hair loss should improve, too, once your body recovers from the stress of illness and surgery. It really takes a full year to see things get 'back to normal'
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/17/2011 10:43 PM (GMT -6)   
Thank you NASCARon. I hope you feel better soon.
Szm

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/17/2011 11:00 PM (GMT -6)   
Equestrian Mom,
I noticed the pain about a week after surgery when I switched from morphine to oxycodone. There are days when I am pain free. Luckily I have had no fevers. I hope you are correct about the pain and hair loss.
Did it really take "a full year to see things get 'back to normal"? It took that long for me when I had mega toxic pan colitis. I should be more patient with my recovery. It is hard when I am expected to run a division of a business. Employer and fellow employees expect me to be back to normal already. I wish I could retire. That would be heavenly!
Szm
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