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Christine1946
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Date Joined Aug 2008
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   Posted 7/13/2011 8:00 AM (GMT -6)   
     If I remember correctly, your surgeon did not sew your anus closed after your operation, as my surgeon left mine open also.  My question is, do you ever have discomfort, any itching, skin flaps, inside or outside the anus?  Ever since Brian posted that his surgeon said they sew it closed because it can become cancerous within two years of surgery, I have become slightly paranoid every time I have some issues down there shocked .
     At the moment, I have some itching and a protrusion again.  My surgeon told me last year it was a skin flap and NOT a hemorrhoid and gave me Calmoseptine for the area.  It helped but this seems to happening every now and then.  Other than this problem, I feel great!! He did a wonderful job on my stoma, I can eat everything as long as I chew thoroughly but wish Brian wouldn't have posted that statement..lol.

Another UC wife
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Date Joined Jun 2007
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   Posted 7/13/2011 9:26 AM (GMT -6)   
Christine not to make you further alarmed but my husband's surgeon @ Mayo Clinic did the same thing for the same reason/explanation.

As much as we knew before the surgery and went into it with the hope that he might be able to do the j-pouch (2 surgeries) he ended up with a permanent ileostomy.

We knew there was a good possibility that he could end up with the permanent ileostomy but somehow either we forgot or he didn't go into great detail about the rectum removal and anus closed or we just didn't remember that detail. I'm pretty good at taking notes and such so we were surprised not being prepared for that fact. At first my husband was a bit taken aback by it all. It was a freaky thing for him to wrap his head around....however it isn't being used and can't be used so once all the questions were asked and answered he accepted it and moved on about it.

I remember reading the differences here in the beginning and the discussions so I made a special call to re-ask some questions and concerns which were put to rest insofar as we are concerned personally. (Maybe when it is known and decided during the surgery that a pouch is definitely NOT a possibility he chooses to also incorporate this in the surgery???  It was a 7 1/2 hr very complicated surgery overall.  We have total faith in him as most everyone does when they select a surgeon so you just have to hope for your own personal situation what is done is the right thing for you under the circumstances when they are in there operating.)

Obviously different surgeons view this differently. I can't honestly say who is more correct in this case or not...maybe it is a draw and each surgeon does it his way based on his/her own methodology. I suppose if it does present a problem down the road there is the opportunity to have another surgery to correct the situation but hopefully that will NOT be needed for you or anybody else.

That was the hardest part of his recovery as his butt was sore and sitting was a challenge for 3-4 weeks after the surgery as the abdominal incision healed just fine. Initially it was lumpy bumpy from the external stitches but when the internal and extenal stitches healed it is very smooth now and his two butt cheeks where the drains were, healed fine and there are just 2 little straight line scars there now.

Post Edited (Another UC wife) : 7/13/2011 8:32:52 AM (GMT-6)


polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 7/13/2011 5:57 PM (GMT -6)   
Christine
Yes I still have my rectum and anus. There has never been any discussiion or recomendation th have them removed. I never have any itching or discomfort. I am totally happy with having them. Every few weeks I have a small amount of liquid discharge that is normal. It's been a long time since I saw my surgeon. Two or three years.

Dan

Christine1946
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Date Joined Aug 2008
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   Posted 7/15/2011 6:47 PM (GMT -6)   
     UC wife, I do not have my rectum.  It was removed because I had ulcerative proctitis.  My colon was not affected by UC at all but they will not remove the rectum and leave the colon sad .  He left the anus open because he said there are more complications when sewn closed and I suppose he wanted it there for drainage.  I did develop a hematoma about a month post op and he drained it at my first office visit.  He just went up there with an anuscope, noticed the hematoma (which was causing me to feel pressure and discomfort), stuck a suction tube up there smhair   and suctioned it out.  Thought I would die on the spot but I didn't.  I suppose if I were sewn closed he would have had to open me up to do that procedure.  Oh, who knows.  Maybe your  husband had the same surgeon Brian had..lol    
     The Calmoseptine seems to be working.  Guess I have to use it from time to time. 
     Thanks for the responces.  By the way, I went to the beach today for the first time in two years!!!!  What an awesome day it was too...gorgeous weather here in Jersey this past week.  Heat wave is coming back next week but we'll still go to the shore yeah .

Brian84
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Date Joined Mar 2005
Total Posts : 457
   Posted 7/15/2011 7:48 PM (GMT -6)   
I'm sorry Christine, I never intended to get you worried or upset so please don't take it that way. I would never want to do that to anyone confused

Christine1946
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Date Joined Aug 2008
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   Posted 7/16/2011 12:20 PM (GMT -6)   
     Brian, you didn't get me nervous, just started me thinking every time I have an "issue" inside my anus smilewinkgrin .  I've been using Walgreen's ointment for hemorrhoids and the Calmoseptine.  If things get really worrisome, my surgeon told me I could call him at any time.  I just don't want him to think I am a nutcase.
     If I remember correctly, I did ask his assistant last year if by leaving the anus opened there is a greater chance of it becoming cancerous.  Of course, he answered no.   Maybe your surgeon was referring to the possibility of the rectum becoming cancerous if not removed, but all of my rectum is gone.

Another UC wife
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Date Joined Jun 2007
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   Posted 7/16/2011 5:49 PM (GMT -6)   
Christine how great you went to the beach and had such a great time.  We noticed tonight on the national news that so many states are hotter than we are at the moment which is very unusual to say the least.
 
Back to the surgeon issue.........I immediately got concerned after hubby's surgery when I read different posts about how some of these surgeries are done differently.  (Of course I was concerned with everything sewn up insofar as any internal issues down the road of any kind.)
 
My husband's UC was extremely severe and the entire colon removed as well as the rectum.  When his Dr does this type of surgery and there is NO chance whatsoever at any kind of pouch etc. he also removes the anus & sews it up.  The rectal cancer thing/comment has to do with the rectum so if that is gone then there is no possible potential the way it was explained to us.  SUPPOSEDLY the surgery his surgeon did there is no mucous internally being created as there is nothing there to create it....again...that is how it was all explained to us.
 
Most of us are very satisfied with our surgeons and certainly hope and pray all we are told is in fact correct as it relates to each and every specific individual's case.  Tomorrow is 7 months for my husband and I am amazed and blown away at his overall progress.  Things are not totally 100%...I would prefer his skin be totally clear but nothing serious for sure and we are still in a learning curve but overall we cannot really complain either.  Some of the trials and tribulations others face, he has it easy in comparison so we will not complain.

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 7/18/2011 8:21 AM (GMT -6)   
     UC wife, it never ceases to amaze me either how different each case can be.  Of course, not all of us suffered from UC.  My GI doctor was extremely upset by my decision to have this surgery.  He didn't even refer me to a surgeon!  I suppose it was because my colon was not in bad shape at all, just minor diverticulosis but my rectum was a mess.  Since my paternal grandmother died from rectal cancer, this was always in the back of my mind.  My surgeon told me, after the surgery, that my rectum was badly diseased and I had made the correct decision.
     I am glad your husband is doing well.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 7/18/2011 9:51 PM (GMT -6)   
Christine1946
I think I will call my surgeon and question tha rectum/anus issue. Now that I think about it, I better contact the surgeon that did my emergency surgery after I developed Peretonitis a week after the first surgery. Maybe he removed the rectum. That is where the leakage was.

Dan

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 7/22/2011 11:17 AM (GMT -6)   
     Just returned from five days at the Jersey shore cool .  We did have some relief there from the God awful HEAT!!!  But today is terrible!
     Dan, keep me posted if you get an answer from your surgeon.  I was ok for a few days, today I have the itching and minor discomfort again.  Wonder if it has something to do with this heat?

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 7/22/2011 2:55 PM (GMT -6)   
Christine
TJ Lubinsky referred to Jersey and the Jersey shore often on his DooWop program. Many of the DooWop groups were from Jersey. It sounds romantic and exciting. Is it?

I just re-read the surgeons reports from my colectomy, peritonitis, and two revisions. No reference to removing the rectum, just to stapling or sewng it shut. Guess I must still have them. Still need to call him. Of course "if it ain't broke, don't fix it".

Dan

Christine1946
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Date Joined Aug 2008
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   Posted 7/22/2011 3:14 PM (GMT -6)   
     Dan, Doo Wop exciting and romantic??  redface dunno...lololol.  I love doo wop music too though.  Guess it is from being born and bred in NJ.  My all-time favorite group is Frankie Valle and the Four Seasons, not exactly Doo Wop but a great singing group.
     I never received a report on what was done during my operation.  All I know is that it was a total colectomy with end ileostomy (my rectum and colon were removed) but he did not sew the anus closed.  I suppose you have to have faith in your surgeon that he is doing what is right by you.  At my follow up visits there were people there waiting to see him who came from Ocean City, NJ.  The lady said her GI doctor said Dr. Fry was the best colorectal surgeon in the Philadelphia area, in her opinion.  My ostomy nurse also said if he had to have colorectal surgery Dr. Fry would be his first choice.
     Sometimes (maybe it is this heat) I get paranoid tongue .

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 7/22/2011 3:26 PM (GMT -6)   
Christine
I thought that if the rectum was removed the anus was always removed with it. After my colectomy I had internal leakage at the rectum causing the peritonitis. The second surgery, 7 days later, found the leakage at the rectum. It was closed. Perhaps the rectum was removed then. The report did not say that.
Ask your surgeon for the surgical report. This is what would be sent to a new surgeon at your request. I think they HAVE TO give it to you.

Dan

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 7/22/2011 7:03 PM (GMT -6)   
Polish Dan/Christine:

I had all of my colon and most of my rectum removed...the surgeon left a rectal "cuff" for "my comfort" and he left my anus and left it open...only issue I have is with discharge (it is mucus..not blood)..wonderful having things come out of three places now! smilewinkgrin

The surgeon said the only issue would be looking for a return of inflammation to the cuff, and if that happened, it would be removed (through the anus..not through the belly)...

Things are okay now..

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 7/22/2011 7:18 PM (GMT -6)   
     Jim, that is interesting.  Wonder if the same was done for me.  Although, I don't think any of my rectum was left because of the extent of disease I had there.  I had some problems several months ago and my surgeon sent me for an MRI of the pelvic area.   I wrote a long post about how incompetent the imaging center was where I had the MRI...almost done.  I say almost because they had me under that dome for an hour and a half with my arms raised above my head.  They NEVER told me to fast ahead of time and I felt my stoma just gushing poo (sorry to be graphic).  To add insult to injury, they couldn't find a vein to insert the contrast and stuck me three times before I said, "enough already".  So, of course, the test was incomplete.  They sent a letter to my surgeon suggesting I have an MRI of the rectum.  My surgeon said..."How can they do an MRI of the rectum when you have no rectum?"  UGH.  sometimes I wonder how these people get their jobs.
     I still have mucus too!  Not much but enough that I wear a panty liner.  What I am concerned with is the "skin flap" (that is what my surgeon referred to it by) that sticks out of the anus.  I always thought it was a hemmie.  I hate to call him,  especially because I have no pain or bleeding, just an annoyance.
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