Have a perm ileo now!!!

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WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/14/2011 2:00 AM (GMT 0)   
Well as of yesterday morning at 1130 am I have my permanent ileostomy!!!
She is named Opal and she is the daintiest stoma most of my nurses have ever seen lol. She's in all honesty no bigger than a quarter. I'm doing well. Had lots of nausea yesterday but I think it was mostly the anesthetic. Today I'm doing great took three walks one small and two big ones. Had clear fluids and tomorrow I might be allowed just liquids!
I watched her fluff earlier lol it was teh weirdest feeling. I also emptied the bag myself tonight and discovered a good way to clip it and empty it without completely getting the tail full of poop! I have awesome nurses and the best surgeon. SHe loved my teddy bear that I performed an ileostomy on, she's been showing him to people :P
I'm in really good spirits and am hoping the rest of my hospital stay is as good as today!
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/13/2011 8:12 PM (GMT -6)   
Hey There Wonder..........good for you! So happy to hear things are going so well so far. Keep up that great attitude...it will take you far.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/13/2011 8:13 PM (GMT -6)   
Congratulations! Sounds like you're doing great. Wow, a "dainty" organ the pushes out poop, that's something. I hope things continue to go smoothly.

Remember, as soon as you're able, walk, walk, walk (and chew, chew, chew)
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/13/2011 11:57 PM (GMT -6)   
congrats Wonder! so glad things are going well! wishing you a smooth recovery!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/14/2011 12:17 AM (GMT -6)   
Really Happy for you, Keep up that great positive attitude!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/14/2011 5:39 AM (GMT -6)   
Hi WonderTurd!
I'm so glad you're doing well! Keep up the good attitude; it makes all the difference. You will be feeling so wonderful in a few days/weeks. Keep us posted!

Stephanie
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 7/14/2011 6:12 AM (GMT -6)   
I am so glad to hear that your surgery went so well and that you are happy with Opal. I remember when I saw my stoma doing its little dance for the first time. I thought it was pretty fascinating.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/14/2011 8:47 AM (GMT -6)   
I had a good giggle over the noises and feelings when she squirts lol... they must think I'm a nut!
Today I was able to have some instant breakfast and cream of wheat and so far so good. I also washed on my own and went for a three lap walk alone. I'm really feeling much better than I expected! Especially emotionally I'm doing GREAT. Every time I walk I feel better. She is really small as I said she's about 7/8 of an inch in diameter. I've had lots of visitors and people keep bringing me books and puzzles and things. So all; in all a very pleasant hospital stay for me so far. My first night was a little rough since I was so nauseated from the anesthetic but now I'm feeling pretty good.
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

Rachel's Mom
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 7/14/2011 9:15 AM (GMT -6)   
Congrats and here's to moving forward. Your stoma will also get smaller over the coming weeks - daintier!!

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/14/2011 11:14 AM (GMT -6)   
I know they told me that this morning it will most likely be around 3/4 inch when done healing up! I'm quite surprised I was expecting it to be a lot bigger. To be honest I expected the whole thing to be more stressful and unpleasant than it has been. I just had soup and ice cream for lunch and working on a bit of milk and so far so good... Going to learn to empty my bag in a bit as well! Lots to learn and do while I'm in here.
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/14/2011 11:28 AM (GMT -6)   
I guess my husband has a "dainty" one too as that is his size also.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/14/2011 5:05 PM (GMT -6)   
So happy to hear that you and Opal are doing well! yeah
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 7/14/2011 9:32 PM (GMT -6)   
Great news! So good to hear you doing so well. Take care xxx
Sarah - 38 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since.
Currently - DX colonic dysmotility due to surgery/nerve damage
Perm Ileo surgery planned 11th July

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 7/15/2011 11:35 AM (GMT -6)   
Its great to hear that things are going well for you W'turd, i am sending you good vibes for continued progress & recovery to vibrant health very soon, cheers & best wishes
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 7/15/2011 6:03 PM (GMT -6)   
     Keep up the good work!!!!  Having a positive attitude is at least half the battle.  Makes recovery a LOT easier I found yeah

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/15/2011 6:56 PM (GMT -6)   
I would say having a good attitude is definitely half the battle. It;s making it much more bearable just to be in the hospital this time around. I'm very pleased with little Opal, she's doing smashing. I still find it tickles when she kinda bubbles out some air and I think the novelty may never wear off lol
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011
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