Tummy pains...

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Newone
Regular Member


Date Joined Apr 2011
Total Posts : 58
   Posted 7/15/2011 10:26 PM (GMT -6)   
Hey Guys. I haven't posted much on this forum but I could really use some positive feedback right now. Ive had an Ileostomy for just about 3 months and I'm on the stretch of it getting reversed. I have crohn's disease and it was just a temporary ileo so my colon could heal after I got 17 inches of it removed which left me disease free. I would just like to know if anyone out there has experienced this. So far the temp ileo has been great. I hate it... but it's been wondrous having no pain. Yesterday though... I ate a chicken bacon ranch wrap from subway (SOOO GOOD lol) and immediately afterwards I had really bad crampy pain in the lower part of my stomach which lead to pressure in my bum and it felt like i had to use the bathroom like a normal person. I know that's possible with a loop ileo but im not 100 percent sure that is what i have. Im assuming it is because everything is connected in my body but before yesterday all there was was mucus coming out. nothing brown. Now i'm still experiencing these pains and i have frequent trips to the bathroom with actual poop coming out of my bum. Not a while bunch but about a teaspoon every time i go which for the last day has been fairly often. I'm freaking out worried that my disease is coming back which means I may not get my reversal like i was hoping. I have an appointment to see my specialist on the 28th and a barium xray scheduled at the hospital on the 25th but i was just wondering if there was anyone else that could give me something that could maybe cause this. Im trying to be positive and focusing on the small chance that it could be something else. I was actually hoping that it was food poisoning from the chicken :( But i didnt throw up. Sigh. Please help if you can <3

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/16/2011 1:46 AM (GMT -6)   
Hi Newone,
Sorry your having problems, I have an end ileostomy and had my rectum and anus removed so no reversal for me, also a crohns/ colitis sufferer for the past 23 years. I had the ileostomy done 3 months before the proctocolectomy and wanted to let you know that I too lost small amounts of what appeared to be bowel motions and often had the feeling of wanting to go and I believe that is a completely normal feeling so I don't think you should be alarmed about that. Also the crampy pain I got for some time as well, you had your surgery not so long ago and it could be a matter of things still settling but I am no doctor so I would like to add that it wouldn't be a bad idea to give your surgeons office a call and ask them what they think. Just to be on the safe side. Now I also don't want to scare you but you say you have crohns so there is always a chance it can come back unfortunately, and even though I have no colon I know it can appear again at any time throughout the digestive tract. Its a matter of living for now and hoping it never comes back. I wish you lots of luck with your upcoming surgery and reversal, take care and please let us know how you get on.
Doreen

Newone
Regular Member


Date Joined Apr 2011
Total Posts : 58
   Posted 7/16/2011 3:53 AM (GMT -6)   
Thank You Doreen :)
I do know that it can come back. I was disease free once before in 2003 when i got some of my bowels removed and it ended up coming back later on. It sucks. but I'm hoping it hasnt come back this soon. I haven't had this kind of pain before since i got my surgery and its driving me crazy. I'm really hoping its nothing. Or that it's stress related and i can fix it with a few days of relaxation. I'll know more on the 25th when they do some xrays. But thank you for the kind words and the reassurance. I needed it <3

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 7/16/2011 11:22 AM (GMT -6)   
I had a loop ileo initially but had to have it turned into an end ileo 6 months later as the loop pulled back on itself and so everything was flowing through as if the ileo didn't exist. They left my colon in place until I had that removed 7 years later and during that time I also had small amounts of bowel motions and mucus.
 
Gradually it got worse until I was having to go so often that it was just like it was before the ileo even though it was only very small amounts the urgency was terrible. I never regretted having the ileo and was only 20 y.o when I had it done as it gave me my life back as my Crohn's was a agressive form and didn't want to settle down.
 
I still have flares of the Crohn's and am on immunosuppresants for life and that keeps in it check. Having a bag is a personal experience and not everyone likes it and you are obviously desperate to have it reversed so hope this works out for you. Just remember that if at some point it has to be done again, it isn't the end of the world. In fact it can be that start of living a normal life with no running to the bathroom and no pain. Good luck with your reversal and hope you CD stays in remission.
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