I'm new to this forum, but have been browsing a while, initially the crohns forum and more recently here.
Short summary so far: I was diagnosed with Crohn's in 2002, was but on Pentasa initially with the annual flares being kept under control with pred. In 2008 I had a flare and a colonoscopy showed that my crohn's spread throughout the large colon and pred stopped working. I was started on Humira aug 2008 which worked really well for about 8 months, when I started having troubles (fissures) in my rectum with a lot of blood with or without stools. A flexi sig showed ulceration in my sigmoid colon and my GI suggesting recapturing the response to Humira by re-loading Humira (4 pens/2pens/etc). the response lastes about 2 months and I was back where I started with lots of blood in the toilet. In May 2011 I finally had an MRI confirming a 2 cm fissure just inside my sphinter muscle. At theat point I was at my wits end and very depressed spending so much time on the loo and in pain, that I said "yes please" when my GI suggested a disfunctioning of my colon with a temp ileostomy. So far so good, the depressions have gone with a brighter outlokk after surgery and after 4 weeks wait my date is up in a few days July 19th. I am all set for the ileo, but in the last 4 weeks my pain in the bum has been getting significantly worse. I also developed a second skintag and constant diarreah has aggrevated my bum area endlessly and make sleeping nearly impossible.
My concern now is that the ileostomy will do its job for my colon, but won't solve the rectal issues. has anyone had similar problems and could they be solved/healed with an ileo?
feedback is very much appreciated