Belt(s) at night?

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ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 7/16/2011 1:51 PM (GMT -6)   
All:

Just curious who wears a belt at night as well as the day.

The reason I ask is because when I wear a belt to sleep, it seems to get really tight on one side and really loose on the other when I turn..so, I have to constantly re-adjust...got tired of that so I decided to take the belt off..one less thing to mess with when trying to get some shut eye..

Am I missing something with the belt?

Thanks,
jimmy

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/16/2011 8:58 PM (GMT -6)   
Hi Jimmy!
I don't usually wear one either day or night. But sometimes I'll do it at night if I just changed my wafer before I go to bed. I think it's totally personal preference. If you don't need it and it's just annoying at night, don't wear it! :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/16/2011 9:26 PM (GMT -6)   
Hubby only takes it off to shower. Doesn't seem to bother him or give him any problems so he keeps it on. Definitely personal preference is the key if it annoys you at all.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 7/17/2011 8:11 AM (GMT -6)   
I don't and never have worn one either at night or during the day. It would annoy me and when wearing tight clothes, looking at the designs available, would show through. If it works for you then use it, if you don't need it then do wear it if it is annoying. Better to get good night unbroken sleep if the belt is not necessary. Maybe good idea if stoma is inverted or tucked into a roll of skin or if you are having adhesion of wafer issues but apart from that oyu should be fine.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/17/2011 11:07 AM (GMT -6)   
It might be the brand you are using...I only used the Hollister belt post surgery for about a month. Once my wafer could be fully adhered to my stomach I stopped using it.

There's never any right or wrong since we all have different personal preferences! If it's a bother don't use it:)
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

KBD
New Member


Date Joined Jul 2011
Total Posts : 10
   Posted 7/17/2011 12:38 PM (GMT -6)   
I only wear a belt during the day. Had the same problem as you--when you shift around at night the belt can pull tighter on one side and slack on the other. I've started using a pouch cover so I don't notice the bag moving around as much at night.
KBD
PS--has anyone tried the ostomy hernia belts for extra support? I'm thinking a four inch belt might be useful as the little Hollister belt I'm wearing tends to fold over beneath my stomach.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/17/2011 1:44 PM (GMT -6)   
i wear the belt at night too as well as during the day. i don't pay attention whether it's even on all sides, i just fall asleep :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/17/2011 6:59 PM (GMT -6)   
KBD -- hubby has 2 of the 4" NuHope belts. He wears them when playing golf or if extra exertion around the house doing things. Otherwise he uses the 1" belts for the extra support for the wafer.

I am placing an order tomorrow for him and we figured we would also order a 6" one to have on hand as well.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 7/18/2011 1:30 AM (GMT -6)   
I wear them 24/7 even in the shower. It feels weird like it's pulling when I don't have it on.

KBD
New Member


Date Joined Jul 2011
Total Posts : 10
   Posted 7/18/2011 12:20 PM (GMT -6)   
I'm going to try the 4" Nu-hope belt. I figure the extra support is a good idea.
I only wear the Hollister belt in the shower if I forget to take it off :-)
KBD

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/18/2011 1:03 PM (GMT -6)   
Just curious as only had my ileostomy in April and never been recommended a belt. What does it actually do? and if in UK can you get it free same as with the bags etc?!

24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to nearly all meds tried. Also dx with IBS. Proctocolectomy+pouch surgery with temp loop ileostomy 9th April 11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2011 1:18 PM (GMT -6)   
yes, it's free like all the ostomy equipment. at least for us, in israel it is. it helps to keep things more together. w/o the belt, the bag pulls down on the stoma and the stoma area. with time that can cause a hernia. a belt helps to prevent it. also, the bag keeps the appliance tight against your body, so that way it makes wear time longer. AND another thing, if someone has a retracted stoma (like mine), after a while of wearing the belt all the time (except in the shower), it makes the stoma stick out so much more. that's what happened to me after wearing it for hummm around 6 weeks it think. :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/18/2011 4:36 PM (GMT -6)   
2b ColonFree said...
yes, it's free like all the ostomy equipment. at least for us, in israel it is. it helps to keep things more together. w/o the belt, the bag pulls down on the stoma and the stoma area. with time that can cause a hernia. a belt helps to prevent it. also, the bag keeps the appliance tight against your body, so that way it makes wear time longer. AND another thing, if someone has a retracted stoma (like mine), after a while of wearing the belt all the time (except in the shower), it makes the stoma stick out so much more. that's what happened to me after wearing it for hummm around 6 weeks it think. :)
Oh great thanks for clarifying, I will look into getting one of those.
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to nearly all meds tried. Also dx with IBS. Proctocolectomy+pouch surgery with temp loop ileostomy 9th April 11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/19/2011 12:37 AM (GMT -6)   
hey, i recommend hollister's. i like coloplast's appliance, but hollister's belt is better. i don't know about convatec's. you can order one of each and see what works best for you. good luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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