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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/18/2011 12:20 PM (GMT -6)   
My main issue upsetting me at the moment is the whole issue with the ability to get pregnant. I am 25 and not at the stage of thinking of children imminently but I would absolutely love to have them when I settle down with someone.
 
I knew before my surgery that getting pregnant might be very difficult for me due to scar tissue etc. A few days after having my colon removed/temp ileostomy/internal pouch construction I was told in hospital  that things 'change' down there and that the vagina can change position etc. I have definitely discovered this to be the case within days after surgery as inserting/removing a tampon is a totally different 'direction' to what it used to be, it is also often extremely painful. I am concerned that this is a sign that things have changed to a point where it is a sign that things really will be difficult to conceive. If things have changed alot 'down there' does that mean its highly likely that I have a lot of scar tissue round that area too? 
 
Maybe I'm thinking too much into this, but any thoughts are welcome :) 
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to nearly all meds tried. Also dx with IBS. Proctocolectomy+pouch surgery with temp loop ileostomy 9th April 11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4544
   Posted 7/18/2011 2:03 PM (GMT -6)   
I have definately noticed a change down there after having J pouch surgery. Sometimes, but not always, intercourse can be painful. I have 2 children from before I had surgery and I do not plan to have anymore so I never really researched it or talked about it with my surgeon. I do know just from reading on these forums that many women go on to have babies with little trouble conceiving. Was your surgery done laparscopically? That does cut down on the scar tissue if it was done that way.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/18/2011 2:18 PM (GMT -6)   
Thanks for your reply, my surgery was not done laparascopically, it was the opposite (can't think what the word is!). I have a 7inch scar running down my abdomen.
 
If you don't mind me asking - when you say pain during sex...why do you think you get this as a result of the surgery?

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/18/2011 3:24 PM (GMT -6)   
Ever since I was diagnosed with Crohn's, I was so sick of the possible side effects on babies with the drugs I was on, and I was sick of being poked and prodded, and now that I've had so many surgical complications, I REALLY am sick of complications and being poked and prodded, so I am definitely planning to adopt. Ever since I got Crohn's, I've thought about it, and I plan to adopt a little asian girl, either from Korea or Vietnam or China :) They're so cute and they are plenty who don't have families.
 
Sure, I'm sad not to have a child by blood, but honestly, in the grand scheme of things, I realize that there are bigger problems in the world (I've been through them!!), and I would feel nice knowing I helped someone who truly needed it. 

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/18/2011 3:34 PM (GMT -6)   
80'sChick that is so lovely...I'm so pleased you have come to terms with your personal complications and can see a future in being able to help someone else by adopting :)

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4544
   Posted 7/18/2011 6:33 PM (GMT -6)   
qwerty1 - I think it's a result from the surgery b/c I never had any pain during sex before I had the surgery. It doesn't happen all the time though...I just don't think it's a coincidence.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!
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