Losing major weight

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Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 7/21/2011 2:06 PM (GMT -6)   
I have lost a lot of weight..19 pounds to be exact..down to 93 pounds and I am 5'4. The doctor has done every test possible from cts of lungs to pelvis and a lot of blood work.. Only thing that came back in blood work was elevated hemoglobin. He states it is not stress that on the pelvic ct there was some "shrinkage". He called it something..syndrome. He states that it is mal absorption and happens to people with ileostomys. Basically everything is going straight through me, but my crohms is not flared? I have been stuffing myself, drinking ensure, ice cream with no results, just more weight loss . Does anyone have any idea what he is talking about? Has this happened to anyone? And any ideas on how to get weight on?
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,Interstitial Cystitis,Ileostomy,Severe Scoliosis,Chronic Pain,Arthritis,BP1,Anxiety/Panic attacks,Several reconstructive surgeries..

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/21/2011 3:35 PM (GMT -6)   
When did you have your ileostomy surgery?

Is your stoma high in your digestive tract? That could be a reason why you are dumping and losing weight.

Another thought is your body hasn't adjust to it's 'new way' yet. Has your doc given instructions for fiber supplements or Imodium?
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 7/21/2011 3:59 PM (GMT -6)   
I have had my ileostomy since 2004..as far as its location I believe it is in the ileum..it was supposed to be temporary but has turned into a permanent thing due to loss of control of the sphincter muscled..gross I know.
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,Interstitial Cystitis,Ileostomy,Severe Scoliosis,Chronic Pain,Arthritis,BP1,Anxiety/Panic attacks,Several reconstructive surgeries..

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/21/2011 7:05 PM (GMT -6)   
well i have had no problem with gaining weight, even though stuff does go right through me. i don't think that's it, if it's working normally.
is there a medicine you just started taking?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 7/21/2011 11:31 PM (GMT -6)   
No, nothing has changed..
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,Interstitial Cystitis,Ileostomy,Severe Scoliosis,Chronic Pain,Arthritis,BP1,Anxiety/Panic attacks,Several reconstructive surgeries..

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 7/22/2011 12:06 AM (GMT -6)   
SOmetimes, rich foods can pass thru without slowing down enough to absorb all. Watch sugar, caffeine and see if you can get this under control. Are there any foods that you know will slow down your output, like eating part of a peeled apple or part of a banana before your meal? Every now and then, I get a digestive tract "bug" and I just can't slow things down. A round of Flagyl takes care of it for me, even tho I have a hard time taking flagyl. It's worth it to feel better.
CD diagnosed in 1979. Ileo in 1984. No recurrence of CD! Some issues with adhesions still.
Husband diagnosed with ALS (Lou Gehrig's Disease) March 2008 - taking one day at a time, enjoying our time together.
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