If I had found this site and logged onto the ostomy strand, with all of the knowledge that you people have and share regarding testing, I never would have had my original surgery and would not have ended up as an ostomate. You would have spared me the fate I met with due to lack of appropriate preop testing and the misdiagnosis of the sigmoidocele that wasn't, unneeded removal of the sigmoid, scarring of the colon and small bowel and all that followed.
BUT seeing as through this twist of fate, I did end up as an ileostomate (only way to save my life) and was lucky that one doc was willing to save my life, I am trying to pay the good forward. You all on this strand are more knowledgable than many docs I know. Together we could come up with a medical school curriculum that would revolutionize colon and rectal surgery medical school education!!!!
I actually did write an article on about
.com called "Listen, be human first and a doctor second". They liked my advice to medical school students so much that they published it. It came from my year of being so gut injured from the sigmoid resection and scarred small bowel that I could not eat or poop for 13 months. During that time docs either tried to help but did not know how, didn't want to clean up another doc's mess, didn't want to deal at all, or they tried and when they could not figure out the complications they BLAMED ME. That was the WORST! So that is how I came to write a how-to for medical school students on about
.com. Pretty cool huh? May as well do the best with the hand we have been given.
I'm now working on a patient advocacy book with hints I have not seen in any other patient advocacy books. Things patients just don't think of.
Post Edited (esoR) : 7/28/2011 8:30:20 PM (GMT-6)