Posted 7/23/2011 3:21 PM (GMT -7)
I'm Serenitee, and I had a Temp. Loop ileostomy May 10, 2011. I see my colon/rectal surgeon September to discuss about making it permanent & removing my rectum. I definitely want this surgery. However, I had a couple questions for you...What is a "end ileo" does it just mean its permanent. When you went from the Loop to the End, did they leave your existing stoma site or change it? The reason I was asking is I like me current stoma, the size and its function is great. So I am concerned if I have the permanent surgery will they change my current stoma in any way?
As to your concerns. I am so sorry you are having such pain and worry over the color of the output. I can relate to unbearable pain day in and day out. Especially with having to worry if there is something really wrong that the Doctors are just missing. Very Stressful & scary I'm sure. I am so sorry to hear all you are having to go thru.
I currently suffer from absolutely excruciating, unbearable pelvic & bladder pain. I was just diagnosed w/Pelvic & Bladder Trauma & Dysfunction. I can hardly walk, sit, lay down, sleep as it is the most pain I have ever had to deal with. I'm am supposed to be starting physical therapy for pelvic floor dysfunction at the Hospital. They literally want me to go 8-12 times a week (thats at least 2x a day, I might as well bring my sleeping bag...Lol) Apparently, they attach electrodes inside the vagina and rectum. I am so not looking forward to this at all.
Besides all my intestinal problems...Between having 7-kidz (and the damage it caused in my pelvic region) along with a little over a year ago my colon tore thru the vaginal wall and then the colon and bladder fell out of my body. This was my 2nd bladder prolapse but the first one didn't fall out of my body. I've had 2x bladder lifts w/mesh, 2x rectoceles, 2x enteroceles, hysterectomy, C-section, ruptured appendix (almost died from), Psuedomembraneous Colitis, C-Diff too many times to count.
I'm so sorry I rambled on & on...Would love to chat some more. Look forward to anymore of your posts or if you wanted to email me my email address is listed under my member profile. Best of luck to you, and I will be saying prayers for things to get resolved for you and the pain under control.
Hope to receive an email from you and would love to chat.
Your Healingwell Friend, Hugz & smiles sent your way.
Bipolar 2, Manic-Depressive, Borderline, Anxiety/Panic Disorder, Ptsd