Leakage under wafer

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WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/24/2011 8:49 PM (GMT -6)   
I've been home a little over a week now and am having some issues with leakage under my wafer. I've got a very tiny stoma and she doesn't pout out very much. Currently I'm using convex wafers and wearing my belt but it doesn't seem to be helping much. I also tried some of the coloplast strips but they didn't do the trick either. Wondering what kinds of things I could try so that I'm not constantly changing my wafers...
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/24/2011 10:05 PM (GMT -6)   
do you have a loop or end ileostomy? with loop ileostomies they usually keep the rod (kind of a bridge thing to hold the stoma) and remove it after about 2 weeks. this rod can definitely cause leaks.

whether if thats the case or not, i recommend eakin seals or adapt rings. they are the best in preventing leaks. i also have a tiny and retracted stoma - same level as my skin and i use convex wafer + adapt rings + wearing a belt and this combination seems to help significantly. my wear time is 7-12 days. (now in the heat it's 7 days).

i used to wear a flat wafer with paste and no belt. it used to hold 5 days. the convex + adapt rings made wear time longer to 7-8 days. and last, about couple mons ago started wearing the belt and that makes it hold for even 12 days most times.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/25/2011 10:23 AM (GMT -6)   
I have an end ileostomy. She's just tiny and doesn't stick out very far and as of right now she's swollen on one side so the spot she spits out of is right by my skin... the stoma nurse is hoping as the swelling goes down that she rights herself more upwards.
I haven't tried the eakin seals but she gave me one the other day so when I do my next change I'll try it and see how I make out. It almost seems to me that the convex wafers are a holding area for stool... kinda makes me wonder if it's really all that helpful. The stoma nurse suggested maybe I try a one piece appliance but I don't know if I like that idea as well. I like the two piece unit so far because I can check on things in there and let air out when I'm gassy...
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/25/2011 11:00 AM (GMT -6)   
i hope the next change goes better. eakin seals/adapt rings are really good for tiny stomas, i have no doubt they can help you. i feel a big difference b/w flat wafers and convex ones. flat wafers don't hold long for me as convex. i don't like the idea of one piece either, just cuz of the reasons you mentioned. and you can't change only the bag if you want to. let us know how things go.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/25/2011 11:10 AM (GMT -6)   
I have a new stoma that is also flush. The ostomy nurse gave me Hollister flat wafer and instructed me to use an eakin seal. What I have been doing is when I change, I cut the eakin seal in half and stretch it around the stoma and then stick it to my skin before putting the wafer on. I have been changing every other day to keep a close eye on my skin and so far so good. I also have some convex wafers to try, but I prefer to wear the flat wafers.
End ileostomy due to colonic inertia and pelvic floor dysfunction.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/25/2011 11:59 AM (GMT -6)   
Tracy, how are you doing? any better by now?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/25/2011 12:28 PM (GMT -6)   
So far since we changed it yesterday I'm feeling ok with it. I almost think if I had changed it Friday instead of Sunday I may not have had a leak... I remember seeing the strip lift a bit in one area and I just figured it was ok to leave it anyway but I'm guessing if I'd have changed it then it would have been fine. I'm able to sit up and get around a bit easier now. The extra mural nurse is coming in to dress my rectal wound each day which is a huge help because I can't see back there and I don't know what I'm doing! It's got a fair amount of drainage but it's less smelly now so that's an improvement. Not liking all the taping though, my skin is a bit red back there I guess. I'm thinking tomorrow I may take some time to call some of the ostomy supply companies and see about samples. I'm particularly interested in Convatech's moldable wafers. Everyone seems to really like them. I think they may help me too since they snug up to Opal. Besides it can't hurt to try different things until I find something I'm happy with rather than just sticking with what the hospital sent me home with!
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/25/2011 12:57 PM (GMT -6)   
yeah, the best thing is to try all the samples you can and see what works for you best. i'm glad you are better today :) i'm sure things will work out just fine, just have to work on it for a while till you figure what's right for you. hope you keep improving. keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 7/25/2011 1:32 PM (GMT -6)   
The Coloplast strips are what my hospital gave me too, and I was not happy with them. The only leak I have gotten in eight months since surgery happened when using those. Adapts and Eakins stopped any leaks. I like the Eakins better as they stick to the skin immediately adjacent to my stoma better. The Adapts got punched back by my squirmy, expanding and contracting stoma which always left a little skin. They both prevented leaks though and it is really a matter of which works best for you.

Different brands may work better for you too. I tried one of just about everything... one and two-piece options and found that the Convatec Durahesive flat cut-to-fit two-pieces stick to me really well and don't bug my skin. I am bummed that I can't use the moldables, but my stoma is an oval that is too long on one side for the medium size and too short on the other side for the large size. All of our stomas are so different that what works for one person doesn't always work for another so you really just have to experiment to see what works for you. It is very overwhelming, but once you find the product that finally works for you it is a big relief and things get much better. The companies are very helpful. Most of them assign a rep to you that will call and check up on you to see how the samples are working and make suggestions.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
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