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New Member

Date Joined Jul 2011
Total Posts : 1
   Posted 7/26/2011 4:05 PM (GMT -6)   
im 15 and going back to school in september and i am two weeks after having an ileostomy i really dont know how to cope with this im starting to get really depressed i have to empty the bag every 2 hours minimum has anyone got any tips

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 7/26/2011 4:19 PM (GMT -6)   
Hi and welcome!
Do you mind if I ask why you have your ostomy? Is it permanent or temporary?

I have a permanent one due to Crohn's disease. I got it last year. It has really changed my life, mostly because I CHOSE to find ways that it made my life better. You're only 2 weeks out! It gets MUCH better. Your output will slow down. You won't need to empty so often as time goes on. I honestly forget I have the ostomy most of the time.

Have you looked for support groups in your area? I found one and that really helped. This site helps too!! One of my friends from my real life support group is a counselor at a camp for kids with ostomies and I'm going to do it next year too! I can't wait. You should look into the camp.

Let us know more about you and we would LOVE to help. You've already found the site which is step one!! :) HUgs.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

life scar
Regular Member

Date Joined Nov 2007
Total Posts : 35
   Posted 7/26/2011 4:19 PM (GMT -6)   
Hi, I can understand how hard it is for you at the moment, is there someone you can talk to about your depression? family doctor or councellor perhaps. You really need to have someone who really understands what you are going through and help to guide you through it all. Your teacher will excuse you when you need to go and empty the bag and no one will even know you have one (unless you tell them) Please try to be strong and have a really positive attitude and you will soon be accepting things as they are as you have had a big operation and it is normal for you to be feeling this way. It won't be long before you feel great again and be able to get on with a long and happy future ahead of you.
Good luck and remember to think positive! There is always someone out here who can support you when you are needing it.
Love and healing is on its way!


Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 7/26/2011 4:26 PM (GMT -6)   
Your output will slow down a lot as you heal and as your small intestine starts learning to absorb fluids like the large intestine used to (or was supposed to). You've still got some more time to get better, and from reading other posts, it seems like younger folks do tend to heal faster.

You can also use immodium (buy at the drug store) or lomotil (prescription) to help slow down your output. It works better for some folks than others.

You've been through a lot, and you do need support. It's normal to feel depressed some times after major surgery, and it doesn't usually last for most folks. Feel free to ask questions here or to just talk about how you're feeling. If you can find a support group that's great. Is your family supportive? Friends?

Hang in. It does get better!
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Regular Member

Date Joined Aug 2010
Total Posts : 130
   Posted 7/26/2011 5:11 PM (GMT -6)   
hi geegeegee, i agree that it is hard, very hard to get used to it all, you have just been thru a major surgery that most others never have to suffer , your body is still in shock from the drugs & the physical changes the doctors have carried out to your body - it is natural to feel completely unusual or strange and depressed after something like this - however as the others have said it is only a short time since your op & things do improve as the days go by, i found it very hard to imagine in the first days after my surgery what it would be like in a months time or 2 months time, this all seemed so far into the future, people told me that they could do everything once they had healed & gotten used to the bags, changing etc, it all seemed to be just too good to be true, my advice is to take each day as it comes, deal with each one in its own time, its all we can do, your body will heal - it knows how to do this itself - it is designed to do this - i hope that you will be surprised after say 5 or 6 weeks & you will be notice that out of the blue you feel a lot stronger & more like the normal you - this is what i found - while it does take a long time time fully recover it seems that the 6 week mark is when we begin to feel a little better

you must have many questions & thoughts which only us with ileos would understand - so dont be afraid to say or ask anything here - no matter what - we wont be grossed out by anything - many here have been thru the same as you & have had the same feelings as you when being ill, waiting for surgery & then trying to recover

best best wishes
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!
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