OOOOOH That Smell!

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WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/27/2011 5:11 PM (GMT -6)   
I am wondering if anyone has any good ideas about how to cut down the smell of your poop when emptying the bag. I didn't realize how stinky I was lol. I've tried the Adapt Odour eliminator and lubricant that came in my kit when I came home from the hospital. It works fine as a lubricant when my poo is pasty but it does nothing for the smell. I figured someone out here would have some good suggestions. I'm half tempted to buy swimmers nose plugs :)
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 7/27/2011 5:41 PM (GMT -6)   
I've tried actual deodorants but ended up using just a little bit of hydrogen peroxide in the pouch. It's super cheap and works fine for me! Some people don't like it because for some it creates a little extra air in the pouch, but it doesn't do that for me. It's safe to use on your stoma because you can use it in your mouth. Also, as time goes on I feel like it smells less...or maybe I'm just more used to it :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 7/27/2011 5:44 PM (GMT -6)   
What 80sChick said.
I don't even really notice a smell unless it's early in the morning or if I eat a smelly food or pizza.
I empty frequently so maybe that helps. I actually don't ever use a deodorizer unless I go out.

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/27/2011 5:53 PM (GMT -6)   
I'm going to try the peroxide next time I empty and see what it does. It's not like I can smell it unless I'm emptying, but the other day I was like whoa, it hit me like a brick wall... However it's not really any worse than changing a baby's diaper when I think about it. I just keep telling people when they ask me if it smells really bad that it's like baby poop. It seems to be the most popular question I've been asked since I got my ileo, between that and how do I fart lol
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

caringchezza
New Member


Date Joined Jul 2011
Total Posts : 3
   Posted 7/27/2011 6:02 PM (GMT -6)   
ive had my colostomy since i was born (40 years) like everyone ive had probs with smells but thats just through food that ive eaten the day b4. lucky i have a very supportive husband..i wear a 1 peice take off and throw away..i grew up with drainables which was the worst in my teenage years..but i know no differant..hope you find something that helps.. :)

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 7/27/2011 7:11 PM (GMT -6)   
The M9 drops work well for me.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 7/27/2011 7:14 PM (GMT -6)   
i use m9 too, works well
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 7/27/2011 7:58 PM (GMT -6)   
I'm a big fan of the hydrogen peroxide.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/27/2011 8:58 PM (GMT -6)   
How much hydrogen peroxide do you put in the pouch?
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/27/2011 9:06 PM (GMT -6)   
I keep it in a squeeze bottle and just squeeze a little in.... maybe a capfull?
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/27/2011 9:10 PM (GMT -6)   
Yeah, all you need is a capful of 3% hydrogen peroxide to cut the odor. I prefer Hollister M9 drops, because they don't make my pouch puff up with air, but hydrogen peroxide is a great deodorizer for the price.
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/28/2011 9:42 AM (GMT -6)   
My husband has an ileostomy and he empties frequently due to all the water he drinks....he pees a lot and empties while he is at it.
 
Except for a few weeks after surgery we find he has no really strong odor unless he eats fish it seems.  Might diet play a big role in odor I am assuming?
 
His last order we got the DEVROM tablets.  Have not tried them.  Got them so that he can be proactive and chew 2 of them (after or before dinner..not sure) when we know we will be at friend's house later and if he needs to empty which he usually does once a night when out it will eliminate or greatly reduce any odor.  Again depending on what he eats...but this way he won't have to be concerned about what he orders which is usually a fish item and if he needs to use the bathroom at a friend's house afterwards.

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/28/2011 12:29 PM (GMT -6)   
I tried the peroxide and while it does help the smell it does make me poufy too so maybe I'll try some M9 drops or those just a drop drops instead. I have been eating a fair amount of fish lately so that probably is a big contributor... I like stinky foods what can I say :)
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 7/28/2011 12:50 PM (GMT -6)   
Don't notice mine now, probably just used to it after all these years. However, if I eat something high in garlic then def notice it next day. I figure it is no worse than someone emptying their bowels normally and used to worry about it at work but then gone into one of the toilets and there was a lingering smell that I knew wasn't me as I hadn't emptied the bag yet so thought, well it's no worse than that so why am I worried. I just think we are more paranoid about the smell when most of the time we don't need to be. I have got the drops/spray you put into the bag after emptying and sometimes use them if going to someone's house I don't know well.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/28/2011 1:53 PM (GMT -6)   
Yeah that's mostly what it is. I'm worried if I am at someone's house or at work that people will think I'm the stinky kid you know? But really it isn't any worse than anyone else's and it kinda reminds me of baby poop to be honest. Either way I should be glad Opal is working right and just don't dawdle when I'm in there emptying lol
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 7/28/2011 3:53 PM (GMT -6)   
Hubby also reminded me....."remember those drops you bought...the ones you put a few in the toilet before you empty the pouch?"

I have bought so much stuff I forget...I'll have to have him try them and let me know what he thinks. It is in a small bottle and very concentrated...I think they are called Just A Drop and it activates when it comes in contact with the water to help over power any odor from the contents of the pouch.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/28/2011 7:53 PM (GMT -6)   
Yes those are what my friend suggested! You will have to let me know what your husband thinks and then I'll know if it's a good idea to try it. Someone from Convatech called today as I had emailed them about samples and I asked them if they had a product and they don't but he suggested vanilla in the bag... who knows I have some in the kitchen so why not at least try it. But I'm thinking I'll just have slightly vanilla scented poo...
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/28/2011 8:19 PM (GMT -6)   
I would be careful and make sure it's not the vanilla extract that's mostly alcohol. That sounds painful. Although, I've heard people say mouthwash too, and that can have alcohol too. I heard someone say tic tacs and tried those, but they didn't help much. I like the hydrogen peroxide mostly because it works better for me than anything else I tried (plus it's clear, so if I spill a little when I stumble into the bathroom in the middle of the night, it doesn't make a mess).

Vanilla is kind of expensive...... guess you could also try other extracts -- orange, peppermint, etc, kind of a poopourie (sorry, just couldn't stop myself :-))
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/28/2011 8:24 PM (GMT -6)   
Poopourri, I love it. Whatever I find that works that's what I'm calling it!
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/28/2011 9:04 PM (GMT -6)   
poopourri, good one! hahahaha tongue
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
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