fecal trnsplant

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 7/28/2011 5:16 PM (GMT -6)   
I just visited the UC forum. I heard of fecal transplant a while ago but did not know too much about it. People are doing the transplant AT HOME! DIY! Having good results. For me a dollar short and 5 years too late.
 
Dan

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/28/2011 7:12 PM (GMT -6)   
I think it's so cool that it is DIY -- no drug companies, no surgeons, etc (although, ideally you'd get lab work on the donor first -- my gi doc said as long as they didn't have HIV or Hep-C it was likely safe). Guess this is why research will be slow; who's going to fund it? Not to mention that it's really hard to get approval (my doc said no way the IRB at his hospital would let it through; he'd love to research it).

I was maybe a year too late..... wanted to do it, but I just kept getting these awful boils, and I was on antibiotics for them.... would have killed any benefits immediately, and then my immune system just kind of went crazy.....

Not sure what anyone really knows at this point, but I've read speculation that it works better earlier in the course of the disease. After seeing a picture of my colon, it's hard to believe that it would have helped me at that late date..... so maybe I was 5 yrs too late too.....

But I will keep following it..... wouldn't it be great if others could be spared what we've gone through? Even if things are good now....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/29/2011 12:33 PM (GMT -6)   
I remember reading about it before my surgery on these boards...I felt weird about it then and weird about it now. How can it be ok to put foreign POO in your own butt??? It just weirds me out. But it's interesting that it's working!
 
 
....either way, I'm so glad to have my ostomy and not have to worry about doing that kind of crap (no pun...) anymore .

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/29/2011 12:41 PM (GMT -6)   
It definitely sounds wrong.... but I think we forget that there's good stuff in a healthy person's poop. So, getting all that good bacteria is worth it. I will be very interested to follow the human microbe project to see what they find out.... there are ten times as many bacteria in the (intact) gut as cells in the body, and lots have not even been classified -- so we are made of bugs .... it's a paradigm shift from thinking that bacteria is all bad and we need to avoid them all....

But, I'm with you and glad to be done w/it all now.... but if a fecal transplant in 2005 or so could have spared me the years of being sick..... well, I'd actually have thought it was too gross to do then.......
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/29/2011 7:08 PM (GMT -6)   
Okay, this is the first I've heard of this, so let me see if I'm understanding correctly, people are inserting other people's poo into their rectum, and the good bacteria from their poo is helping people with Crohn's and UC achieve remission?
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/29/2011 7:36 PM (GMT -6)   
Correct. I can't remember how it works exactly, but I think it's something like it re-trains your digestive system on what mix of bacteria should be in there or soemthing to that effect. It's been years since I saw those posts so I don't really remember it...someone correct me if I'm wrong!!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 7/29/2011 8:58 PM (GMT -6)   
Ron and all
Go to the UC forum and read. It's not a joke. I would certainly have tried it.

I read where a person had bladder cancer and the bladder (urine) was removed. A bladder was grown in an animal and implanted in that person and it works. Sign me up for the first animal colon!!

Dan

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 7/29/2011 10:19 PM (GMT -6)   
Ron
If it was 2007 and fecal transplant was offered, tell me honestly.......would you have said NO?
I would have said yes to cow manure!!
Dan

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1251
   Posted 7/30/2011 3:32 AM (GMT -6)   
Knowing what I know now, I would opt for my my ileostomy (of course, that's with hindsight, knowing how good life can be with my ileo). If given the choice before surgery and being like anyone, scared of surgery, I may have chosen fecal transplant but, for me, that would be because I didn't know any better at the time.
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 7/30/2011 1:58 PM (GMT -6)   
     They were posting about fecal transplant before I had my surgery last year.  I ran the suggestion by my GI doctor and he looked at me like I had three heads.  However, he wasn't adverse to my trying Remicade and Humira, which failed miserably.  He was still gong ho on me giving Cimzia, Orensia and all the other biologics, a shot before resorting to my having surgery.  I suppose the biologics placed more coins in his pocket.  Needless to say, I quit him last year before I had the surgery.
     Not sure whether I would have sought out another GI who supported the idea of fecal transplant, but I was just disgusted of being prednisone dependent for two years straight and suffering with UP for twelve years.  I don't regret having surgery and a permanent ileo because I have my life back.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 7/30/2011 2:04 PM (GMT -6)   
It is a known treatment for c. diff and bacterial/infectious colitis but it is seen as experimental to use it on UC patients and most doctors will not assist. For c. diff, I believe it is an acceptable procedure that is performed in hospitals. I would do it in a heartbeat, yes it's yucky but it's not as yucky as some of the medications that we take. If one were to DIY, testing the donar is very important.
 
http://www.probiotictherapy.com.au/
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis & Migraines. Battling Extreme Exhaustion
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + Zantac (150mg) + Canasa (1g AM/PM)

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 7/30/2011 7:19 PM (GMT -6)   
Another name for the fecal transplant is Human Probiotic Infusion, which gets at the benefits..... I think it's kind of a good evolutionary thing that we're automatically revolted by poop, as it probably kept our ancestors alive.... but I so would have done this it I'd had the chance, once I got past the initial YUUUCCKKKK.

It is true, I took remicade for a year, and that was putting mouse cells in my body. Big yuck and scare factor there too.

A fellow who works w/my gi doc did one of these on an elderly woman w/c diff who was too frail for surgery .... she was better in an incredibly quick time, like a day or two....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 8/1/2011 2:53 AM (GMT -6)   
There is NO WAY I could ever imagine having someone else's poop inside me that revolts me!!!
ewwwwwwwwwwwwwwwwwwwww

I know its obviously done some good but just sounds so wrong in every way
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 9:14 PM (GMT -6)
There are a total of 2,973,058 posts in 326,053 threads.
View Active Threads


Who's Online
This forum has 160875 registered members. Please welcome our newest member, maeganmaegan.
369 Guest(s), 11 Registered Member(s) are currently online.  Details
maeganmaegan, ezhoe, Cowboy Jack, convertible68, The Dude Abides, Wotan, Mercy&Grace, Sara14, owleyes, Pratoman, CAdogsRus