I've just found this site and think it's brilliant - full of information and excellent advice! Hopefully someone out there just might be able to advise me on what to do next.
My story is pretty long and complicated but I'll try to keep it as brief as possible.
As a child I was diagnosed with what my doctor called a 'Lazy Bowel' and had to be given regular medication to keep things moving. My symptoms worsened over the years - pain/wind/bloating etc. and I was sent to a variety of consultants - from Gynae to endocrinilogy, surgeons to medical until I gave up and tried to control things myself, as best I could. After I had my 2 girls ( by C section)major gynae problems did occur and I was given a total hysterectomy at the age of 42.
My 'Lazy Bowel' got worse and for over a year I was in & out of hospital with undiagnosed abdominal pain and vomiting. The medical staff were getting really fed up with my admissions and just sent me home with more laxatives until I was taking 3 different types morning & night and still my bowels didn't move for 3 to 4 weeks!
Eventually, following numerous more tests, the consultant agreed that I had a serious motility problem with the colon and I had a sub total collectomy in April 2002. The following year was one of the best I'd ever had - I felt absolutely great and full of energy. Sadly it didn't last and I had my first op to remove & divide adhesions 14 months later.
Since then I've continued to be admitted to hospital with sub - acute small bowel obstructions and after 3 further surgeries to remove adhesions, anothr for the insertion of a gastric peg (went wrong, became infected so out it came again) and one for a duodenal bypass, I am no further on and still in pain and continue to be admitted to hospital for the obstructions and dehydration due to vomiting.
On the last 5 or 6 admissions it was noted that my bowel was compacted with waste and the bowel movements I was having and thought were normal was actually 'overflow' I've started giving myself phosphate enemas - excuse spelling -together with laxative drinks 3 times a day. At first things did improve a bit but I think my system has got used to the medication and has slowed down again.
I came out of hospital (again!!!) yesterday and feel so depressed - the consultant was very abrupt with me and said that there was no surgical or medical proceedures that could help my condition so I just have to live with it.
I really don't know what to do - I can't bear the thought of having to live the rest of my life like this (I'm now 54) My youngest daughter is 15 and she has never known me in good health. I can't work as I never know what each day brings so we've hardly any money.We can't go out as I'm usually sick after I eat. I just exist from day to day and have missed out on my children growing up. As for my marriage... my husband has stuck with me, looking after the girls, shopping & cooking. He's a wonderful man but unfortunately we're more like housemates rather than husband and wife.
Please, please if there's anyone who can give me some advice as to any treatmet there is to help me - I will be eternally grateful. I live in Scotland so some of your proceedures or medication might not be available in this country but I'll certainly check everyting out and if you have something in your country - I'll get a bank loan to go there!!!!
Sorry for such a long post - thanks for taking te time to read it!