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WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/30/2011 9:07 AM (GMT -6)   
I changed my appliance yesterday and I discovered two things. One Opal has shrunk a little she's now down from 7/8 of an inch to 3/4 and she's really not sticking out very far at all, hoping she doesn't retract. Two I think I'm allergic to the adhesive in Hollister products but they are the only ones I have :(
When I took my wafer off there is a perfect red circle all the way around my stoma where the seal is. Very raw and some of it bleeding. I put an eakin seal on first, in fact we wasted one because it got all bent out of shape funny...
On the upside I didn't have a leak of any sort under my wafer this time!
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 7/30/2011 10:28 AM (GMT -6)   
Maybe you are actually allergic to the Eakin (Which are made by Convatec) if the irritation is right under where that was but not under the whole wafer? Hollister makes a similar product called Adapt Rings.

I find it really interesting all the various diameters of our stomas. Mine seems fairly large at around 1 3/8 inches wide. I wonder, is it just the diameters of our small intestines that make such variations?
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Post Edited (Blueheron) : 7/30/2011 10:48:30 AM (GMT-6)


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/30/2011 10:32 AM (GMT -6)   
Hey, my surgery was July 5th and my stoma is shrinking at an incredible rate too. It is almost 7/8 inch now. I am praying that it stays 7/8 though because I still have some wafers left over that are 7/8 precut.

As far as the irritation, I also wonder if you are allergic to eakin seals????
End ileostomy due to colonic inertia and pelvic floor dysfunction.

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/30/2011 10:45 AM (GMT -6)   
I hadn't tried the eakin seals until last night as I had run out of the coloplast paste strips. At least I know the paste strips are working to keep things contained at any rate. My extra mural nurse came by just a little while ago and she suggested I use a Duoderm dressing under it if I have to change it between now and Tuesday when I can get in touch with my ET nurse(stupid holiday weekend). Because the only products I have here are the hollister ones aside from a convatec one piece the stoma nurse gave me but it's not convex and no belt loops and I find I need my belt at least. The only ones the drugstore I will be getting my products through has in stock are hollister products as well :( I'm wondering if I should have used something special on the area that was so irritated, I did put my stomahesive powder on though.
I'm hoping my Convatec samples come early next week. I still have to call Coloplast too. I had one of my nurses tell me that their products weren't very good but everyone is different so I may like them.
I think the size of our stomas all depends on the girth of our small intestines or so my surgeon said. Mine are child sized much like my head, I can wear kids hats lol I actually was looking at the pediatric ostomy supplies but since I have adult sized poop the bags would probably be too small :P They are much cuter though. However I'll stick with my plan to make some interesting covers for it for fun.
Also good news my butt wound seems to be finally slowing down with the drainage... such lovely topics lol. OH and I am wearing pyjama pants for the first time since my surgery!!!!!!!!!!!!!!!
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/30/2011 3:56 PM (GMT -6)   
Wonderturd, I think I've said before how similar I feel we are!

I use Hollister and had a reaction to it so I called them and switched to the wafer without tape. It's made of pectin so it's like a natural thing. That is an option if you are in fact allergic to the wafer and not to the eakin seal. Otherwise, like others have said, you can use the adapt seals that Hollister makes.

I used the mini (child size) pouches from Hollister for the first year of my ostomy, but then more recently switched to the big ones (they are too big..I'd like the 9 inch ones they have with the clip but they don't make them with velcro for some reason). They were fine but yeah, I did have to empty fairly often, which wasn't a prob because I have to pee every second. I also have a crazy small head and can only wear child hats! My stoma is small too, 7/8 and started out fine but now needs convexity.

Anyway, hope that helps, and hooray for your butt! :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 7/30/2011 5:16 PM (GMT -6)   
We are alot alike!
I'll be glad when Tuesday comes and everything is open again. I'm assuming the supply companies are closed for the holiday too but I'll try them Monday just in case they are open. I may just give Hollister a call and see what they would suggest. I never did get in touch with them after I came home. Every time they called me to see how I was getting along I was at the dr to have staples removed, took me three trips but now I can wear pants!
I'll be glad when the drainage from my rear slows and someone isn't coming to poke at it every day lol. They always ask me if I'd like to cover up a bit and it's like do you know how many people over the last ten years have been looking at my butt? I could care less now as I'm sure they've seen far worse...
On another interesting note today my poop has been a dark green color... but I didnt' eat anything green. I'm thinking it might be my iron supplements I take for anemia... I know I had it one other time but I had drank a blue gatorade :) I also cooked supper for myself for the first time since I came home. I've been a bit spoiled! I'm going to be a rebel later and have a few cheesies with my movie, I'm looking forward to them since I haven't really had any junk food since the operation.
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 7/30/2011 6:25 PM (GMT -6)   
I ate McDonalds on the way home from the hospital!! Good god. But I pretty much eat garbage all the time...I really need to do better!

Anyway, I know Iron can turn your stool a dark color, and also I have green output with blueberries.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)
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