Bladder Incontinence since sub-total colectomy; worse since ileostomy!

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Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 7/31/2011 3:49 PM (GMT -6)   
Before my sub-total colectomy (April 2009) I never had a problem with my bladder; I could drink 2 bottles of water and not have to urinate for hours!  Things changed after the sub-total; I started to have to urinate more often and sometimes there was some urgency but I could still "hold it" until I got to the bathroom.  Now, after an ileostomy (Nov. 2010) and an Ileostomy Revision (April 2011) I have to "pee" about 4 times an hour for the first 2-3 hours after I get up in the morning.  The real problem is that I can feel I have to go (slight urgency), I start heading to the bathroom and often urine is "leaking out" before I ever get there!  The doctors have no clue (of course) and this is really frustrating and depressing.  Do any of you have this problem?  They checked me for an infection; that is not the problem.  I had a hysterectomy when I was 31 yrs old and now i have no colon.  I am beginning to think I am just too empty inside to hold my bladder in the correct position.  I am so tired of living with all of these problems!  I get so discouraged.  Thanks in advanced for any suggestions.  I have one other kind of serious issue but I think I will ask about it later (otherwise too much all at once). 
Tracy, how are you doing now?  I know you were in the hospital for quite some time.  I sure hope you are doing better now.

Veteran Member

Date Joined Dec 2008
Total Posts : 1325
   Posted 8/2/2011 3:00 PM (GMT -6)   
Gilda, hi. Thanks for asking about me. I am healing slowly. It is very frustrating. I have a good day, then 2 bad days. It sucks. I usually heal very fast, but not this time.

My flush stoma is actually sticking out a little bit more as the swelling goes down. Me and my husband are praying that it continues to stick out more so that I never need a revision surgery. My stoma is also shrinking around and is now about 7/8 inch around. That is what my old stoma was and I am hoping it doesn't get smaller because I have a ton of precut wafers that are 7/8 inch.

As far as your bladder issues. It could be from over active bladder. You need to see a uro-gynecologist and have the bladder tests ran to see exactly what the problem is. I know they do have prescription drugs to treat an over active bladder.

Goodluck, Tracy
End ileostomy due to colonic inertia and pelvic floor dysfunction.

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 8/2/2011 4:36 PM (GMT -6)   
There are also non medicine things they can do for bladder incontinence, can't remember exactly what but read an article recently about it as lots of women suffer from it after childbirth and it said about new breakthroughs in treatment.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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