Oxycodone withdrawal headaches?

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Subzeromambo
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   Posted 8/2/2011 8:09 PM (GMT -6)   
I was on vicodin for two months, 2 gr of morphine an hour for two months and oxycodone for four months. When I stopped taking oxycodone I started getting 24 hour headaches. Extrastrenth Tylenol doesn't help. Is Excedrine safe for ostomates to take?
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

Another UC wife
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   Posted 8/3/2011 12:08 AM (GMT -6)   
Did you stop too abruptly - should you have tapered?

My husband was on a pain management regimine and tapered after surgery and in about 2 months or a bit less he was totally off the meds and by doing it that way he had no real ill effects.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Subzeromambo
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   Posted 8/3/2011 1:10 AM (GMT -6)   
Thank you for responding.

Yes, I did taper. The dose for the last two weeks was only 5 mg. The taper before that was based on my pain also tapering. Symptoms got worse after I posted. Symptoms today were left-sided headache with temporary loss of vision in my left eye and vomiting. Dr. called in rx for a migraine med and an anti-nausea med. Thank God they worked. He also had me put an ice pack behind my neck. I feel pretty normal now but it was scary for a while.
Stopping oxycodone was the only change in my meds. Dr. didn't think the reaction was from oxycodone withdrawal. Time for more blood tests tomorrow.
I hope I haven't developed a prediliction to migraines!

I also have a fungal skin infection under my flange and across my abdomen. I am taking a good multi-vitamin, watching my diet and avoiding perspiring situations. I am using nystatin with a wound barrier over it on my skin.

I am trying hard not to feel discouraged. I didn't want an ileo but it is what it is. I have accepted it and I am glad to be alive. I just wish the recovery was less surprising. Lol. :)
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

Another UC wife
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Total Posts : 2111
   Posted 8/3/2011 7:06 AM (GMT -6)   
Hubby had his surgery 7 months ago and we are having skin issues too. That was one of the big reasons I was disappointed that the ileo was permanent and he was unable to have the j-pouch as he has sensitive skin. Even if the pouch could have been performed it really sounds like he would have had a lot of strikes against him due to his anatomy and condition of what the Dr would have had to work with.

He has tried two different systems and got used to both and liked them both. We have some coloplast samples and will try them next.

Overall things are going well - I would just like to see his skin not have the redness it has in the upper area and one side.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Subzeromambo
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   Posted 8/3/2011 12:07 PM (GMT -6)   
Does he have just redness or blisters? Mine are dozens of itchy blisters. The Nystatin is a godsend. It stops the itching right away.

Another UC wife
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   Posted 8/3/2011 4:23 PM (GMT -6)   
Just redness - no blisters or weeping and no itching. It is the top area and extending to about 9 o'clock area of the wafer and the remainder of the skin is good. A little redness here and there but not concentrated. His dermatologist catergorized it as a dermatitis and reaction to the adhesive portion of the wafer as it is not where the pectin area is. He does have a prescription cream but of course it can't be used under the wafer.

I believe there is a gel we should get a prescription for as that will dry and not affect the adherance of the wafer.

However she did say that it will keep returning even if you clear it up since his body doesn't like the bandage part of the wafer which is what also happened with the hollister one. As I said the all pectin wafer was not comfortable for him at all and did not hold up.

He isn't as nearly concerned about it as I am. We will keep experimenting and ultimately we should find something that is "THE ONE" for him. That was why I was hoping ultimately he would be a good candidate for the j-pouch. But of course that isn't a guarantee either.

Really can't complain...life is so much better overall and he is out of pain and so happy to be back among the living and we will work through this eventually. Just a minor inconvenience.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Subzeromambo
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   Posted 8/3/2011 6:24 PM (GMT -6)   
I am glad the redness doesn't seem to bother your husband.
Surgeon and pcp have put me back on oxycodone.

Another UC wife
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   Posted 8/3/2011 10:32 PM (GMT -6)   
sorry you need to go back on the oxy....hopefully it will get you back to a comfortable level and then deal with getting back off it later when it is better timimg

(as I said Hubby isn't concerned but I want to get his skin back to a better normal situation as I wouldn't want this to turn worse which can happen quickly too)
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Subzeromambo
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   Posted 8/3/2011 11:41 PM (GMT -6)   
Thank you for your kind thoughts. Your signature indicated your husband had "Dependence on pain meds" before his surgery. The doctors tell me that it is not unusual for me to still be in pain but it seems like a long time to still be in pain after surgery. I am worried about becoming addicted to oxycodone. Somehow I don't think you meant addiction by "Dependence on pain meds." Am I correct?
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

stripey
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   Posted 8/5/2011 4:25 PM (GMT -6)   
As far as I was aware both tramadol and oxycodone are both work as opioid painkillers and so tramadol could have same withdrawal effects as the oxycodone.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

stripey
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   Posted 8/6/2011 10:50 AM (GMT -6)   
It works on the same opioid pain receptors and can also have withdrawal and dependancy issues. That's what it says is the info I had with mine years ago.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Another UC wife
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   Posted 8/7/2011 8:31 AM (GMT -6)   
Sorry -- I didn't see the earlier post.
 
Dependence for the last 2 years of his UC before surgery he was on pain meds so he could cope, function and get through the day.  Now in his case it wasn't like he was "addicted" per se but it got to the point that the medication needed to be increased as he was having breakthrough pain.  He went monthly to his pain management specialist and had random drug testing done per the Federal rules this Dr. followed and closely monitored.
 
It got to the point between pain meds and all the other meds and things just not improving and his poor quality of life it was time for the surgery.
 
Right after the surgery the change was dramatic.  However he did need to be weaned off the meds and did so and was totally off within 2 months.  So although I was quite concerned and thought it would be a long drawn out process once he was out of pain he was able to taper very well.  So yes he was dependant on them while ill and in pain...once he was out of the pain fortunately for him he was able to get off them with no ill effects or withdrawal type problems.  Even his pain management Dr was impressed and pleased he did so well so quickly.

Subzeromambo
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Date Joined Sep 2009
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   Posted 8/8/2011 1:37 AM (GMT -6)   
Another UC wife,
Thank you for the explanation. At this point, I am just taking it a day at a time. If the pain hasn't stopped or at least decreased by the end of August, I am going to get a second opinion on what is causing the pain.
My surgeon said it could be due to my intestine breaking into small pieces and my body having 12-1/2 hours of toxins eating through tissue before I had surgery. He suggested it may take me a longer time than usual to heal. On the other hand, he sometimes suggests that I may just have to find ways to live with the pain on a long term basis. I feel pretty confused about the whole thing.
It is what it is and I will do my best to make the most of each day. Oxycodone helps, heat helps, and, hopefully, time will heal whatever is causing the pain.
I am very glad your husband is doing so well!
Szm

Subzeromambo
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   Posted 8/8/2011 1:56 AM (GMT -6)   
Dear Ron and Stripey,
According to nimh and my pharmacist, Tramadol has more severe withdrawal symptoms than Oxycodone. The most severe is seizures which I have already experienced from a drug reaction. Definitely not something I want to risk again. I really appreciate the suggestion though.
Szm

Another UC wife
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Date Joined Jun 2007
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   Posted 8/8/2011 7:21 AM (GMT -6)   
My husband's pain regimine was a Fentanyl patch 50mcgs along with a small blue morphine pill. That morphine pill ended up becoming a drug shortage and we were at our wits end trying to get it for a period of time and he was switched to the oxycodone.

At his highest point he was on a Fentanyl 75mcg patch every 3 days, 4 oxycodone per day (10mg) and 4 gaba pentin (400 mg ea). That combination worked for awhile and when those increases started to show signs of not being enough is when he had had enough and surgery was decided upon.

I suppose even with the above scenario his decision was still made at a point in time where it was more elective and he did not succumb to some of the extenuating circumstances you did and others which ultimately impeded your recovery process which is why you are still in pain. Very sorry that you and NascarRon are still dealing with such difficult after effects when it is hoped that the surgery would finally make you feel a lot better.

Hoping time will lessen and eliminate your problem soon Sub and I hope Ron when he relocates finds a Dr at the Cleveland Clinic who can figure his problem out too.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

stripey
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   Posted 8/8/2011 1:38 PM (GMT -6)   
szm, that is why I said that tramadol wasn't a good idea due to the addiction and side effects from withdrawal. You would just be replacing one problem with another. I used to only take it maybe once or twice a month for my neck injury but since I developed the nerve problem side effect from the Humira I take it once a day when I get to work and it allows me to be at work.
 
I try not to take it at weekends to give myself a break. I'm lucky that haven't had seizures but then the info does say that it shouldn't be prescribed to people with history of seizures due to reason it can increase them.
 
Hopefully the Humira side effects will go away as I have now stopped it but am well aware that they could be permanant, should know by end of September when it is fully out of system. If they are permanant then will be ref on to sort out some proper nerve block medication. At moment taking 30mg of amitriptalyne (spelling?) at night which helps with the pain at night.
 
Hope you sort your pain problems out and are pain free soon.

Subzeromambo
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Date Joined Sep 2009
Total Posts : 1143
   Posted 8/9/2011 8:44 PM (GMT -6)   
Stripey,
I am feeling very upbeat today. Yesterday I had a whole day without pain!
I am glad the Tramadol works for you. My research showed that seizures from Tramadol were very rare. I hope your side effects from Humira go away soon.
All the best,
Szm

stripey
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Date Joined Feb 2011
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   Posted 8/10/2011 9:44 AM (GMT -6)   
Glad you had a good day and hope they continue. Should know about my side effects being permanent by end of September. If they go by then it is good news, if they are still around well have to work through that to find the correct nerve block medication that suits me. These things happen, it's how we deal with them that is important. So it is just something to accept and find ways of getting it to fit into my life, I'm stubborn as hell so it has to fit in my life and not the other way round. :)
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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