Was kinda hopping for a little better news. My surgeon said 6 to 8 times I would have to empty. What do they know they only do the surgery, they don't have to live with it.
My surgeon said the same thing Golfnut, as far as I'm aware that is the average norm once things are settled. I'm 4 months post surgery (exactly to the day!) and, like you - have been constantly struggling with a high output. I empty about
10 times a day, sometimes more, sometimes less if its a good day. I've had 2 hospital admissions of 4 - 5 days each since as a result of this causing dehydration etc. I try to have as much 'stodge' in my diet as poss but sometimes struggle to keep up with this.
Ironmum - you say that a loop ileo usually has a faster, more liquidy output - do you know why this is?!
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to nearly all meds tried. Also dx with IBS. Proctocolectomy+pouch surgery with temp loop ileostomy 9th April 11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron