Hi! Im new to this site but I've been trying to get some answers to my questions by reading lots of the threads so thought it would be better to just register and ask!
I had an emergency ileostomy in June this year. It came as a huge shock and I'd been in hospital in unbearable pain for over 2 weeks before they finally did anything for me - my original consultant even said the pain was all in my head???!!! Thankfully he passed me onto a colorectal surgeon who diagnosed my problem or I wouldn't be here to tell the tale.
In surgery they removed a big section of my large bowel which was gangrenous as it was being strangled by a piece of mesh which had come loose following earlier surgery in May 2010. They also created a stoma.
I am coping reasonably well with my stoma, however I am desperate for the reversal. I don't feel well enough to be out and about like I used to be yet, but even if I was I am really nervous about my bag. On the few occasions I've been out it seems to baloon immediately and I feel really uncomfortable.
I can't get to see my consultant yet and I'm curious as to what he will do to reverse my ileostomy and if he'll go through the original cut down my belly.
I also have a condition which affects my connective tissue called Ehlers Danlos. Before they took me into surgery, they were unsure what was causing my problem but thought it was something to do with my surgery using mesh to repair damage caused by my Ehlers Danlos and even thought that as my underlying condition affects my tissues so badly that my ileostomy would have to be permanent. I'm delighted to say that it isn't and I'm now waiting to see my consultant to find out when it can be done. The sooner the better as far as I'm concerned.
Any help or advice would be much appreciated and I'd especially like to hear from anyone who has Ehlers Danlos and had a reversal. Thank you all so much x