Surgery options

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ep49
Regular Member


Date Joined Apr 2010
Total Posts : 200
   Posted 8/7/2011 3:01 PM (GMT -6)   
Has anyone had robotic or laproscopic surgery for a proctocolectomy with ileostomy?  I have been told I should have surgery and am looking at my options.  Also, if so, and if anyone knows where the procedures are done, that information would be very helpful.  I live in the Seattle area.  Thanks.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/7/2011 5:14 PM (GMT -6)   
I had a laproscopic proctocolectomy and permanent ileo at Mass General in Boston. I'm having trouble w/the butt wound healing, but that's not related to the type of incision. On my abdomen, I have four little tiny scars from the surgery (one is in my belly button). From what I've read here, my abdominal healing was way easier than a lot of people's.

The down side to a laproscopic surgery is that it takes longer -- I was under for ten hours. So, there are more issues with effects of the anesthesia, and it's not always recommended if people are elderly or have reasons why the risk of the extra anesthesia is not worth it.

It is pretty amazing, though -- my surgeon took my colon out through the hole that eventually became my stoma.

I don't know much about what other hospitals or surgeons do this procedure. You definitely want someone experienced who knows what they're doing.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 8/7/2011 7:15 PM (GMT -6)   
I had it done at Florida Hospital.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 8/8/2011 9:47 PM (GMT -6)   
blueglass, I was wondering where they took out the colon! It certainly wasn't out my belly button lol :) I had lapro in NC.
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 8/10/2011 7:10 AM (GMT -6)   
All my surgeries including proctocolectomy was done laproscopic and yes the butt wound did take some time healing with me as well but its now been 2 years since I had it done and its great. So much better to have lapro surgery. As for hospitals I can't comment on that since I'm in Australia. All the best and take care
Doreen

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 8/10/2011 10:03 AM (GMT -6)   
I have open surgeries for all mine as when had it first done 20 years ago lapro wasn't available in UK and would never have thought to ask. The scars don't bother me, I have a couple of tattoos on my stomach which I had after first two surgeries and so my surgeon has very kindly cut round them even though that makes it harder for him rather than cut right through one of them above my belly button (well what is left of it as has been cut through 5 times now).
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Golfnut50
New Member


Date Joined Aug 2011
Total Posts : 19
   Posted 8/10/2011 10:37 AM (GMT -6)   
Mine was a laproscopic. Took know time at all to heal. My back side is a different story. That took nine months to close up.

Did mine in Hartford Connecticut...........
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