Colonic Inertia

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New Member

Date Joined Aug 2011
Total Posts : 1
   Posted 8/9/2011 7:34 PM (GMT -6)   
I just found out today that, this is my diagnonsis. I have heard such good stories about Cleveland Clinic, I am still in shock and so very really scared. I guess I never thought I would ever have to face such a thing.  Cleveland clinic is about a 5 hour drive from where I live in Michigan. My Husband is in a different country working, we can't afford for him to come home. But, I really feel this is the best of the best options for me, for care and skill. I just don't want to inconvience my family to go that far for my surgery.  Scared, worried, and feel like I am a pain in the butt. shakehead

Veteran Member

Date Joined Oct 2010
Total Posts : 776
   Posted 8/10/2011 5:13 AM (GMT -6)   
Hi Stenderwife.. I'm in the UK so dont' know much about the Cleveland Clinic, but have heard very good things. I'm sorry to hear your diagnosis, but having suffered myself I totally empathise with how miserable it is. Surgery is probably the answer - whether that be for a total colectomy, j pouch or ileostomy. I feel like a million dollars since I had my surgery and am so grateful for my permanent ileo.

All I'd say is that you need to get the best surgeons and the best care and if that means travelling 5 hours then so be it. It's likely you'd only be in hospital a few days and in the long run it's totally worth it. This is something that will affect you for the rest of your life and you need to be sure you've got the best hands on it!

I understand you're scared - I was too. But now on the other side, I'm so happy I made the decision and you will be too. Take care Sarah x
Sarah - 39 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp loop ileostomy
October 2010 - Ileostomy reversal - but didn't go well and after 10 months diagnosed colonic dysmotility due to surgery/nerve damage
July 2011 - Permanent end Ileostomy
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