Good luck to Rachel!! I will be thinking about you both during her procedure. I just had my take-down on July 28 so I'm not too far along in the recovery process, but can tell you what I've experienced so far. I had very little pain. The gas pain that I had was all over my body. It was uncomfortable, but tolerable. My biggest recommendation when in the hospital is to WALK WALK WALK. That will help move the gas along. I took pain medicine occasionally, but not constantly. When I had my bag, I had to dump it a couple times during the night. I had the 3 steps and after the j-pouch surgery, I had difficulty with things moving through me too quickly. I took Lomotil and Metamucil to slow things down. After this surgery, I've had the same problem. I'm now taking Lomotil, Metamucil, and Imodium. I was in the hospital 5 days and once I got home, my bm's picked up speed. I was going around 40x daily. Now I'm down to under 20. I have a lot of spasming in my rectum which is probably the most painful part. I do have some gas pains, but the Imodium helps to move the gas along (I've also tried Gas-x which helps). The muscles in my bottom are sore, and when I stand up it's as if things go straight down to my rectum and I have to poop immediately. I'm going for a check-up this week so I'm hoping they can give me more tips for what to do. It's been 2.5 weeks since surgery and I'm still not eating too well. I'm not hungry. I was told that it will take a while to get my appetite back. In the meantime, I've lost some weight - probably about 10 pounds with this surgery. I'm little to begin with so 95 pounds is not great. I can't put the weight back on because the calories don't stay in me long enough since everything shoots right through. I've had a hard time adjusting. I hated the ostomy bag, but at this point, I'm still wishing I had it. I've only left the house a few times since getting home from the hospital. I wear Depends all the time because I occasionally have accidents. Sometimes I think I just need to pass gas and it's not. I recommend wipes and butt creams (Desitin, SensiCare, etc). I don't want this to scare you because everyone recovers differently. I have done pretty well, just have been going to the bathroom probably more than most people with the reversal. I've been told it may take some time for my body to readjust, but it will get there. This surgery was by far the easiest of the 3!! I'll be praying for you both during her time of surgery and recovery!! Best wishes!
25 year old female
-October 2007 Crohn's diagnosis
-Tried Asacol, Lialda, Remicade (anaphylaxis during 5th infusion), 6mp (liver toxicity), Imuran, Cimzia, suppositories, enemas, and Prednisone
-June 2010 Multiple Blood Clots (DVT, PE, portal vein clots)
-October 2010 Emergency Total Colectomy - diagnosis changed to Ulcerative Colitis
-May 2011 J-pouch surgery
-July 2011 Ileostomy Reversal