JUST A QUESTION FOR ILEOSTOMATES

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esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 8/10/2011 5:55 PM (GMT -6)   
Hi all,

Am trying some new foods and just wondered. Does more normal food like a sandwich and a glass of milk travel faster through you than gushier foods like yogurt, hot cereal, and more liquidy things?

Just curious.

Maybe nobody else is into gushy food, but it just seems like that does not travel very fast.

Rosemary

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 300
   Posted 8/10/2011 7:00 PM (GMT -6)   
I found that yogurt helped to ensure that things didn't shoot through, so I had one first thing in the morning and one just before bed. I ate cream of wheat and that seemed to stay pretty well too. Milk and a sandwich were a little faster, but not too much. Since I was pretty severely underweight and quite anemic when I had my initial surgery, I had to eat a lot before I got my ileostomy reversed. By the way, the bread I ate was plain old white bread. I tried buttermilk bread and boy, did that cause a lot of gas. I was too nervous while I had the ostomy to try wheat bread, which I much prefer to white.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/11/2011 7:31 AM (GMT -6)   
I buy the white bread for hubby as I know that is better. I get the wheat for me but I'm always throwing away bread so I find myself eating the white bread myself.

Love yogurt and try to get him to eat it more often. Didn't realize it can help slow things a bit. I will have to mention that to him.

However in the past 7 months since the surgery, he finds looser is better even though he probably empties more often. If output is too thick and slow and pancakes is the couple of times he has had problems. He drinks a lot of water and hasn't had any signs of dehydrating and it has been the hottest summer here in Florida since we moved here 9 years ago.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/11/2011 8:00 PM (GMT -6)   
For breakfast today I had cream of wheat cereal AND yogurt. That stuff slowed me incredibly. I had to eat a bunch of sweet stuff I did not really want to make it pass even though I had drunk lots of water. Cannot believe this. I liked it better when my ileo was new and stuff just shot through me. Glad it all came out. Whew!

Rosemary

arpwf
New Member


Date Joined Aug 2011
Total Posts : 5
   Posted 8/14/2011 2:19 PM (GMT -6)   
Hello,

I'm 9 days post-op total colon removal. I don't have an apetite. When will it come back and when will foods taste normal and not like bile?

Thanks

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/14/2011 2:53 PM (GMT -6)   
I don't know. My case was sooooo different. I sustained a serious gut injury and was unable to eat for almost a year, during that time my appetite basically shut off. I was REALLY lucky to find a doc to save me by doing the lysis of adhesions and ileostomy, and am VERY thankful that so far, I CAN eat. But my normal appetite never did return.

Those who came to losing colons or the use of their colon in a more "normal" way may want to chime in. I think most of them have appetites that return in a few months. You are so new post-op. I hope all goes well for you. Eat gushy foods, drink a lot slowly, and don't rush things.

Rosemary

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 8/14/2011 3:49 PM (GMT -6)   
I never lost my appetite unless the Crohn's is flaring so difficult to answer that.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, azathioprine, codeine, immodium, simethicone.

Lovetoski
Regular Member


Date Joined Jul 2011
Total Posts : 128
   Posted 8/15/2011 2:22 AM (GMT -6)   
I haven't got that much experience yet. But last week I ran out of sweetener for my coffee/tea and just sugar instead and boy that made a difference, had to empty my bag every 30 min - 1h and 3 times during the night. Got some more sweetener on Saturday and back to normal. The only thing I noticed since my surgery is that my chocolate cravyings are gone. I had no chocolate bar in a month now, I guess my energy levels are restored.
What I do though is when my bag is a bit yucky when the output is thicker, I drink a cup of coffee which will flush it through within 15 min. Now I can understand why coffee is used as enemas.
38 yr female living in the UK, originally from Austria
diagnosed in 2002 with Crohns which has since spread throughout the large colon and to the rectum; meds: Pentasa and optional Pred until Aug 2008; now on Humira, temp ileostomy on 7/19

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/15/2011 9:42 AM (GMT -6)   
Lovetoski,

My chocolate cravings are more and if I eat a LOT of it, I have serious chocolate diarrhea. It is awful. So if those cravings come back, then go easy on the choco.

What type of non-diarrhea sweetner do you normally use?

Welcome to the forum. Lots of good help here. Best wishes to you.

Rosemary
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