Drinking with Ileostomy

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Newone
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Date Joined Apr 2011
Total Posts : 58
   Posted 8/11/2011 6:40 AM (GMT -6)   
Hey Everyone

This may sound like a weird question but i was just wondering if it's safe to get drunk while having an Ileostomy. And what risks if any there are or what precautions i have to take. I have had crohns disease for 13 years (when i was 15 I got it) and when i turned 19 for about 2 years I drank pretty heavy. Im a light weight though so heavy is probably the wrong word. But i did drink fairly often. For the past 5-6 years i really havent been drinking too much because it would hurt my stomach at times and i know that drinking with crohn's is a little bit bad. Im kinda craving lately to get drunk. like not some casual drink here or there but full blown drunk! lol. Im really short and not very heavy so it really wont take much to get me feeling pretty good but ever since surgery i was kinda wondering about it. I see my surgeon on the 15th and i plan on asking him about it as well but any feedback would be helpful.

Thanks guys! You rock <3

andorable
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Date Joined Jun 2005
Total Posts : 981
   Posted 8/11/2011 6:55 AM (GMT -6)   
Hi Newone
As you well know drinking with any kind of medical condition is not a great idea but I must admit I do like to have a drink at times and have become intoxicated on a couple of occasions since I had my ileostomy and its not pleasant as my bag filled up so fast with fluid and I was emptying heaps, so thats not fun. But besides that we do need to keep up our fluids and alcohol dehydrates you fast so if you plan on drinking I would strongly suggest drinking lots of water between drinks as well to help keep you hydrated. I do understand your young and want to party like many your age, but you do have to be careful as well. Its really up to you but please be careful not to overdo it too much. I still have a drink of wine at times and do enjoy it. Take care and hope I helped
Doreen

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 8/11/2011 8:25 AM (GMT -6)   
Good advice about the water as we tend to forget that alcohol is dehydrating.

Having a few drinks to the point of "feeling good" on occasion I guess would be ok. But, I would imagine you never want to get so "fall down drunk" and maybe get sick and be throwing up in the process. That would not be good at all and really help to dehydrate.

And don't forget when you're drunk you still have to tend to the emptying of the pouch which could make for some interesting (embarrassing) situations possibly????

Definitely have your good times ... just find the right balance. Been there done that and I find hubby and I always had a great time if we drank just enough that it added to the festivities. However we are both very social, happy interactive people with or without alcohol. Thinking back though... We definitely drank more when we were younger than now.

And of course always have a designated driver if out and about. Funny when we were young the emphasis was nowhere near what it is today and certainly should have been and it wasn't that uncommon to have a few drinks and drive. How wrong that was.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/11/2011 11:24 AM (GMT -6)   
Check out summerstorms recent experience =)

http://www.healingwell.com/community/default.aspx?f=33&m=2184043

PS: ok to drink, not ok to drink and drive. emptying after drinking, that could get tricky!! :)

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 8/11/2011 1:17 PM (GMT -6)   
Agree with ucfree about the emptying whilst drunk, coordination goes to pot. Drinking is fine, well hasn't ever bothered me and I've done the whole range from a couple of drinks to the whole falling down drunk and hanging onto the bed to stop myself falling off and as my husband has so kindly reminded me - pouring myself out of passenger side of car, crawling around car on a gravel driveway to front door and then crawling upstairs on all fours. Yep, been there, done it and had the hangover!

I've have calmed down now I am older and wiser and now make sure i keep my drinking balanced, always have one in each hand :)
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 8/11/2011 6:53 PM (GMT -6)   
You can definitely drink, but just be aware it might take you A LOT LESS drinks to get drunk because of the dehydration issue, so don't overdo it!

It is a little challenging to empty; just be aware and be careful. :) Also my pouch fills up pretty quick when I drink, just fyi. But have fun!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Newone
Regular Member


Date Joined Apr 2011
Total Posts : 58
   Posted 8/12/2011 3:38 AM (GMT -6)   
Wow thank you for all the wonderful posts. I kind of thought that the dehydration thing would be an issue. tbh i dont drink nearly as enough as i should even now so i'd have to be really cautious a bout drinking it while drinking. And tbh... this may make me totally lame I would have drunk at least for the first time at home with friends or by myself just to see how i would handle it with the ileo and emptying and such. Ive never been a fan of drinking so much that im falling down but it has happened a few times in my life. LOL not very proud of it.

You guys are so great. Reading this forum has helped me a tonne. <3 Such awesome and nice ppl. Thank you so much!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/12/2011 11:20 AM (GMT -6)   
I think my problem recently had more to do with the accidnetal paint high.
Anyway I get falling down drunk often, and almost always make myself throw up, I justdrink lie 2 bottles of water afterwards.
Take some immodium and gasx before you start drinking, it will slow the output, then take some more a while laterr. I didn drink before surgery, so I can compare it.
Make sure you have a driver of course. Although I usually only drink while I'm at home,, its very bad to take drunk me around other people :-).
Anyway, have fun and just remember to drink water! And be very careful when emptying!

Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 8/12/2011 1:11 PM (GMT -6)   
This is funny! nice to read a light hearted thread for a change. I'm such a lightweight when it comes to alcohol now.. half a glass of wine mixed with WATER and I'm feeling wobbly. Rubbish. Also suffer from the rapid filling bag! It's better than when I was taking that nasty Resolor though - that just made me puke and gave me a huge headache.

Newone - if you're anything like me it won't take much to get rolling drunk lol! :-) at least I'm a cheap date.

Think I need to give it some serious work and determined effort. Have a fun weekend everyone x
Sarah - 39 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp loop ileostomy
October 2010 - Ileostomy reversal - but didn't go well and after 10 months diagnosed colonic dysmotility due to surgery/nerve damage
July 2011 - Permanent end Ileostomy

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 8/12/2011 4:58 PM (GMT -6)   
I call it EWI...emptying while intoxicated skull

You will probably want to find the type of drink that works best for you...I cannot drink wine anymore~hangovers start with one sip shocked and mixed drinks make for a lot of output shocked shocked so I stick with beer smilewinkgrin I know how many I can have before I get that awful dehydrated feeling so I judge it that way. Water in between is key for ileostomates which has already been covered!!

I didn't drink for more than 10 years while sick/on awful medication and just like eating food now, I don't deny myself anything, just everything in moderation.

Go have fun and enjoy yourself...we all know it is deserved!!

oh, ps, if you are still on meds I wouldn't recommend it but if you are off them, go for it:):)
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Newone
Regular Member


Date Joined Apr 2011
Total Posts : 58
   Posted 8/13/2011 5:31 AM (GMT -6)   
Summer... would taking immodium with aldohol be a bad idea? I'm paranoid when it comes to that stuff.

Equestrian Mom... I am still on medication. 150mg of Imuran a day and a shot of Humira once a week. so yeah it probably wouldnt be that great of an idea. I used to drink quite a bit on imuran though. And my brother drinks a little and he takes imuran as well (my brother has crohn's too :/) but i will definately be asking my doctor on Monday. Because i miss it soooo much! lol Even if its just one time i would be happy :D

Newone
Regular Member


Date Joined Apr 2011
Total Posts : 58
   Posted 8/13/2011 5:31 AM (GMT -6)   
Summer... would taking immodium with aldohol be a bad idea? I'm paranoid when it comes to that stuff.

Equestrian Mom... I am still on medication. 150mg of Imuran a day and a shot of Humira once a week. so yeah it probably wouldnt be that great of an idea. I used to drink quite a bit on imuran though. And my brother drinks a little and he takes imuran as well (my brother has crohn's too :/) but i will definately be asking my doctor on Monday. Because i miss it soooo much! lol Even if its just one time i would be happy :D

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 8/13/2011 8:49 AM (GMT -6)   
Newone, I was until recently on Humira and still had a drink and my GI said it wasn't a problem and am on azathioprine and have drank whilst on that, not often as takes a lot to get me drunk and can be sober again in 45 mins so bit of a waste of money :)

Also I take immodium as well and it is fine with alcohol, well it is with me - maybe my insides as so messed up they've become immune to what I chuck down my neck. Oh, but I do stick to vodka based drinks as for some reason can't tolerate wine - I'm plastered after half a glass and fall over but vodka, no problems.

My GI says enjoy in moderation (has to say that as can't really condone going on a bender!) as recently for the nerve pain I would have glass of vodka liqueur each night before bed and he said that would do me no harm. Now hopefully though getting pain under control as have been given fentanyl patches to try so giving those a go.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/13/2011 1:23 PM (GMT -6)   
It hasn't caused a problem for me so far.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 8/13/2011 2:33 PM (GMT -6)   
Another uc wife
Does it kinda scare you when you think about all the times that you drove when you had too much to drink when you were young? I am 67 and know better now. Lucky to even live through those young years.

As for drinking, I love cranberry/blackberry juice, but not straight. I thin it heavily with blackberry brandy. I play ping-pong against myself most evenings. Handily my bar is right next to where I stand. It is best if I can blimb the stairs to bed, but we have one downstairs with my p-p table.

Newone
You need to know yor alcohol limit.....and hope you don't get drunk befory you get to it!!

Dan
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