Surgery is on hold for now

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Mum to Five
New Member

Date Joined Jul 2011
Total Posts : 19
   Posted 8/13/2011 9:50 AM (GMT -6)   
Hi all!   I hope you're having a great weekend!    My surgery was supposed to be Monday.   (I had a colectomy last year and this year they found atypical cells in my rectum.   So I'm opting for having the whole thing out and getting a permanent ileostomy.)   Well, I had my yearly CT scan last week and it showed two spots on my liver.    Both my oncologist and my surgeon say it could be nothing, but they have to do biopsies to make sure.    I had one spot last year, and they said that was likely from the surgery.   But now they are seeing two spots.   confused    I'm nervous, but really trying to not freak out about it.   And I'm oddly disappointed because I was really looking forward to just getting this surgery over with and getting on with my life.   But, it seems like with all things medical it's hurry up and wait.  
If you could say a prayer that all goes well and that there is NO cancer, I'd be forever grateful.   Thanks!

Veteran Member

Date Joined Feb 2011
Total Posts : 4540
   Posted 8/13/2011 10:05 AM (GMT -6)   
Prayers to you!! Think positive thoughts...It will all be okay! I have had these scares a few times and it always turns out to be nothing. :)
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 8/13/2011 10:21 AM (GMT -6)   
You got it Jen ....prayers and hugs. Hoping everything turns out ok and they got you worrying for nothing.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Regular Member

Date Joined Oct 2010
Total Posts : 286
   Posted 8/13/2011 9:15 PM (GMT -6)   
Prayers for you, Jen! I know you must be bummed about not being able to keep to your timeline that you had planned out...but it is so great that they caught the spots early. Even though they are probably nothing, catching stuff like that early is always a good thing. What is their plan, to do the biopsies and then the surgery? It sounds like you are definitely in good hands...please be sure to keep us posted!
I will be sending prayers and good thoughts your way :)

Regular Member

Date Joined Apr 2011
Total Posts : 463
   Posted 8/14/2011 12:27 AM (GMT -6)   
Mum to five,

Hello, this is Serenitee, mom of 7. Sorry that you are going thru so much, you will be in my thoughts & prayers.
Hugz & smiles sent your way.

Your Healingwell Friend,

New Member

Date Joined Aug 2011
Total Posts : 14
   Posted 8/14/2011 6:23 AM (GMT -6)   
  Will do Jen.  Hang in there!  Everything will work out!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 8/14/2011 12:58 PM (GMT -6)   
Praying for you, Jen, that it turns out to be nothing and you can be re-scheduled for surgery soon. Also for peace as you await the biopsy results.

Hugs, Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Mum to Five
New Member

Date Joined Jul 2011
Total Posts : 19
   Posted 8/16/2011 6:50 PM (GMT -6)   
Yes, the plan is biopsy, then reschedule the surgery. I'm going nuts waiting by the phone for the hospital to schedule the biopsies! The nurse told me last week that she'd call Friday. No call. So I called her late yesterday afternoon. She hadn't heard anything yet, so I'm still waiting. Argh! I've never been what you'd describe as a patient person.


Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 8/16/2011 7:06 PM (GMT -6)   
Good luck Jen, Rosemary

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 8/18/2011 8:23 AM (GMT -6)   
I hate how they keep people waiting around for something that is that stressful to be patient about. I went through a scare with a breast lump years ago and it seemed like an eternity to get everything scheduled and done and it was all I could think about while it was going on. I'm so sorry you are going through this.

Sending peace of mind and healthy body vibes to you. Hope you get the good news you need quickly so you can move on and get back to living your life! :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD

Mum to Five
New Member

Date Joined Jul 2011
Total Posts : 19
   Posted 8/24/2011 9:22 AM (GMT -6)   
I finally had my biopsy Monday! That was loads of fun. (Yeah, okay, not so much.) They did give me Fentanyl, so it was mostly painless while it was happening. Afterwards I was pretty sore. That's mostly gone away now. I see my oncologist tomorrow to get the results. One good thing, whatever the results are, the two spots are very small. That didn't make the biopsy much fun since the doc had to move the guide needle alot, but if it's cancer, at least it's small!
Thanks to everyone for the prayers and kind words!


Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 8/24/2011 9:52 AM (GMT -6)   
So much positive spirit will get you far. My prayers I add to the others, for you to be safe in God's hands, and all goes well.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy
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