New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

worried mom 1
Regular Member

Date Joined Mar 2010
Total Posts : 172
   Posted 8/16/2011 10:25 AM (GMT -6)   
 Hi, How have you been doing?  I read you had a lot of trouble your last surgery.  Haven't seen you on here in a long time, must doing pretty good.  I read your take-down is next week.  Hope all goes good for you without a lot of problems.   Have you decided what you are going to do about school?  My daughter is doing great, a couple little set backs .  She will be going back to school this year.  Her first day is the day you have surgery.  Good luck to you let us know how everything went.  Will be thinking of you that day. 

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 8/18/2011 9:13 AM (GMT -6)   
I've been thinking about her, too. Thanks for posting this! Hopefully she's doing so well she's too busy to stop in here. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD

Rachel's Mom
Regular Member

Date Joined Feb 2011
Total Posts : 92
   Posted 8/21/2011 7:35 PM (GMT -6)   
Hi worried mom and pancakes! I'll make sure Elddi sees your posts - she hasn't been on here much lately. She's having take-down surgery on Wednesday! We leave for Cleveland for pre-op on Tuesday. It's been an up and down summer. She finally got her appetite back and we got her weight up by 8 to 10 pounds or so. She's had a couple of bouts of pleurisy this summer which set her back a bit. Her main issue has been getting the *&% addominal incision that came open after her second surgery to heal. We've been packing that baby for 4 months now. For now it's looking like she'll return to college in January but if she recovers well and there's housing available it could be as soon as late October. Hoping take-down goes smoothly and that her recovery is much quicker than with the last surgery! We could sure use all your healing thoughts! I'll keep you posted later this week. ~Lynn

Regular Member

Date Joined Nov 2010
Total Posts : 111
   Posted 8/28/2011 9:29 AM (GMT -6)   
Hi guys, thanks for asking about me! I know I disappeared from here - sorry! I can't really say it's because I've been out living it up - I've been feeling quite good, but I'm definitely not busy. Getting pretty bored of lazing around home, actually. :P

Anyway, things are going really, really well. I got quite used to the ostomy actually and in the end I decided I liked it very much. A great option for if the j-pouch fails. However, so far, my j-pouch has been awesome. I'm going to post with more detail on the thread my mom started for me -
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 6:08 PM (GMT -6)
There are a total of 3,004,860 posts in 329,177 threads.
View Active Threads

Who's Online
This forum has 161749 registered members. Please welcome our newest member, bullit398.
219 Guest(s), 7 Registered Member(s) are currently online.  Details
81GyGuy, mattamx, oceanfisher58, Admin, jmadrid, Saipan Paradise, InTheShop