my bags do not stop the ordor from coming through

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carolsue1ok
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Date Joined Aug 2011
Total Posts : 3
   Posted 8/20/2011 12:58 AM (GMT -6)   
I wear a one piece bag and I using the m9 drops but still the odor comes through.  I really need to know what bag stops most of the odors because I am so embarrassed that people at work talk about it.  I have tried mouthwash and tried putting diluated bleach and using that to rinse my bag but the drops pool at the bottom of the bag and it doesn't really help any.  So there must be a odor proof colonscopy bag out there but which one.  I don't know of anyone else who has a bag and I know my surgen doesn't know which bag is the best so can someone help me please.  I have to work as I am my only provider. 

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/20/2011 9:14 AM (GMT -6)   
Putting bleach in there is a really bad idea. Its probably eating at your skin and the bag.
It won't smell unless you have a leak, or a bad filter. You probably aren't geting a goo seal when you put your bag on. What do you use now?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
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Date Joined Feb 2011
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   Posted 8/20/2011 3:35 PM (GMT -6)   
I find that if I don't change the bag for about 5 days then I can start smelling the odour through the bag but not until then and only if I've been eating quite potent food. I just make sure I change my bag every 4 days and I use a two piece system so can change the bag without having to do wafer at same time.

Are you sure other people can smell the odour as sometimes we can become a bit paranoid and think it smells when actually it doesn't. Ask a family member or close friend to tell you if they can smell it. If not then don't worry, if they can then have to say I'm stumped as to what answer is. I use convatec natura two piece with a mouldable wafer. Do you have a stoma nurse you could ask for advice, there should be one located in the hospital where you had your surgery.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, azathioprine, codeine, immodium, simethicone.

Christine1946
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Total Posts : 5965
   Posted 8/20/2011 7:48 PM (GMT -6)   
     Try using about a capful of 3% hydrogen peroxide in the bag.  I usually rinse the bag (I use a one piece Coloplast Sensura bag) with cool water two times and then place a tiny amount of the 3% hydrogen peroxide in the bag.  I find it really helps deodorize better than anything else I have used.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 8/21/2011 10:43 AM (GMT -6)   
I'm going to guess it's a filter issue or the tail...the pouches do not smell on a normal basis. You may want to try a two piece appliance so you can change them out after a few days.

Can you give us the specifics about your appliance...velcro or clip? Brand? Filter?
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Another UC wife
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Date Joined Jun 2007
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   Posted 8/22/2011 8:10 AM (GMT -6)   
Whatever brand of appliance you are using try the 2 piece ones and change the pouch every other day. Like others have said if there is a filter put one of the round stickers over it and yes definitely be sure there is no residual on the bottom area of the pouch.

Do you consistently eat foods that give you an exceptional odor for some reason that somehow permeates the pouch? My husband has very little odor when emptying but I assume because he is a plainer eater. Fish will make it have a stronger odor from time to time.

Could you use a very light spray of cologne on the outer area of your underwear to give you some peace of mind perhaps. Of course not a lot as so many people are sensitive to perfumes especially in office areas etc.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 8/22/2011 1:19 PM (GMT -6)   
it happened to me once that the odor was so intense, i actually couldn't breath next to me. thanks to the kind ppl here i found out that the fish oil capsules i started taking prior to posting the odor question was the reason! gosh it smells. eating fish smell through the bag too. not like fish oil, but still. so if you take fish oil regulary or eat fish, stop! :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/22/2011 1:23 PM (GMT -6)   
You know what might be hapening, is that you had a tiny bit of leakage from not getting the tail clean and its getting on your clothes or undies nd you don't notice it.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 8/23/2011 3:27 PM (GMT -6)   
I definitely agree with Another UC wife.. using the little sticker over the filter makes a massive difference. I'd also experiment with different bags - I do find some are better than others. I'm also very paranoid about smell and convinced I get a whiff from time to time - but my hubby swears blind he can't smell it - even during intimate moments ;-) Are you sure people at work are talking about it??. I doubt very much there will be a noticeable smell. Perhaps they're just wondering if there is a smell rather than actually having noticed it? are they talking about the smell after you empty in the loo? or on your person?

Suggest trying some different brands, using the sticker over the filter and a discreet spray of perfume in the 'bag' region/underwear may also help. I always have a tiny air freshener in my purse that I spray in the loo if I have to empty in public.

Good luck! Sarah
Sarah - 39 year old mum of 2 boys, runner/triathlete, health and fitness writer from UK
June 2010 - Peritonitis caused by perforated diverticulitis. Emergency surgery.
August 2010 - Sigmoid colectomy and temp loop ileostomy
October 2010 - Ileostomy reversal - but didn't go well and after 10 months diagnosed colonic dysmotility due to surgery/nerve damage
July 2011 - Permanent end Ileostomy

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/23/2011 10:44 PM (GMT -6)   
this is what i do to see if i have a smell, its funny so go ahead and laugh. i take my pants off, i get under the covers, i roll myself into a little ball, so im pretty close to the bag, and then i try really hard to smell it. if i cant smell it that close and under the covers, then its just in my mind. that way i dont have to ask someone else, and i know there is no smell.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

carolsue1ok
New Member


Date Joined Aug 2011
Total Posts : 3
   Posted 8/24/2011 1:08 AM (GMT -6)   
I am using a one  piece clear plastic bag.  I do use enough m9 drops trust me on that.  It does leak through the clip and I have tried using a bigger clip. I pour in the m9 than add body power to make a past so  it will  stay in.  Due to allergies I can't always smell so I have to rely on other people.   Some can not smell it and others can.   I change the bag about every 3 days.  I completely rinse it out.  I even use liquid soap if I can.  I wish  there was a group near me so I could talk  to them.  I am unemployed because I moved and I am very self aware as I am trying to find a job.  My diet is nothing out of the ordinary.  I don't do hot or spicey foods or very much fish.  Don't worry about the bleach because it is only a few drops diluted in a glass of water and than completely rinsed out.   I will try the other thing instead.  I have sprayed perfume and any other odor covering product that I can think of.   I did try some of those pills that are supposed to reduce odors but I don't think they helped.  I rinse my bag out as many times a day as needed.  If there is stool in  it a lot more and  if not at least every few hours depending when I got breaks at work when I was working.  Thanks for all the suggestions

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 8/24/2011 1:17 AM (GMT -6)   
which company are you using? maybe try another one. i use coloplast sensura 2 piece and have no odor problems. maybe order samples from other companies and see if they work better for you? good luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/24/2011 9:02 AM (GMT -6)   
The soap could be loosening your seal causing the smell, the bleach could do that too. Even though its not much.
I think you should try a different system, maybe one without a clip.

Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 8/24/2011 9:33 AM (GMT -6)   
Summerstorm, I think that is really funny to go under the covers but really a great idea!!

I started using the peroxide and think it is great. I went through to much money with the M9 . Had to use more than the 9 drops. LOL

I notice getting too much moisture on filters totally kills their effectiveness. I sometimes buy the filterless and and don't mind just burping them once in a while.

Hope you find an answer
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