Seeing a plastic surgeon tomorrow

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/23/2011 9:01 AM (GMT -6)   
I have three medical appointments tomorrow -- with my CR surgeon, WOC nurse, and a consultation with a plastic surgeon that my CR surgeon has arranged for me on short notice.

Tomorrow will be the 6 month anniversary of my surgery.

So, we'll see what the new surgeon has to say..... I looked down the list of plastic surgeons, and none of them had perineal wounds listed as a special interest (although most had body sculpting, whatever that is....). This man has a special interest in hand surgery, which sounds really hard, so hopefully the skills transfer.

I'm just getting info at this point. Brian, I am going to bring in info about microcyn and hope I can try that in the interim, although to me it feels like a long shot, as my wound is not infected.... but it's way easier than surgery and won't hurt. I also want to ask about hyperbaric oxygen treatment and wafers with growth hormones -- things my gi doc suggested.

I can't wait to get this wound vac off. I've had it for almost four weeks now, and my wound is still at 3 cm, where it was at the start. August is not the best month for a wound vac on a wound like this..... about half the time it starts to smell really bad on the last day. It'd be one thing if it were working, but it isn't.....

Other than the wound vac and the anxiety about what comes next, I'm fine. The wound itself doesn't hurt at all. Mostly I am distracting myself with other projects, and I haven't been checking here as often as I was. I'll let you know what they say tomorrow, thanks.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

WonderTurd
Regular Member


Date Joined May 2011
Total Posts : 129
   Posted 8/23/2011 12:10 PM (GMT -6)   
Hopefully you get some answers and something done about this. It must be so frustrating not to heal up!
Stacey
Ulcerative Colitis since 2002
Interstitial Cystitis since 2010
Asthma since 2011
July 12 2011 - Proctocolectomy with end Ileo (UC FREE!!!)

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 8/23/2011 1:16 PM (GMT -6)   
Good luck and let us know what they say! I hope you get answers soon!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/23/2011 2:15 PM (GMT -6)   
good luck!!!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 8/24/2011 11:16 AM (GMT -6)   
that sounds pretty miserable. Hope things get better. What kind of projects? I learned to knit while recovering.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/24/2011 6:52 PM (GMT -6)   
Thanks everyone, I appreciate your messages. I am really tired, here's some of what happened today:

Well, first, I just took the wound vac off last night, shut it down. I'd gotten really sweaty, and it was smelling, and I just didn't want to smell bad all day and I didn't see the point.... but the first day off has been strangely traumatic; as I'm always reaching for it, etc.... just feels disorienting (My cr surgeon said she calls it PTSVac).

My CR surgeon thought that there has to be something wrong w/the wound bed, because it healed really well and then it just stopped. She thinks it doesn't make much sense, that it's like there's a stitch left in or something, but she used dissolvable stitches and that's not possible. She wants to do surgery to debride the wound, clean it out well, and have a plastic surgeon stitch it together in an optimal kind of way. She said it's so small that I won't need grafts or flaps (It's really tiny in the opening now, but it's still deep).

She said she really likes this plastic surgeon, works w/him all the time, that he's fantastic, but that he's also really strict about things like bed rest after surgery and that he's going to blame the whole non healing on how much I'm moving around (which is usually fine w/these wounds). Then she said when they talked in the hall he'd suggested silverdine, which is a cream that he likes to use and she thought wouldn't help.

Well, it was a weird set up, because I did like him, but he said right away that his protocol is to use silverdine, talked about why, and said he would not even participate in surgery w/me unless I tried it..... well, of course, I'd rather try a cream than sign up for surgery right away, but it just felt really weird..... like I want my medical people on the same team..... I did ask about the microcyn that Brian84 mentions a lot, and he hadn't heard of it, but said he'd be happy to prescribe it to try if the silverdine doesn't work.

My CR surgeon had said to talk to her secretary after I was done and she'd try to check back in w/me.... I was so happy she did that, because she said absolutely they were on the same team, that if the silverdine works it'll make her a better surgeon, that she referred me to him because she wanted more input. At the end she said if it was her butt, that's what she'd do too. She thought let's say 6 weeks and give these other things a try and then start talking surgery.

I was really glad my partner was w/me because she doesn't fluster much at all (and well, it's not her butt getting poked and prodded) and I was just off the whole time.... I think my reporting here is off a bit too.....

I see the plastic surgeon again in two weeks.

If I do have surgery, it's at least a week of complete bedrest, and possibly more..... meaning not even being able to get up to go to the bathroom..... my cr surgeon joked about how she'd have to hide doing her rounds because I'd be so bored that I'd want to keep her there for hours w/questions....

I hope at some point I go for a long, long time without having my butt examined by someone I met in the last fifteen minutes.... or at all..... just saying....

Trigirl, I was doing a computer project, but after my surgery I did a lot of crochet, which I was pretty new at. I made a baby blanket for my new niece, and my brother was surprised at how much better it looked than he expected (I have my talents, but most are not in the crafts area.... but yarn things are great for recovery...... maybe do that again if I need that bedrest....)
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 8/24/2011 11:56 PM (GMT -6)   
So sorry I forgot to email you back before your appointment :( I had the debriedment surgery just like they want to do to you and unfortunately it didn't do anything for me. It was just more painful and bleed more for a while.
I tried the silverdine as well. It's supposed to be really good, but it didn't kill the infection that I had.
I am not saying that this won't work for you and I definately don't want to discourage you at all.
I became so frustrated with how my wound care nurses, dr's and surgeons were treating this so I decided to do my own research. The microcyn is supposed to be good for non healing wounds and for diabetics. It is supposed to SPEED up the healing process. It also debreids the wound and accelerates the growth of fresh tissue. When I first tried it I bleed more for 2 days, but now I only bleed if I sit for a long time. I have been on it for almost a month now and would like to see if there is any improvement. I am always afraid to get it measured though because they always push the q tip down really hard and it's extremely painful. I wouldn't be surprised if they are breaking it open.
I watched some videos on youtube that had clips of the progress of how wounds healed with it.
Also check out their facebook page.
DId they explain all that would be involved with your reconstructive surgery? I know in my case they would have to pull my stomach muscles down and make a flap going down into my wound. Then they would have to fill the rest with skin grafts and they said since I am not healing now, that the surgery could fail.
I think for a $16 bottle and give it a few weeks it's worth the try. There is absolutely no side effects to it at all.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 8/25/2011 5:33 AM (GMT -6)   
Funny youmention baby blankets. I should go back to those. Scarves and hats are ettingold and everyone I know I"ve made one for. Lots of new babies in family and friends, will have to get on that as soon as cold weather sets in. Not going inside until I have too!!

Good luck with the meds. They sound easier than surgery. I always like to know I have optimized my options. Surgery always last choice.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/25/2011 8:39 AM (GMT -6)   
Brian, that's OK, don't worry about it. I think our wounds are different, and yours is much worse than mine. My surgeon thought the plastic surgeon is going to underestimate mine because it looks like practically nothing -- it's so tiny on the outside now, I can't even get my pinky in to pack it, but it's 3 cm deep. I think the plastic surgeon needs to just see it for a while. I don't have high expectations for anything at this point, so I'm just happy when the thing I'm trying doesn't interfere w/the rest of my life so much.

The CR surgeon thinks this wound is "pristine" and the plastic surgeon said these wounds are always dirty, it's just the location (he said perineal and mouth wounds are the hardest to heal). I think she was thinking let's get this show on the road and get the wound healed as quickly as possible..... whereas for me, I don't want to go right from the invasive wound vac to surgery, when the wound doesn't hurt etc. She said she was shocked that the wound vac didn't work. We are clearly in territory that they don't know much about.....

I think I'll order some puracyn, seems good to have if only for ordinary wounds, and maybe bring it to the 2 week appt, see if I can just switch if the silverdine hasn't done anything. He says he's had really good results w/it..... but I think the data is just bad on this, doesn't seem like they do a lot of controlled studies etc...... my CR surgeon things the WoC nurses know the most ....because the docs who do wounds also do so many other things, they just get locked in their own protocols.... the nurses keep up more.

I do not enjoy getting measured either..... it's a very weird feeling, and I do think it opens up the wound more too..... I was bleeding a lot more yesterday than I have been.

Trigirl definitely good to knit for babies..... everything is so much smaller....hence faster....

Thanks.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/25/2011 8:44 AM (GMT -6)   
Oh, one more thing -- my CR surgeon said hyperbaric oxygen treatment is what she would recommend if I don't heal after the debridement surgery. She said they use it for fistulas and bigger wounds than I have. Brian have you talked to anyone about this? Seems like it might be the next step for you if the microcyn doesn't work (which of course, I hope it does!)
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 8:04 AM (GMT -6)
There are a total of 3,006,382 posts in 329,333 threads.
View Active Threads


Who's Online
This forum has 161830 registered members. Please welcome our newest member, dcbumstead.
251 Guest(s), 6 Registered Member(s) are currently online.  Details
DBwithUC, 0311, tickbite666, dmanIndy, Alxander, iPoop