Posted 8/24/2011 4:52 PM (GMT -7)
Thanks everyone, I appreciate your messages. I am really tired, here's some of what happened today:
Well, first, I just took the wound vac off last night, shut it down. I'd gotten really sweaty, and it was smelling, and I just didn't want to smell bad all day and I didn't see the point.... but the first day off has been strangely traumatic; as I'm always reaching for it, etc.... just feels disorienting (My cr surgeon said she calls it PTSVac).
My CR surgeon thought that there has to be something wrong w/the wound bed, because it healed really well and then it just stopped. She thinks it doesn't make much sense, that it's like there's a stitch left in or something, but she used dissolvable stitches and that's not possible. She wants to do surgery to debride the wound, clean it out well, and have a plastic surgeon stitch it together in an optimal kind of way. She said it's so small that I won't need grafts or flaps (It's really tiny in the opening now, but it's still deep).
She said she really likes this plastic surgeon, works w/him all the time, that he's fantastic, but that he's also really strict about things like bed rest after surgery and that he's going to blame the whole non healing on how much I'm moving around (which is usually fine w/these wounds). Then she said when they talked in the hall he'd suggested silverdine, which is a cream that he likes to use and she thought wouldn't help.
Well, it was a weird set up, because I did like him, but he said right away that his protocol is to use silverdine, talked about why, and said he would not even participate in surgery w/me unless I tried it..... well, of course, I'd rather try a cream than sign up for surgery right away, but it just felt really weird..... like I want my medical people on the same team..... I did ask about the microcyn that Brian84 mentions a lot, and he hadn't heard of it, but said he'd be happy to prescribe it to try if the silverdine doesn't work.
My CR surgeon had said to talk to her secretary after I was done and she'd try to check back in w/me.... I was so happy she did that, because she said absolutely they were on the same team, that if the silverdine works it'll make her a better surgeon, that she referred me to him because she wanted more input. At the end she said if it was her butt, that's what she'd do too. She thought let's say 6 weeks and give these other things a try and then start talking surgery.
I was really glad my partner was w/me because she doesn't fluster much at all (and well, it's not her butt getting poked and prodded) and I was just off the whole time.... I think my reporting here is off a bit too.....
I see the plastic surgeon again in two weeks.
If I do have surgery, it's at least a week of complete bedrest, and possibly more..... meaning not even being able to get up to go to the bathroom..... my cr surgeon joked about how she'd have to hide doing her rounds because I'd be so bored that I'd want to keep her there for hours w/questions....
I hope at some point I go for a long, long time without having my butt examined by someone I met in the last fifteen minutes.... or at all..... just saying....
Trigirl, I was doing a computer project, but after my surgery I did a lot of crochet, which I was pretty new at. I made a baby blanket for my new niece, and my brother was surprised at how much better it looked than he expected (I have my talents, but most are not in the crafts area.... but yarn things are great for recovery...... maybe do that again if I need that bedrest....)
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery