My son is 14 yrs old and started High school as a freshman this year. He is currently flaring badly and we anticipate a possible trip back to the hospital this weekend. He has been suffering with UC for year, diagnosed in February 2011 and none of the meds have helped.
He has made the decision to have the J pouch surgery. I know it would do him a world of good to hear about the surgery from someone his age. He is scared and his biggest concern right now is stressing about how he will ever manage to keep up in school.
We anticipate that he will be going to school through the Hospital Homebound program through the school system. It would be great if you could share your surgery experience and what to expect about the surgery, post op, and recoup period, as it might ease his mind a bit...but only if you care to.
You can find my email address on my profile if you wanted to email me directly vs. posting on the board. We have found so much support on this website.
I wish you the best for your senior year!!
14 yr old male, Diagnosed February 2011. Currently trying to control flare
Started Remicade 6/15/11- 4th infusions scheduled for 9/8/11
Remicade 250mg every 6 weeks
Sulfasalazine - 1000 mg 3 X day
Prednisone 15 mg day
Poly-Iron 1 xday
Pepcid 20 mg, 1 x day
Canasa suppositories 2X day