Biopsy results

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Mum to Five
New Member


Date Joined Jul 2011
Total Posts : 19
   Posted 8/26/2011 8:00 AM (GMT -6)   
Well, I had the liver biopsy on Monday.   Man, was that ever fun!   Okay,  yeah, right.    I'm still a tad sore, but nothing horrible.   I did get the results yesterday.   And I have cancer again.  This is my third time!   The first two were colon cancer.   My doc  said this ISN'T colon cancer!   It's not staining like colon cancer.   So, on Monday I get a full body PET scan to what else could possibly be brewing in there before I have surgery to remove my poor rectum that still needs to come out.   Oh, and there still some spots on my spleen that we need to be concerned about.  
I just pray that if there is something else going, that it's operable/fixable.  
 
I hope everyone has  a great weekend!   I'm going to try to get out and do something fun with my brood.   cool
Jen

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 8/26/2011 11:26 AM (GMT -6)   
So sorry. Hope you have a great time this weekend and the test mon goes well, whatever that might mean.....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2354
   Posted 8/26/2011 1:30 PM (GMT -6)   
So sorry Mum to Five. What a tough deal you have had. Praying for good results for you.
B
Proctosigmoiditis
2 Lialda/day  Rowasa nightly
VSL#3
Metamucil wafers

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 8/26/2011 1:47 PM (GMT -6)   
I'm so sorry to hear. That is not fair and so stressful. We are here for you! Keep us posted. Hugs!!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 8/26/2011 2:02 PM (GMT -6)   
Really sorry to hear that.. :-( thinking of you and hoping there'll be a solution. Sounds really rough and just not fair. Distraction with the kids sounds like a plan for the moment. Take care and big hugs xx
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog - http://bagthatruns.blogspot.com/

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 8/28/2011 1:50 AM (GMT -6)   
Mum to Five,

Hello, and I am so very sorry to hear your news. You have been thru so much & now this. You are such a strong woman that seems to have a great outlook on things upcoming. Pleez keep us posted on the results from your PET Scan, and when will you be having this particular scan done?

If you want to chat anytime I am here for you, as I am sure a lot of members are. You will be in my thoughts & prayers...Sending you a Rainbow of healing.

Your Healingwell Friend,
Serenitee

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 8/29/2011 10:21 PM (GMT -6)   
I am so sorry to hear this. I hope you get the best news possible and can get on the road to healing. Will be thinking about you.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 8/29/2011 11:04 PM (GMT -6)   
Mum to Five,

I just wanted you to know that I was thinking about you & just wanted to let you know how much we care. Sending you Smiles & Rainbows your way.

Your Healingwell Friend,
Serenitee

Loop ileostomy, Pelvic & Bladder Trauma & Dysfunction currently...

Mum to Five
New Member


Date Joined Jul 2011
Total Posts : 19
   Posted 8/31/2011 10:49 PM (GMT -6)   
Well, the PET scan went just fine.   I even got to use a bathroom with a "warning: radioactive materials" sign on the door.   For some sick reason that cracked me up.   My life just gets weirder and weirder.   turn
I saw my oncologist this morning, and he told me that nothing showed up that we didn't already know about.   Well, except that now my rectum is showing up as having cancer, not just atypical cells.   I was really expecting that anyway.   It has taken so long to get everything scheduled in the first place, and then the whole liver thing popped up.    But since I was planning on having the rectum out anyway, this doesn't really change anything.   I just wish we could get the surgery over with already!   So, anyway, what glowed on the PET scan was my liver, my spleen and my rectum.   All small spots.   What's mystifying the oncologist is that the liver biopsies didn't come back as liver cancer.   So he doesn't know what is up with that.   I'm seeing a surgeon in Baltimore at U of MD Hospital who did my colectomy last summer.     I'm not sure if my surgery will be there,  or here locally.   Local would be easier on all of us, but the liver and spleen complicate things, so it might have to be moved to Balto.   Yay.   Whatever works. 
I am just so thankful that nothing else showed up!!!   I was really afraid they would find something inoperable this time.  
Thanks for all of the prayers and well wishes!   I love this board, and I'm really glad I found you all!
 
Jen

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/1/2011 1:04 AM (GMT -6)   
WOW Jen, I just read your post. The waiting must have been awful. Glad things turned out as well as could be expected for you. PUts a lot in perspective for me. I wish you all the best. Rosemary

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 9/1/2011 1:06 AM (GMT -6)   
Mum to Five,

Glad to hear that it was what you were kind of expecting & it wasn't more. I think you are so brave, strong & an amazing woman. Will they be removing your spleen, liver spots + rectum? Then after surgery will you have to go thru Chemotherapy or Radiation? Sorry for the questions...You & your family will be in my thoughts & prayers. Take it easy & don't over do things.

Sending you Smiles & Rainbows your way + a Hug if you don't mind...Lol
Your Healingwell Friend,
Serenitee

Loop ileostomy May 2011, Pelvic & Bladder Trauma & Dysfunction (currently)...15-surgeries over the years, and probably another 2-surgeries this year.

Mum to Five
New Member


Date Joined Jul 2011
Total Posts : 19
   Posted 9/1/2011 10:56 PM (GMT -6)   
Hi Serenitee,
I'm not sure if I'll need chemo again. I've had it twice before, because both times I had colon cancer it had spread to lymph nodes. Nothing else glowed on the PET though, so I'm not sure about this time. I really hope no more chemo. Colon cancer chemo is pretty easy, as far as chemotherapy goes. I wasn't raging sick and I didn't lose my hair. It wears you out more than anything. But I don't know what the protocol would be this time, since the biopsies didn't show colon cancer, but something else. And I don't even want to think about radiation!!! Yikes!

Thanks for the kind words! I think everyone on here is pretty strong. All of the stories just amaze me.

Jen

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/2/2011 11:29 AM (GMT -6)   
Wow. That seems like a lot to cope with. Must say your attitude seems positie and that is half the battle.
You are in my prayers and hope things get organized and done quickly for you. God bless.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 9/2/2011 11:55 AM (GMT -6)   
You are an amazing woman! I have been inspired by your positive attitude. My vote is that you have your surgery done at a large metro hospital. They have more experience in tough cases and see more weird. I have never regreeted my decision to have surgery two hours from home as I had a top knotch experienced surgeon.

Sue
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