Thanks for the support everybody! I honestly can hardly believe how good I feel. It is seriously amazing to me that I just had my guts rearranged and I feel as good as I do. I had my reversal four days ago and already I feel so much better than I used to when I was flaring.
Wednesday night I had no action; my guts hadn't "woken up" yet. Thursday night I passed gas but no other action. Friday I started going, and Friday night I was up four times with a bit of cramping, gas, and diarrhea. But last night, and maybe it's because I'm not eating too steadily yet and there isn't an enormous amount going through me, but last night I went to the bathroom before bed at 10:30, and slept uninterrupted through the night until 6:30. 8 hours! On my second night of "going!" I'm enthralled and amazed and so, so, so happy. It's still hard to know what to expect, but I take this as a great sign.
MotherofTeenwithUC, I can sympathize with your son a great deal. I was 14 when I was diagnosed. Severe UC is so difficult, and especially for someone so young who more likely than not doesn't get a whole lot of empathy from friends who are all young and healthy and can't understand what it's like. If he's on Remicade and still feeling bad, then it's time, I think. I think he will be very glad to have had the surgery. I know I am; I would never ever go back. Even if I had j-pouch failure and had to go back to the permanent ostomy, which is what is largely considered the "worst case scenario," I'd be fine. The ostomy, for me, is also soooo much better than having UC. The process is pretty long and hard, I'll say that, but the end result is so worth it. Try not to be too scared; if his experience is anything like mine, he will NOT regret it!! If either of you want to email me at all, feel free to do so: rachel (dot) wigell (at) gmail (dot) com.