This is my first post to the Ostomies board. My 14 yr old son has decided to take the plunge and have the J Pouch surgery. After one year battling UC (and only six months since diagnosis as he hid it from me) he is fed up with all the meds and constant flares despite his physician trying medication under the sun. He is in a severe flare at the moment, bleeding heavily and in pain. Also running low grade fever. Good chance we will end up at the ER today.
I was hoping that there was someone on this board that can share some of their personal experiences (good or bad) regarding the surgery (part 1 and part 2) and the recuperation. My son is a freshman in high school and I thought that it might help him if he could hear from a peer about what to expect.
Thanks so much!
14 yr old male, Diagnosed February 2011. Currently trying to control flare
Started Remicade 6/15/11- 4th infusions scheduled for 9/8/11
Remicade 250mg every 6 weeks
Sulfasalazine - 1000 mg 3 X day
Prednisone 15 mg day
Poly-Iron 1 xday
Pepcid 20 mg, 1 x day
Canasa suppositories 2X day