motherofteenwithuc

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worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 8/27/2011 10:51 AM (GMT -6)   
 
 Hi turn   My daughter had her surgery at the age of 15.  She just turned 16.  She had a hard time dealing with the bag.  Only had it for two months.  She recovered very quickly from both surgeries.  After her first surgery, seven and a half hours.  That night after waking up she cried and said she was so happy.  I asked why and she said she was so happy her stomach didn't hurt anymore.  So she could tell the difference the same night.  I also was like you and tried to avoid surgery.  I can honestly say that was the best decision for her.  She is out now being a normal teen again.  Hang in there, it does get better . 

MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 8/27/2011 12:31 PM (GMT -6)   
Thank you for telling me that.  I want so much for him to be happy and healthy again.   He is begging me to take him to Outback Steakhouse for a big steak before he goes back to the hospital! nono  
 
 That's what he misses the most...being able to eat anything he wants and not suffering from it afterwards. yeah
 
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Currently trying to control flare
Started Remicade 6/15/11- 4th infusions scheduled for 9/8/11
Current meds:
Remicade 250mg every 6 weeks
Sulfasalazine - 1000 mg 3 X day
Prednisone 15 mg day
Poly-Iron 1 xday
Pepcid 20 mg, 1 x day
Canasa suppositories 2X day

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4542
   Posted 8/27/2011 12:56 PM (GMT -6)   
motherofteenwithUC-
I had my surgery last June with the final surgery last October. I can tell you the same thing- Even though I had the post surgery pain, I could tell right away that I felt "better". I know, that sounds strange but I guess when your colon is so badly deseased, it feels good to get rid of it!
 
I can't imagine having to see one of my kids having to go through this. As a parent, that has got to be so heart wrenching. But on a happy note, he will be on his way to being healthy again and he will be able to eat all his favorite foods again! (I can now!) Best of luck!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 8/27/2011 8:31 PM (GMT -6)   
How long does the first surgery take?   I have heard mixed things but thought it best to ask those who have gone through it.
 
thanks!
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Currently trying to control flare
Started Remicade 6/15/11- 4th infusions scheduled for 9/8/11
Current meds:
Remicade 250mg every 6 weeks
Sulfasalazine - 1000 mg 3 X day
Prednisone 15 mg day
Poly-Iron 1 xday
Pepcid 20 mg, 1 x day
Canasa suppositories 2X day

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4542
   Posted 8/28/2011 8:28 AM (GMT -6)   
I had two step surgery. In my first step the colectomy was done and the J pouch was created with the temp ileostomy. It took 7.5 hours. I also had it done lapoarscopically.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

Rachel's Mom
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 8/28/2011 5:47 PM (GMT -6)   
My daughter had the three-step. The first surgery took about 3.5 to 4 hours. Second surgery was similar in length. Final surgery was about an hour and a half - longer than typical because she had a wound that needed to be debrided and stitched up left over from her second surgery. That first surgery seemed like it took forever! We had a pager at the Cleveland Clinic - the surgical team would send updates on it. During the first surgery it quit working! We started to worry about why it was taking so long and went to ask - turns out the surgery was already over and she was doing well! We just never got the message!! Very hard on a mom, let me tell you!

worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 8/28/2011 6:23 PM (GMT -6)   
My daughter had hers in 2-steps. The first one took about seven and a half hours. A nurse came in and updated me about every hour and a half to two hours.
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